Forest - I have LOTS (laughing) of experience with mold and I might be able to help a little. I'll email you. Hang in there. MM....
As was previously mentioned, mold can mimic lyme symptoms. One thought, if you haven't had it done already, is to see if you carry the HLA-DR gene, which makes recovering from mold exposure difficult...
Hello!!! Great to see you on here and I'm SO pleased you are doing awesome! :)...
Happy New Year, Mister Mike! Thank you for logging in and posting! It's been awhile!!! How are you doing these days? Doing pretty good! Dealing with a bit of a flare-up of head stuff lately, but...
Happy New Year Girlie!! I was so excited to see this I just had to login and post. Sorry about the bureaucratic crap you're dealing with (which hopefully will work out ok) but congratulations on...
Awesome! Thanks Girlie. Wasn't sure how good they were....
I'm looking for Gentiana lutea tincture. Couldn't find at my regular sources (Woodland Essence, Elk Mtn) so wondering if anyone can suggest a good, yet affordable source? Thanks!...
Binding out toxins could help with the rash. Are you still being exposed to the mold? Can you remove yourself from the situation?...
Binding the mycotoxins so your body can dispose of them is the most important thing you can do with mold Illness (outside of removing yourself from the moldy environment). I highly suggest you read...
Bump...
Ljohn23 - what meds are you taking for mold? Are you taking any binders? You may be having a detox issue where you are stirring up mycotoxins and your body has trouble detoxing mold in the first...
I appreciate your candor and knowledge as you seem to understand Coxiella. Mino has given me lots of gut pain, which the other abx don't. Do you have the literature you can send me? Thanks!...
Girlie - I think I will, but may wait a little bit as I'm having some lymph issues I want to deal with first. She suggested this protocol based on Horowitz's work: Doxycycline 100mg 2 x daily...
OriolCarol - Thanks for the question. I've been diagnosed by two separate LLMDs who are familiar with the disease and blood testing confirms it. My symptoms are mostly mycotoxin related at this...
Excellent - thanks Girlie. I like the idea of trying something new. What is the difference between Rifabutin and Rifampin?...
Q Fever can cause it too https://www.ncbi.nlm.nih.gov/pubmed/15368098 ...
Right back atcha! Wishing you the best 2019....
Thanks Girlie! Are you on lots of supplements to mitigate the side effects of dapsone and the others? If so, what? Where would my doc (or I) find the protocol info?...
Thanks all! Good luck K07 and please let us know if it helps!...
Hey all, As some may know I've been dealing with chronic Q Fever (which is a Lyme co-infection) for about 3.5 years now. I'm currently on ABX treatment for it, but to be honest I'm not sure if it is...
Proximity to my car's computer?...
Oh I missed that they were red - nevermind! :)...
Hey Girlie! Sorry about your herx. Hopefully your critters are in their death throes and you'll be back to normal soon! I'm doing ok. I've embraced the chaos and am living one day at a time while...
Fantastic - thanks to both of you. A few follow-up questions: 1) Could you please tell me more about the Clifford Test and where I can get one? 2) Who muscle tested the cerec brand for you? I'll have...
Hi all, I just had a crown replaced about a week and a half ago and ever since I've been having weird gland issues in my neck, mostly on the same side as the crown. I saw the dentist the other day...
Fantastic news Girlie!!! I'm am so seriously psyched for you!!!...
I second the liver/age spots theory as I have gotten some of these recently on my face. My doctor confirmed what they were and yours look like mine. It is likely because of your infections....
Sean - I haven't read all of your thread (my apologies) but I would strongly suggest you look into mold as a possibility seeing the abx have done virtually nothing. Great Plains Lab has a urine mold...
Hi MA10, As others have stated the most important thing is to remove yourself from the mold exposure (as someone who is trying to do this at work, it can be very difficult - so you've done the hard...
Thanks Goshawk - I emailed my LLMD on Wednesday and still haven't heard back - grrr. No new symptoms yet but the bite area is sore I took a Minocycline Wednesday but experienced an issue I've had...
On Tuesday I got bit by something, pretty sure it wasn't a tick. I have about pink area about a quarter in size on my right side near my waist band. However as we know other things can carry tick...
Thanks kct! Are your allergy shots Low Dose Immunity for mold?...
Wishing you luck Girlie! I bet it is due to dehydration as your doc said....
Hi all - wondering if anyone has experience with using Low Dose Immunity (LDI) for mold? My doc is recommending it and I'm wondering how helpful it has been to others....
Girlie - what helped specifically with the pulsative tinnitus? Mine is coming back a little....
Thanks Hoagie! Much appreciated. The link doesn't seem to work for me to check out online....
Awesome news. Looking forward to seeing how you do. I'm about to go on Rifampin and Plaquenil to cover Q in case it rears its ugly head again now I'm done with Alinia. As I've long suspected Bart I...
Wow - that is an interesting protocol. Very curious how you'll do on it. Does he think you have Lyme, or it is mainly Bart?...
Eaglet - here's some info from Dr Neal Nathan's mold book. He's much more accessible than Shoemaker :) "Using readily available laboratories such as Quest and Labcorp, we can measure c4a, TGF...
Certainly sounds it based on your history. I'm glad you're telling him. We all "screw up" from time to time and I'm sure he'd rather know that not. Good luck with the appointment....
Curious regarding folks' experience with sinus issues especially related to CIRS. I continue to have sinus issues: my frontal sinuses seem swollen and ache, at about the location of my maxillary...
Not sure if there is a PCR for Q, but good to think about....
Thanks all - much appreciated....
Thanks everyone. Yes it is an antibody test. So folks are probably right to take it with a shaker of salt... Sebreg - I have been treating it since the beginning of 2017 with some breaks. My sense is...
Excellent info - thanks sebreg; good to see you again. The not good for brain health makes me nervous......
Thanks ArtAngel! I just heard back from a former doc of mine who recommended Byron White Envi-Rad (Environmental-Radiation) and Xymogen DioVasc - so will give a try!...
Stephania worked well for me when this was a frequent symptom. What do you think the cause is?...
So, I got my Q Fever (rare co-infection) test done after taking the Alinia for about 3 weeks now. It came back today as negative for both acute and chronic stages. I have to say I'm skeptical as it...
Thanks karatekid - I hear it takes a while to work... Hopefully it does for both of us!...
Thanks all - much appreciated. Started it tonight and will go slow. I understand I need to give it time... Girlie - weight gain?! That's awesome, I need to put on some pounds......