its a step in the right direction..however given the depth of this problem, unlikely we can expect an honest answer....
Yes, it seems like progress. hopefully its not shot down and buried, like other investigations. the misinformation and coverups are thick in our government...
https://lymediseaseassociation.org/government/federal-government/federal-legislation-federal-government/summer-2019-us-house-actions-on-lyme-tbd-july-9-1-passed-1-blocked/?fbclid=IwAR3OyksYMVlmljAAZdO...
this article is propaganda for the recent Draft IDSA guidelines, the Shapiro et al Texas lawsuit, and the Shapiro appointment on TBDWG. the agenda is pretty clear to those in the know. pure garbage...
If you go to a cardiologist, they will do various tests to calculate your heart function to determine chf. My dad has chf, it is from various things. Silent heart attack years ago, arterialsclerosis,...
I agree. Steere is involved too, it looks like they are continuing to push the PTLDS narrative, and the lyme arthritis narrative. numerous times they state that PG is the cause, and that spirochetes...
Galaxy will say that about the IFA. People then say to go by "symptoms", of course its near impossible differentiating these symptoms from bartonella versus some other infection. some reports of Dr M...
NAC is an antioxidant that is a glutathione precursor, aid in detox...additionally, has reported benefits of breaking down biofilms....
I was taking 2x600mg of NAC twice a day, 2400mg. But have reduced it to just 600mg twice a day...
I agree, if your husband wants help, there is little good help to be found in Eastern PA, you have to travel. It sounds like he got infected in the same area i was infected, i got my tick bite from...
..... are horrible at Lehigh Valley Cedar Crest. they should be in prison. quintessential IDSA docs. knowingly and willingly let their patients suffer My PCP is part of Lehigh Valley Health Network,...
THe Pike County place is new, its unclear to me if they know how to diagnose and treat properly. i have asked our local support group, Lehigh valley Lyme and they haven't heard any feedback about it...
I went to an LLMD, and began long-term integrated treatment (antibiotics+herbals+supplements). LLMDs are hard to find in our area, so i travel. Dr MM in Exton PA is good at diagnosing and begining...
Lehigh Valley Cedar Crest, misdiagnosed me for almost two years. I repeatedly didnt test positive, so they told me it was everything but lyme. I saw all their doctors. I even saw their head of...
thanks, the VA Medical Oncologist says they get concerned when the doubling is 6 months or less. currently the doubling is around 11 months. she requested that we repeat the PSA just to double check....
initial IMRT 2011 - low/undetectable PSA 2011 thru 2017 - 7/17 1.18 - 2/18 2.55 - 4/18 2.89 Low dose pulsed radiation 10/2018 - 2/19 3.0 - 5/19 3.8 the reading at 2/19 it was suspected that it was...
thanks for your feedback. yeah its sure looking like this. how common is it for multiple different scans to not yield any cancerous cells outside of the prostate.? i am wondering how much i should...
out of curiosity, are there any curative options given that the cancerous cells cannot be identified at this point with imaging? or just ADT. thank you...
thanks First round of IMRT, the PSA was very low, undetectable for many years. then slow rose to around 2.9-3.0. then we did bone scan (negative), PET scan (negative), CT scan (negative) biopsy....
thanks, we are suspect of PSA bounce too. still waiting to hear back from radiation oncologist about this result. we have an appointment with medical oncologist in early June. i expect they will want...
thanks for your response. i will have to dig back to see what fractions he had when he received IMRT. he had a bone scan and PET scan last year prior to this round of radiation. both his medical...
my dad had IMRT initially. then the prostate cancer resturned last summer, then we tried Low Dose pulsed radiation in the fall. now it appears to have come back again too. the intent originally was...
Hello, i am lookin for feedback. My fathers PSA is rising again, after receiving low-dose pulsed radiation therapy at Fox Chase. its been six months since that treatment, at 3 months it was 3.0 and...
I live right by Allentown, in Bethlehem. There are no LLMDs close to the area, any decent doc you will have to travel for. out of curiosity, i too called the Pike County place, they never called...
It could be a histamine reaction too, from seasonal allergies. here in PA for example, there is a lot of pollen now...
Yeah, its a scary announcement, came from the FDA after a ten year study. Seems to be focused on patients with existing cardiovascular disease though. Wonder if any patients in the study were taking...
yeah that warning is the QT interval warning, that comes with most macrolides. the Biaxin warning was different, it applied mainly to people with cardiovascular disease...
I have worked for over 30 years in IT in various capacities, but mainly architecture and development. when TBD hit me, i was unable to do it. Luckily i was able to take short term disability for a...
I took Biaxin initially when treating babesia/lyme before switching to bartonella/lyme focus. I was taking Biaxin/Ceftin/Plaquenil/Mepron. it was a great combo. it was right when the FDA made their...
yes, it is was really really frustrating, discouraging. but it was pivotal for me in my understanding of this, after seeing so many doctors, and all of them dismissing lyme, the pieces were starting...
Rifampin is listed - I’m curious about Rifabutin - if it was part of the study.[/quote] I would like to know if rifabutin was part of the study too, they didn't seem to disclose the complete drug...
ah, i see he doesnt list in his introductory protocol, just tinda https://www.treatlyme.net/lyme-disease-treatment-guidelines but lists later. i didn't like the cancer risk with it, but understand...
Every doc has their preferences, for me, i wanted to minimize risk where I could, like no flagyl/tindy or cipro. Dr M i believe uses various combos and herbals, but focus is on rifampin/rifabutin. i...
Dr M seems to be the leading bartonella expert, given his connection to Galaxy. i would consider him a bartonella expert. Phillips is a self-claimed bartonella expert, who takes more of introductory...
the evidence is lacking for what Flagyl has good activity for, a lot of leading LLMDs dont necessarily use it. LLMDs with expertise in bart dont seem to use it...
neurologist was a waste of time, i went there with an abnormal MRI, three small white matter lesions in my brain. he said that although they were reported as abnormal, its common and nothing to be...
my lymph node issues in my neck seem to have resolved last summer, been about 8 or more months now since that symptom. i attributed it to exercise and eating a good amount of raw garlic...
probably June is the next major milestone in the case. Anyone know if Judge Shroeder is crooked like a lot of them, wondering how he did with other complicated cases...
I agree, i would like to see the complete list of drugs used in the study....
the latest study on bart drugs that just came out yesterday, it lists the top 41 drugs with good activity against bart. Flagyl isnt on that list...note these are in vitro...
xpeetzax, congrats and good luck. I found mine combo with rifabutin to be the winning combo for me too, resolved mostly everything except for couple things. i was on that combo until October 2018....
yeah, no mention if rifabutin was in the drug library either. the in vitro results dont always translate to in vivo. in the discussion at the end, it states that biofilm could attribute to difference...
This article is interesting, i wonder if the reason why people do well on mino, azith, rifabutin or rifampin, is due to it working primarily against lyme, such that your immune defenses start to work...
I felt fine on mino, azith, and rifabutin - just slow improvement of symptoms over the period. it was the game changing protocol for me, 7 months straight daily dosing. it can affect your TSH and...
I have had all these symptoms too, puffy eyes, prominent veins on hands and feet, skin that looks like chicken wire, sunken in cheeks, muscle wasting, ridges on fingernails, etc. i believed a lot of...
the first year of diagnosis/treatment over $30K...year two has been significantly less. the 10-20% statistic is complete BS, that number has no statistical merit. its more like 40-60%...
I estimate the numbers are higher, if you look at all variables involved of all the tickborne infections (bartonella, RMSF, babesia, ehrlichia, borrelia, etc) i would expect it to be higher, since...
along with these bills, i believe its going to come down to some acceptance of any/all methods to treat lyme, not just IDSA. i would be surprised if this detail will be included in the bills, or if...
those extra/slipped beats are somewhat typical of TBD..its likely an arrhythmia. if you have heart concerns, see a cardiologist for echo and 24-hour halter monitor. the echo would identify any...
Definitely a step in the right direction, but still so much more is needed. LLMDs, NDs, under most insurance plans would still be considered "out of network" in PA, legislation in the Senate, SB100...