I feel like Sharyl Attkisson's video on big pharma astroturfing should be recommended reading for new Lyme patients. It really teaches you to see a bit of the difference between science and science...
Yup. He helped get Vioxx removed from the market, and constantly risks negative attention by publishing big pharma scandals, cover ups, documents from discovery, FOIA, etc. Reminds me of FoodBabe on...
I see it the same way. And Lyme made me realize the corruption in the pharmaceutical industry and the regulatory capture they have on the govt health agencies and the media, is really the main...
https://www.youtube.com/watch?v=dILSt_EQgNM What do you guys think of this?...
Interesting. That's not the case for my wife. She was only on doxy for a month or 2. She is only only on herbals. And she's been consistently low on WBCs with about 10 tests shower her below the...
I have this too. It's actually one of my top remaining issues. I feel like I put off doing alot of things and they just build up due to high stress of even starting them. Then every few months I get...
Interesting. My wife has had consistently low CD57, and consistently low WBC. I looked up old WBC counts and they were normal. Interestingly she is the one who is barely affected by it. She has...
Just wanted to jump in and say thanks to everyone on this thread. This has been one of the most useful threads I've seen. I just recently realized how ignorant I am on Lyme Disease history. The...
Interesting. I feel like I've caught a cold pretty much ever single year when season changes from fall to winter / when temperature changes. It was pretty much every year and it always started with...
I noticed since my onset of Lyme I pretty much never really got traditional cold / flu symptoms. The current theory that I'm believing is that we still get them but our immune systems don't mount the...
Sometimes I think my body has been pushing me to do the cold part of Wim Hof method on it's own for the last year. I alternated between extreme cold sensitivity (extreme heat tolerance) to extreme...
" But now with the help of science, we know that the Iceman is no anomaly. In 2011, under medical supervision, Wim was injected with flu inducing endotoxins and demonstrated that he could control his...
This seems really interesting. Especially considering some of the feats he has accomplished and scientists studying MRI scans of what happens inside his brain....
So now she was recommended to do a CT scan. They found main pulmonary artery dilation to 3.5 cm. The radiologist has mentioned more tests should be done to rule out Pulmonary Artery Hypertension or...
I'm still hoping it's good news. But my wife doesn't have much trust in the doctor, as the doctor dismissed her based off the test result of another patient at first, but then still said she won't...
Thanks everyone for help. The tests just came back all negative. Weird that D Dimer came back positive about 8 hours early. I'll have to look into that. Maybe a test with too many false positives?...
The breathing issue started in the last 3 days. The only real thing she has done differently in the last month that we can think of is LDN. She actually was taking potentially too high of a dose of...
My wife (who also has Lyme Disease) has been having shallow breaths and feels like there is an elephant on her chest and needs to take deep breaths more often. She was concerned and went to a clinic...
I don't wear jewelry. I use an acne regimen of benzol peroxide. But I was actually tested in the beginning when Lyme broke out and I had no lead readings. Sometimes I wonder whether the excessive...
Tested paint, water, supplements. Still waiting for water results, but I would be surprised since the rest of my family drinks it and none have any noticeable lead in multiple tests. One of my herbal...
So far no one else with lead levels anywhere near me. Am I really the only one with these levels? I had thought it would be more common based on the Horrowitz study, but maybe most Lyme patients only...
I agree regarding FDA approval and wasn't looking for that. But lack of peer review is surprising as it is not difficult to get a quality study peer reviewed and published. The majority of the ILADS...
Lapis <- Did you improve off of Rife machine alone, or were you doing parallel treatment. Also are you fully recovered? I'm open to the possibility of treatments that I don't really understand at all...
I was excited to hear about this as I would love to know more details about what I should and should not eat. But I was a little sketched out when the study that backs up the efficacy only exists on...
I was on both for quite a while, and didn't notice anything I could attribute to an interaction (though it can be hard to differentiate things from cycles, flare ups, herxes sometimes)...
So far the only thing that tested positive for Lead was one of my supplements according to the department of health. But the amount was not something they considered unsafe. To my knowledge the...
Also funny how they don't feel the need to provide any sources to prove any of their points. Not suprising though. Why use evidence when you can make claims like "widely accepted scientific evidence"...
Funny how they complain about lack of transparency when this is the most transparency I've ever seen from TBD guidelines / recommendations. They have archived videos of their sessions, meeting notes,...
Not to my knowledge...
I had my lead test and found 15 ug / dl (abnormal cutoff is 5 ug/dl) That was an unprovoked test by Bio Reference Labs. I then did a DMSA provocation and had: 60 ug/g creat (abnormal cutoff is 2 ug/g...
They really jacked up the prices on Stevia from nutramedix. I remember buying it for $10 and they used to also offer a 20% discount and 2 free samples when buying 12 bottles. I used that to get my...
Out of the supplements I take that are meant to help the liver with detoxification: 1) NAC - precursor to Glutathione 2) Liposomal Glutathione - Glutathione is something your liver naturally produces...
I had a point where I was having 24 hour migraines for almost a month. Cholestramine made it go away for me. It's a powerful prescription binder normally used to lower cholestrol. But my LLMD said it...
Sidetracking a bit I somehow accidentally googled my way into this: https://www.lymedisease.org/wp-content/uploads/2018/05/Informed-consent-for-Lyme-treatment.pdf I hope this informed consent...
I haven't read it yet. I've recently come across his name. Adding this to my list....
meowee - I understand your initial impression of LLMDs. I think you may be throwing out the baby with the bathwater on them though. I've found LLMDs there are not good LLMDs and there are fantastic...
Hey I was just wondering. With so much information for Lyme Disease patients on different treatments, there are bound to be some scams that just don't work at all. Is there a list anywhere of...
I have not yet tried BVT but it is on my list of top treatments to try, as it seems like it might be one of the few that actually cures Lyme without the constant remission risk later in life. Please...
I've been tempted to cut out supplements but then I research and I find that many of them help prevent long term deterioration to organs / hormones / adrenals over time and I'm not going to drop any...
I was hesitant to pay for the subscription but honesty with the amount of money spent on supplements, the fact that they provide the lowest cost per active ingredient has easily saved me thousands of...
Thanks for sharing labdoor. It looks like a similar concept to consumerlab except their profit model is affiliate links as opposed to consumerlab who's profit model is consumer subscription. I like...
I actually got an email from this so it looks like its working now....
I use a consumerlab subscription to evaluate which brands have the lowest cost per active ingredient. They cover many supplements well. They test for amount of actual ingredient, contamination, etc....
Ignore what I said about email subscriptions, I did find it on the my profile page. And I do see the threads I subscribed to showing up there. I think I was used to a my account / my profile page on...
I have the same issue. I think I got email replies when I created a new thread. But when I tried to subscribe to threads that I have not created or ask to be notified of reply postings by email it...
I thought Horrowitz mentioned alcohol intolerance was one of the top (possibly #1) specific symptom of Lyme Disease. I know for me I used to be able to drink (and drink heavily) in college and after...
Tindamax gave me a metallic taste...
Another funny coincidence. I just happened to read an article about a Lyme center opening up in Ireland:...
Funny you mentioned Dr Garcia. I've actually seen him 3 or 4 times. I feel like I noticed a bit of improvement after, but wasn't sure of it as I was taking other meds and other med changes around the...
Just checked out CBDistillery and it does actually look cheaper per mg of cbd, especially with the 5000mg bottle. CBDistillery = $240 for the 5,000 mg product = $.048 per mg Bluebird = $600 for the...