The big difference between this and swine flu is the death rate.. if 60 million Americans catch this we would be looking at something like 2 million deaths.. that's a massive difference. For all...
Hi I am also from the uk but live in Spain now. I have found getting doctors to believe/understand you to be equally bad in both countries. I have had decent results with 18 months of mino and...
I was treated in southern Spain at a place called Marbella lyme clinic. I couldnt be happier with the service and treatment I recieved...
Maybe change the doxy for mino? It penetrates the brain much better...
Actually i just read it again, and only testing for lyme was done last year, so elispot coinfection testing was this year?...
Ahh ok that makes sense...
Interesting that all the elispot tests came back negative but standard testing was positive. I only did the elispots and they were negative too...
Hi Im sure you wont be short of stories to choose from, here its the norm. I was told just yesteday it doesnt exist here in Spain its a battle i have at every hospital appointmant despite being...
I wondered about this also.. when testing through Armin labs they say you must be off treatment for at least 6 weeks before testing....
I dont think it matters but out of curiosity what ABX are you taking? I used to take 200mg of mino in just one dose and never really worried about timing...
I second that.. it made a big difference to me...
Id like to know best for without a prescription...
I have to ask why they are running out?? I dont hear of it being prescribed for many other things than Lyme. Big increase in lyme cases? If youre desperate I could always post you some from Spain 😊...
This disease is almost impossible to understand even for the experts .. Symptoms are different for everyone trying to understand everything will never happen. You just need to believe the feelings...
I had this really bad when starting mino,it was horrible!, apart from numerous trips to ER it kept be in bed for a couple of weeks. It did slowy pass with treatment....
Girlie, when I first posted here you were the first to reply and it was within minutes of my post. At that time i had not yet been diagnosed and i was really struggling with things, your reply made...
I also agree with astroman, staying calm easier said than done I know definitely had a possitive effect.. At my lowest I had completely given up and couldnt bare to carry on.. Only thinking of my...
I am interested in this too, I can only assume that taking a probiotic along with something that kills bacteria isnt ideal. Kind of cancelling each other out...
Its an easy one for me to answer as for much of my treatment i was only on minocycline and saw a massive improvement in 9 months, It maybe got me up to 80% better, I know I have been very lucky. By...
The general consensus here in Spain is that lyme doesnt exist.. I have private health care that wont treat me.. the goverment health system wont treat me for this reason and they think im the idiot....
Looks like a spider to me...
Thats great that you have had some relief!! Yes Its incredibly strange, be thankfull for any symptom free moments, just be prepared as it could be the calm before the storm....
Good luck Oriol!! , keep us posted...
I have had a grand mal siezure along with myoclonus and the MRI came back normal. my neurologist who doesnt believe in lyme diagnosed me with epilepsy and prescribed valproic acid to control it. The...
Sorry to hear you are suffering, as others have said maybe some time off is whet you need to be able to heal. I had 5 months off and managed to go back, there is hope even when it feels impossile....
Hi guys.. Not sure if this has been discussed but i came across this article in the UK press and I have mixed emotions....
For me mino worked amazingly but at the start it was very hard.. I steadily declined for the first 6 weeks, visiting the ER many times. The dizzyness was one of the worse symptoms along with many...
I have also worried about a possible coinfection, I started a low dose of Japanese knotweed a couple of months ago and think ill probably step up a herbal protocol just to be sure....
Thanks girlie. Yes the only antibiotic I took was minocycline and I know this is not what is recommended on here which does worry me. The infection wasn't caught early, I was bitten by the tick...
Hi guys Good news I think.. After being on treatments for 9 months I went to see my LLMD yesterday for my 3 month check up and he was so happy with my progress that he has decided to gradually stop...
Hi Oriol, I was talking to the girl who owns the lyme clinic I use today, she has/ had Lyme herself. She was telling me that when she was treated it took 8 months of continued treatment on the same...
I dont know how they work and at first I was sceptical but they definitely work .. I didnt notice a difference right away but if when taken consistently they make a big difference for me...
Interesting! My ankles are the only joints that still hurt, I never realised this could be a sign of bartonella. Ive been treating lyme for 8 months with good progress but seemed to plateau with some...
Hi It wasnt recommended by my Llmd but i did try CBD and sorry to say it didnt do anything for me. It didnt help my sleep or any of my other symptoms. THC on the othe hand did help me, it eased my...
Hi, Im from the uk originally but dont live there anymore so cant tell you 100% but unfortunately I think you will struggle to get the NHS to accept the Armin labs results. Even if they do I doubt...
Wow that's awesome. Care to share the website(s)?[/quote] The website I use is Napiers.net based in Scotland but ship world wide.. Arrives here to me in Spain in around 3 days....
But don't make the mistake of buying the cheapest herbs you can find...you do want quality herbs. I typically purchase my herbal tinctures from either Woodland Essence or Sage Woman Herbs. I ran out...
Wow.. all these prices you are talking about seem crazy to me .. I buy all my herbs from the Uk they seem much cheaper than the prices quoted here for example 1 litre of 1:3 jk tincture works out at...
You dont think it could be withdrawal from the benzos? Ive had a siezure but nothing like this...
I went out last night and had a few vodkas for the first time in over a year, I was unsure how it would effect me but have woken up this morning feeling pretty good....
I had reactivated ebv with no swolen lymph nodes...
Hi the jerking is one of my worst symptoms and got much worse when I started treating. The jerks were studied by my neurologist with an EEG and diagnosed myoclonic jerks a type of epilepsy... Im sure...
Minocycline did exactly the same to me it got progressively worse for 5/6 weeks then started to improve Im jot sure if it was a herx or just the med but Ive been taking it for 6 months now and im...
I just seem to have a few good days followed by a few bad days and then the same all over again...
I see mine every 3 months...
Im just guessing you could but the tincture tastes awful so im not sure why you would want to...
How would you know you are cured? You could be symptom free today only for it to come back months/years later...
Welcome to the forum, understandably like most of us when we first came here you are looking for a quick fix.. I wish it was that simple. Theres not one treatment that can be said works better than...
Thanks but All day chemist are asking for a prescription? Oriol, ill message you this evening 😊...
Sorry everyone, I have been working away for a while. The clinic I have been using is called the marbella lyme clinic. It is owned by a girl called Kim who has/had lyme her self.. They have been...