From what I’ve seen/heard he’s a great LLMD.[/quote] He has been for me. Brilliant physician and lovely human being. And he’s had a serious Bartonella infection himself that left him unable to...
I’ve been a patient of Dr SP. If you have questions feel free to email me....
I would. I’d love to know....
flowergarden I’ve heard through others that the skill of the practitioner is a factor in the success of treatment. I did really like my first practitioner. I switched because of logistics, not...
I’m currently doing it as an adjunctive therapy. I’ve been going for over a year but haven’t had sustained improvement although I have had periods of normalcy following sessions. I switched...
It’s something I think about a lot. Even for those of us who do treat. We can treat until we’re symptom free but these are stealth bacteria and we just have no way of knowing if there are bacteria...
He is, Girlie. This is from his website: “The second project is further along in that we're ready to go forward with drug formulation and laboratory testing. I'm working alongside Dr. Neil Spector of...
For anyone interested here is the video from the recent Lyme Connection Conference with Dr. P. He speaks about the drug he’s developing for Bartonella/Lyme. Also, a good q&a at the end....
I’m also on Tetra (Dr. P) and I do get vertigo, dizziness, head pressure, etc. as part of my normal symptoms and all of my symptoms get worse during my second week pulse. I know for me it’s a herx....
Hi AliceNJ. Welcome to the forum;) Your symptoms can definitely be from the same infection. A two week course of antibiotics isn’t sufficient even for a new infection. Steroids given to Lyme patients...
My LLMD loves Monolaurin and has started to recommend it. I’ve definitely herxed on it and I’m only up to 7 pellets x2....
Just the beauty of having another day, no matter what it is like, makes me cry sometimes. sandyfeet - It’s a gift to see life this way;)....
I love coffee but sadly had to give it up 25 years ago when I was first infected. For a long time I was too sick to miss it but when I went into remission my nervous system still just couldn’t handle...
Absolutely. I often need to take breaks from forums, fb groups, etc. because the suffering of others is too much for me to handle. When I’m feeling well, I can handle more but eventually it starts to...
I’ve pulsed Zith - 2 weeks on/2 weeks off. Not sure about Mepron - we never got that far....
It’s so hard to answer these things. I don’t know Dr. J so someone else can answer that. Dr. P does break ranks with some of the other high profile LLMD’s in certain things. I’ve had air hunger and...
Yeah it’s taken a couple of months to feel like I’m getting back on track. I love pulsing for the break it gives the body and hopefully helps the immune system to gradually take over. I sure hope...
A half hour is really quick. I wouldn’t think it would have been broken down in your stomach and in the bloodstream that quick..that’s interesting.[/quote] It is quick! I read that it takes about 20...
I would herx soon after taking every dose of abx when I started treatment. Sometimes 1/2 hr after. I would always wonder if it was an allergic reaction but it was my normal symptoms and over time it...
Wow - 8 years is a long time. Glad your current protocol is working for you. I agree that if it’s working don’t change. It can take a while. I also tried stopping abx for a couple of months when I...
Yes, 2 on/2 off. I may try Diflucan soon. Has it helped you?...
I’ve been with him for two years. Although he has his core protocol - he really does tailor treatment to each individual patient. He generally pulses two weeks on, two weeks off. I’ve never taken...
I don’t understand it, either. I really thought he was one of the good guys. I also found a twitter post once exposing Global Lyme Alliance as having funded research that Gary Wormser participated...
But then there’s this... https://www.facebook.com/permalink.php?story_fbid=521702184890691&id=100011527417750...
Interesting since Buhner not only says it’s ok to take herbals along with abx but he singles out JK as the one herbal to take, if no other, because he states that it enhances the effectiveness of the...
I’m also a Dr. P patient and although I don’t personally know his NP or the new Dr. at his practice I do know that he was extremely particular about who he wanted to bring on board. I wouldn’t...
Daisies and Rubies would you mind emailing me the name of your LLMD also? Ty;)...
Interesting. When I started having a relapse of symptoms several years ago I started taking 10,000 iu/day to bring my level up from 8.3 and the symptoms I was having resolved. I was nervous about...
I had two root canals done years before my tick bite and never had issues with them. In fact, my dentist said they were beautifully done. After the tick bite, along with a host of other symptoms, I...
So sorry you haven’t seen progress but hope his office can get you there. It’s unfortunate that even though an endemic state NJ has so little to offer that we need to travel to get qualified...
So happy to hear this. Prayers that it continues and you can all live a normal life going forward. Thanks for posting....
Aerose - would you mind emailing me with that info? Ty;)...
I’m always wary of bandwagons. It seems that it’s usually the few small voices on the periphery that hold the wisdom. I guess it’s just human nature to want to belong so they follow the crowd. A lot...
My LLMD thinks it’s blebbing. He thinks it happens with Lyme & Bart. It’s why he pulses 2-3 weeks apart to allow the blebbing to calm down before restarting abx. This is what he says in his FAQ:...
Patty, my LLMD prescribes fluconozole frequently with abx, but never with Zithromax for the reason Girlie posted. He prescribed it for me with Tetracycline....
Summer, you might try opening a probiotic capsule, empty it in a liquid and swish it around your mouth and swallow. It seemed to help with my candida. I think I actually read about it here in a post...
Heartbreaking😥...
?? if nothing worked for him how did he get better?[/quote] Sorry - I mean none of the other herbals worked for him....
He was unable to walk prior to treating. It took a year and a half of very aggressive treatment and he gradually improved. I knew about his serious back issues and that he had to close his practice...
This is my LLMD and he is not only brilliant and a real champion for us but he is also one of us. He had a very serious Bartonella infection that left him unable to walk for two years. He didn't...
I just started the Lyme protocol - 2 sessions. So far my practitioner has addressed supportive structures only, kidney & liver, detox and hormonal balancing, etc. As I understand it, it takes a while...
There's an interesting thread from July 29 titled: Dr. Carolyn Dean: Why Minerals Are The Key To Health (Especially Magnesium) If anyone is interested there is some good info from GeorgiaHunter as to...
. . . . You're def not the first patient I've heard from that says they've had issues with magnesium. Honestly it seems like the ratio skews towards 9:1, in favor of magnesium helping patients and...
I saw Dr. E once. Super sweet, really cares. She uses muscle testing and nothing that she "tested" me for did any good so I moved on quickly. It's hard to know whether or not she can help your...
I have to say Pinella & Burbur really seem to be helping my brain fog & pulsating. I just started using these so hoping it lasts....
Magnesium makes my symptoms much worse. I've tried it multiple times in various forms and had the same reaction every time. I tried taking Natural Calm several times for sleep issues when I was in...
I actually did email them once recently but never heard back. Well that is rude of them. You might go to their website and use the "Contact Us" section. Did you use [email protected] as...
I actually did email them once recently but never heard back....