I am with you on that one. I am bored out of my freaking mind. The fatigue is just too heavy that I can't do anything really. A website would be cool to work on at some point. I always thought of...
Hey!! Not sure if others are interested in learning medicine like I am...but I slowly got tired of not knowing the body and pharmacology and decided it was time for me to learn...albeit slowly. This...
Hmm tonight I will be doing Neurofeedback and I've been watching 2 new shows: the first is unnatural selection on Netflix- it's about CRISPR and gene editing. The second is a show on Amazon prime...
What the fork- this lady was not treated properly in my opinion. All she was given was intravenous cefotaxime over and over again. God bless her soul....
That's a great idea Girlie!! I have had my glucose and insulin tested and it came to about pre-diabetes levels. Before I stopped carbs...I could tell the carbs were causing huge spikes and dips and I...
Hey Daisy! This is going to depend on your field and how many years you worked prior to taking off etc. I worked in finance...burnt myself out and got sick as at the same time...then lost my job/got...
Hey Rainy Cloud...are you doing Bee Venom? Any thoughts?...
I'm not sure what her MTHFR results are...mine are heterozygous for both genes. I think tumeric is better than curcumin if I'm not mistaken. I don't treat MTHFR...I was on a methyl folate with b12...
I HAVE BALLOONED ON LYME...it's even attacked my thyroid and I have hypothyroidism now. When I say ballooned I mean I will gain like 15 pounds in a month it's scary. Right now I am luckily only 30...
That's wonderful to hear Girlie!!! Yes, he's so knowledgable it's amazing and really makes me feel secure that I'll get better....
YES! I moved on and decided to see the big man himself...he's a genius and you MUST make an appt with him!...
Any updates on anyone being able to use CRISPR to cure themselves? I read about the scientists who made the mice immune to Lyme. I am thinking gene editing is the next way to cure ourselves....
My hobbies have changed greatly. I don't spend time with friends anymore or family really. I started meeting friends online through Discord and IRC so I talk with my online friends everyday. I watch...
Yes! Dr. J is recommending IV for me...but I haven't seen him in a long time (I think it's been since June maybe?) and I need to get a SPECT scan done before I get IV done. IV costs a ton so I've...
Haha well yes, I'd agree that Lyme has definitely taught me a lot. If I got better sooner rather than later I have thought about even going to med school because medicine is exciting to me now. The...
Hello, Just saw this post. My first thought was that I'd try shockwave therapy before any sort of surgery. I have heard shockwave helping a bunch of people but I don't know if that's available near...
So, I rented this neurofeedback system to be used at home. I can definitely tell a difference so far. I have babesia, Lyme, and bartonella and when I say I have gotten horrible psych symptoms...well...
I’m with Jova. The o lay comfort I’ve ever gotten was from God. I was active in reading the Bible for a long time. I stopped out of anger against God due to the Lyme but I still pray. I just haven’t...
I had this too!!! It actually felt like an elephant was sitting on my chest and I couldn’t breathe. I’ve believe it was babesia because once I really got babesia under control the elephant feeling...
Thanks everyone!!!...
Thank you for all of your replies I will do IV but in 2020. I just need to get the damn SPECT done. In the meantime I’d like to try disulfiram. I know everyone says it’s risky but my body can handle...
[sup] Girlie!!! How is your treatment going with Dr. J? Will you end up doing IV? From everything everyone has said...yes I am going to do IV. I have to still get a SPECT scan done though which I...
I think something we have is a biowarfare element. It possible we are infected by a disease that scientists haven’t even fully pinpointed. But I mean Lyme disease would make the population basically...
Yes, social media has definitely put a damper on forums. I kind of like the way the internet was 8 years ago, a lot has changed since then, but the facebook groups offer pretty good support. But I'd...
I only take 10 mg xr. I can’t go much higher bc it like makes my brain go crazy. Otherwise I’d ask for the max!! I am glad you are able to at least get out of bed that’s amazing!! My husband takes...
Man Adderall, dunno about that one, aka speed? I wonder what happens when bartonella flares when a lyme patient is on speed? I was on cannabis when my bartonella was flaring, lets just say I'm done...
Just want to make sure DHS doesn’t land on my doorstep or something lol....
Truthfully...I’m too scared to ask him!! I will do a very big cleanse before disulfiram. Dr. J is wonderful and brilliant but definitely pushing IV at this point and I don’t know if he’d prescribe...
I agree completely about seroquel. I’m given 200 mg but take 100 mg and have tried less but less doesn’t put me to sleep. I actually am ordering a neurofeedback system called NeurOptimal and will be...
Love your quotes without God who knows where I’d be! I’m on a Dr. J protocol. He’s in DC we all know who he is. Been treating for years. My current protocol is extremely strong. I actually have been...
I have been seeing Dr. J since December 2016. I was with his PA’s for most of the time and on oral antibiotics. The oral antibiotics really helped- there was a time I couldn’t walk or read. However,...
Thanks Girlie, This is all stuff I keep thinking I am going to do. Make lists, write down my protocol etc etc. And then as soon as I think that thought it's gone again in a split second and I forget...
Hi girlie, Hope you are doing well!! I haven’t been on in a while!...
I am on a psychiatric cocktail and for me, they are helpful. My anxiety is less, my depression is less, and most importantly, my treatment resistant insomnia is finally going away. Everyone is...
Hey Girlie! Still going through the motions I guess. Definitely not cured. Nooo that's not the name...it was a weird name like E320 or something that's not the name but it was something like that....
I remember a couple years ago someone talking about a new antibiotic that was being studied and like 60% more effective towards Lyme disease. Does anyone know the name of this antibiotic and/or what...
Kim Fogarty at Jemsek told me to take adderall because it helps many people with their sleep/wake cycle. When I take it...it greatly helps my fatigue and that's very important when it comes to Lyme....
Thank you! Do you not recommend the Morgellons and Lyme Protocol in the spooky software?...
I just got the spooky Generator X. The only thing I have been doing is running biofeedback and killing whatever is found. I think twice Lyme came up but most times there's nothing for reverse lookup....
Have you had muscle testing for ALS or anything? I have heard of cases of Lyme going right to the heart but it is rare. Hmm it's possible it's just bartonella...I would just rule out everything...
It sounds like you are on a really good path then. My eye pressure was HORRIBLE with babesia...I dind't even realize it was the babesia...but it sounds like everything is getting better. I think...
It was daraprim with Mepron. It's a single pill and I took it the first MWF of the two week protocol. And the second week I didn't use daraprim. But I can say definitively that daraprim is what...
Hey girlie!! So I did mepron for about 9 months (I think) with Dr. J? I can't remember fully. It might have been a year. For the first 6 months I was doing just the double teaspoon of mepron...and...
I have never taken Clindamycin. My antibiotics now are Rifabutin, Augmentin, Minocycline, Septra, and Artemisia/Cryptolepsis. So I think that's bart treatment, right? No...no one gave me that time...
I don’t know if it would change anything dr J does. I did 7-8 months of Babesia prior to seeing the NP at the J clinic but they put me on their Babs protocol anyway... probably because the Mepron...
You guys have convinced me of getting the Spooky Gen X then......
WOW do you know what device is the biological holder? I want to do this one! I thought the carrier wave is what is necessary or something?...
Yes...that is what I'm learning is that the carrier wave is what rife originally did? I am reading this pdf...not sure if you'd be...
I have been dedicating a lot of time to trying to learn what the original rife machine did. I am looking for something that mimics the original rife. Does the spooky match what Dr. Rife did? What is...
Yes, I completely agree. I have gone through some terrible things with this disease and spirituality is what got me through it. I have really struggled with the psychiatric symptoms of Lyme and...