I’ve actually had the full 23andMe gene testing done, might you be able to elaborate which genes specifically are you referring to so I can go back and check my results?...
Mast Cell Activation is precisely the autoimmune condition that I have! Antibiotic treatment is indeed what triggered it, and I actually have experienced allergic reactions from it so I’m on 10ml of...
I have had an increase in symptoms as of late (a long list that might not necessarily be related to lyme and co-infections) and until I can see my LLMD I have seen my normal primary care provider to...
This is great information to know, thank you! Its good to hear that it works for you as well. I have been prescribed the oral solution, though my symptoms are more upper respiratory than GI so I...
I see, if its thats its function I wonder what makes it such a gamble as to whether it will be helpful or not....
Just saw a hollistic allergist today to determine whether or not lyme has triggered mast cell activation and food sensitivites, and while we’re waiting for the results (which could take 4-6) she...
That sounds very similar to what is happening with me, I only have reactions while on antibiotics. Though the reactions themselves are triggered by irritants, they’ve stopped after having been off...
Thats what I first did when I started back up on antibiotics to try and avoid retriggering these damn mast cells, but upon increasing the dosage they’ve gone nuts. The herxing has been managable,...
I’ve been seeing an LLND for almost a year, but have only been being actively treated for about six months total due to several problems arising. First, antibiotic treatment has triggered and is...
I know, its just that last time this was happening the advice was to stop treatment, which I’m sensing is going to become the trend. Thats not what I want to do but it looks like mast cell...
Thought I’d revive this thread as its been a few days, and I just experienced a fairly acute “allergic” response to some spicy food. My tongue swelled and went numb, my lips inflated, eyes are...
That sounds really promising, actually. That might be just what I need I’ll have to look into it, thanks for the suggestion....
I might have to give that a try, thanks for the tips guys....
My probiotic is usually the very last thing I take before I go to bed, though I do take a dose prior to that every day between lunch and dinner. If taking the two probiotic tablets at night won’t...
If you’re doing all of that for detoxing without ever having a strong herx reaction it seems entirely possible to me that you’ve been effectively cleansing your body of toxins before they’ve had the...
Probably a stupid question, but will activated charcoal bind to and flush out probiotics? I know it will do so for medications/vitamins, but since probiotics are microorganisms I’d like to think...
I understand that uncertainty as I was in the same position (and sometimes still am) myself. I’ve never had any positive blood test results, and for the four months I was on bactrim I didn’t have any...
For those of us that are dealing with this, what have been some effective remedies? Aside from antihistamines, that is. I had a little bit of luck with vitamin C, though that has stopped working now...
Ahh I see, so will any activated charcoal supplement do the trick? It looks fairly affordable in large quantities online so I’m not sure why the Quicksilver Scientific compound is so expensive....
Good to hear about the Readisorb, I’ll probably give it a try. Might you be able to elaborate on the effectiveness of charcoal? I do find it hard to believe that charcoal is really capable of...
My LLND suggested I add Readisorb Liposomal Glutathione liquid and Quicksilver Scientific Universal toxin binder (which is made up of mostly activated charcoal and bentonite clay) to help with...
I’m currently dealing with mast cell activation. My symptoms are a lot like anaphylactic allergy symptoms (though thankfully not as severe) with swelling of lips, tongue, throat, and eyes, and...
I haven’t been on antibiotics very long, mostly because I’m broke and cannot afford to regularly buy all the supplements that I need to take along with them like probiotic, detox stuff, cyst buster,...
Thats what worries me, since if I was one of those unlucky few who require indefinite antibiotics my mast cell activation will only continue to progress....
After almost 3yrs treatment , my microscope confirms borrelia still in rbc's ...nowhere near the load so where I am functioning 85% Not trying to speak for this poster but I believe “rbc” stands for...
Thats a good point, I could be wrong but I think rifampin can kill dormant bacteria though right? I’m not sure how widespread its use is but I’m surprised that any drugs with the potential to kill...
Having not taken either my morning or evening dose of minocycline today, I finally feel as if I’m starting to return to normal...or at least the way I’ve felt prior to treatment. I also did take...
Thanks everyone, I’m hanging in there and I know you all are too. I’ve mostly kept a positive outlook since I first got sick five years ago, I suppose the lack of standardized, accurate information...
http://lyme-basics.com/2017/12/28/chronic-lyme-disease/ Came across this article. It was an informative read but got me thinking that all of the studies cited here seem to show that while antibiotics...
I’m not sure if that was addressed to me or the OP, but right now I’m on minocycline for lyme and atovaquone for babesia. Earlier in the year I saw some regrowth while on bactrim for bartonella, but...
I was fairly convinced it was due to herxing so I held off on taking my minocycline this morning tk give my system some time to clear itself out of any toxins, but even after no antibiotics and two...
There is a connection between many chronic, multi-systemic illnesses and hair loss, which includes lyme disease. Look into “telogen effluvium.” As I understand it, its a stress induced...
Its interesting because it started while I was on my back and the only way I was able to sleep was by turning onto my side, as any other position seemed to exaggerate it. I wonder if it could have...
I also have mast cell issues, it sounds like we are having some comparable experiences. Do let me know how that visit goes if you can make it....
I’m currently being treated with 200mg of minocycline daily for lyme for the past week after a month of 100mg of minocycline daily. Then theres the 10ml of atovaquone daily for the past eight months...
The exact same? Its such a surreal experience I didn’t think I’d find anyone who had experienced this sort of thing themselves. Did you have any remedies for it? When did it finally stop?...
I was finally able to get to sleep, though it feels as if I haven’t slept at all. The sensation is gone, replaced by a headache, but the surreal feeling I had after the episode remains. Neurological...
For the past hour I’ve been laying here struggling to sleep through what is definitely the strangest sensation I have ever felt. I almost can’t describe it, but upon closing my eyes to go to sleep I...
I’ve been curious about activated charcoal, I actually looked into it as a toothpaste/mouthwash ingredient of all things, as I’ve had angiodemic reactions to the mint used in toothpaste, chewing gum,...
The allegra helps with the facial swelling but not as much with the respiratory difficulty. I also have an albuterol inhaler for that which gives some relief. I haven’t been on the allegra very...
I am currently on 180mg of fexofenadine (allegra) daily, but am eager to find something else as even “non-drowsy” antihistamines like allegra knock me out. Perhaps my sensitivity to them has...
I don’t think I’ve had my postaglandin tested, though my allergist/immunologist did test my tryptase (which is supposed to me a MCAS indicator) but it was normal. I also had a full food allergy...
About five weeks ago I started minocycline 50mg twice daily, and the following week began having histamine responses to food like I experienced after four months into my previous bactrim regiment. I...
Psilociraptor, I quite like that analogy, it makes sense that the toxin load needs time to accumulate. I did notice a spike in some other symptoms following my morning dose of mino, so here’s to...
I see, I guess its difficult to tell whether its a herx or a drug side effect, especially since I never herxed while on my last course of antibiotics, so its hard for me to know what its like. I have...
Thank you all for your responses! Psilociraptor, Brain fog has definitely always been my most pervasive primary symptom, so I suppose that could make sense. And I know herxing can happen at any dose...
Interesting, I wasn’t aware that ammonia can pose an issue. Is there any way to tell if there is an ammonia build up? As for regular sleeping I’m not sure. Even on nights when I can sleep as long as...
I started minocycline about two weeks ago after taking a two month break from any antibiotics due to Mast Cell Activation triggering while on Bactrim. I began with one 50mg capsule daily for the...
BungalowMo, Yes I was tested for five bands all of which were negative. That doesn’t concern me as much as the results of other the tests though....
Thanks for the response, I apologize for the delay in following up, I was busy with work all weekend. I definitely want to do more testing, especially since I just discovered that Atovaquone is...