Sherrine My intention was to bring attention to an issue that has the potential to impact all forum members. I am not sure if you have Lyme or how aware you are of the challenges patients face when...
Awesome thanks Girlie! This link is totally against the forum rules! Sherrine ...
Dude, Yes 13 kids! And yes 8 kids is a lot! I grew up in a family of seven. Guess it's in the genes lol. I have a running joke with my uncle that if I received a blood transfusion from him you would...
Dude, My grandmother lived to be 106 and she had 13 kids lol. Many of my uncles lived well into their nineties. They always ate from the garden, and ate a lot of brook trout and deer. My uncle was a...
Running wild said: "It's like living on Gilligan's Island where only a few people understand the magnitude of the situation and frustration of trying to get off the island." Lol. That's exactly what...
Don't get me started lol. i also take comfort in knowing that most of these doctors have second homes in Lyme endemic areas....by the ocean and lakes. Just a matter of time before they or a loved one...
Skinny_joe, Dr. D has been at it for many years and certainly does not deserve to be targeted. I would absolutely love to see all board of medicine members and infectious disease doctors across this...
One of the sad parts about this issue is that Maine has a law on the books (ld 422) that was created in 2015 to protect llmd's who follow ILADS guidelines. If they are successful at reprimanding Dr...
Thanks Dude!...
Thanks Girlie. Maine Lyme literate medical doctor RD is being brought before the Maine Board of licensure. If one wanted to learn more about this "witch hunt" they may simply email girlie as she has...
Thanks Girle, May I post part of the title as well?...
Dude, I like the way you think lol. Thanks for the heads up about rule 4. I can understand why the forum has rules such as these, especially when it comes to advertising and spam. I am not...
Ok will do. Thanks for letting me know!...
Yes unfortunately they do. It makes little sense as I know the antibiotics have a half life so I should not experience such a quick increase of symptoms but this is what happens every time I...
Does anyone know if we are allowed to share a link to a gofunfme page? I would like to let forum members know about a disturbing issue with an llmd being called before the state board of medicine and...
Girlie, I have not tried pulsing. When I simply miss a dose of a particular antibiotic (Lyme brain) my symptoms rage. In addition to this I have new symptoms that begin and they eventually spread...
HI Girlie, To a degree it has been a game changer. Last year I was trying to wean off one of my antibiotics (amoxicillin). I was able to cut my amoxicillin dose in half for about a month but then my...
The ceftriaxone, along with my other meds are minimizing/eliminating my neuro symptoms. From the very beginning (six years in July) my symptoms have been neurological. I don't have any joint pain per...
Malibubarbie, The liposomal ceftriaxone has helped to reduce my neuro symptoms but I also take amoxicillin, atovaquone, Clarithromycin and low dose naltrexone. It is expensive as my insurance will...
Blue, It's good to hear that the venom is sterile. This was my main concern with traditional BVT. I figure I have enough to contend with current infections...don't need to add insult to injury. I...
Thanks Blue. would you happen to know if the dried venom is sterile? I thought I had read this is the case but could be mistaken. Would you happen to know if there is a risk for acquiring addtional...
Hi all, I am contemplating BVT and would like to know if anyone here has done bvt with dried bee venom? If so what was your experience like? For those with neurological issues, did BVT help reduce...
Sherrilarnold, I also have the burning skin, facial numbness, crushing headaches. These symptoms increase dramatically and spread every time I decrease any one of the multiple antibiotics that I am...
A small study conducted in 2018 found viable spirochetes in vaginal secretions and semen of 12 subjects who were either on or had been on antibiotics at the time of testing. Although this study does...
WBF, Lol agreed. The hard part is being in this situation where I need four antibiotics to allow me to function and work. Just as the antibiotics are helping me and keeping the infections more or...
I get the intense headaches, burning scalp/brain and numbness each time I try to decrease one of the four antibiotics that I am on. When on the four antibiotics, the burning, numbness are minimal and...
It is such a heated topic and I can see both sides. Nobody wants their child to become sick from either not receiving their vaccines or by being vaccinated. I truly believe that people have adverse...
In my state you are allowed to opt out if you have religious or philosophical objections. There is a bill being presented before the legislature that would make it mandatory for all, with no...
Roxie, I have been so lucky with my first and present llmd. They fully understand how important it is to honor their patients thoughts and beliefs. Honestly I don't think that I would stick with an...
I just wanted to add to the conversation with my experience. I’ve had lyme, Bart and Babs for almost six years. Every year in the fall I receive a flu shot. My wbc has been chronically low (2.1 to...
Yes fortunately they do....
Yes I have been taking it for approximately 10 months now. It's available through Hopkington pharmacy in Massachusetts. It really has knocked back the vast majority of my neuro symptoms....
Hi Girlie, I take oral liposomal ceftriaxone, amoxicillin, Clarithromycin and atovaquone. In addition to this I take low dose naltrexone, low dose nortriptyline, stevia, biofilm phase 2, grape seed...
That’s great news girlie! Sending positive thoughts that your out of the woods before long! Please keep us posted....
I hear that and had the same reservation. All I can say is that in my experience the oral Liposomal form is more effective at reducing my neurological symptoms which include crushing headaches, and...
"The application of liposomes to assist drug delivery has already had a major impact on many biomedical areas. They have been shown to be beneficial for stabilizing therapeutic compounds, overcoming...
Not to dissuade you from IV ceftriaxone but something else to consider perhaps is Ceftriaxone in liposomal form. I have done IM ceftriaxone and oral. Without question the oral liposomal form was much...
Dmitry, thank you for the links. I will check them out later on today. I've been on long term antibiotics for a long time and I see no light at the end of the tunnel unless I give my immune system...
Girlie, sounds like you didn’t have much of a choice. I have been fortunate overall in that I have been able to tolerate most of the meds that I have been on. People often ask how it has impacted my...
Interesting. I was on bactrim for a good two years ( always with several other antibiotics). I never had issues tolerating it but was happy to be able to drop it when I did. As you well know, it...
That makes sense to me Girlie. Thank you for the feedback. For me the hard part is teasing out which infection(s) (borrelia, Bart, Babs) are driving my symptoms as my symptoms increase and spread...
Dmitry, What did your pulsing protocol look like? How many days on vs. off? How did your llmd decide this? Interestingly, I have noticed that my wbc actually increases when I am on four antibiotics...
Girlie, It’s just an idea that I have and have not yet discussed with my llmd. I plan on discussing at our next meeting. I am wondering how the pulsing protocols that exist are developed and if the...
I am also taking liposomal Ceftriaxone, Clarithromycin, and atovaquone. As I understand it, people do not pulse the meds they are using for co infections, only for the Lyme. Problem is that whenever...
Actually what I mean is that I would skip my am dose and then take it 12 hours later rather than taking the amoxicillin every 12 hours. There would be a 24 hour gap and then I would get back on it,...
Good evening all, Are any of you who are pulsing antibiotics using a protocol that is tailored to your individual response rather than a standard protocol such as two weeks on and one week off? I am...
Yes absolutely. Have been on long term antibiotics for 5.5 years and my count has gone as low as 2.1 and as high as 3.7. Normal range is 4 to 11. I test monthly and have done so since becoming sick....
I have been using it for the last several weeks and cannot say I've noticed anything positive or negative. I take this along with stevia and oregano oil. Thinking about adding in monolaurin as I've...
Have been on amoxicillin for the last two years as well as other antibiotics. It definitely helps to reduce my symptoms as when I decrease my symptoms rage and begin spreading to new areas of my...
I eat large amounts of curry 7 days a week. Not sure if it helps but know that it's healthy. Have used liposomal curcumin as well as cbd/thc oil for months with no change in symptoms. It would be...