Hi all. Thank you for the great answers. I wanted to give you a small update on some of the events since the miscarriage. So far, nothing has truly been conclusive and I am once again deeply...
Hi all. I have been treating lyme and co’s with Dr J for the last 5 years. I feel 95% well now with mostly just allergies and some sensitive joints at times. I am still taking antibiotics 1.5 weeks...
This is known to be a bartonella symptom. A common one. I am not sure about lyme....
Yes. I have a huge cyst in the right side of my sinus. Like about the size of a 50 cent piece. I am looking at getting it surgically removed as soon as I get a job and health insurance again. The ENT...
I've also heard that, but in my initial appointment with Dr. J's PA, KF, I asked about the fast replication that Dr. MR speaks of. There seems to be conflicting information, or definition, because KF...
I think 'MarkF' ??? or something like that on the forum is the most experienced here in the ACC protocol. Hopefully he will chime in. If you are seriously considering it I would read through their...
I know of Dr. Werner V in St. George, UT. He splits time in between his clinic there and his clinic in Portland Oregon. He is a Shoemaker certified mold doctor and lyme literate....
Do you know if he’s incorporated the MB into his protocols? Or is he just supporting your friend who wants to try it? My last appt with him - I asked him about DSF and he said he has a few patients...
Dr. J is now using methylene blue from what I hear. A friend of mine just started taking it a week ago or so....
Hi Chick. Did you inject at the site of the injury or into belly fat? I tried bpc 157 for my ongoing tendon issues and it didn't seem to do much. I was injecting mostly into belly fat. Maybe I'll...
Yes Girlie is referencing Dr Ross. I would like to see the source of where he said that about disulfiram. I follow him very closely and I have never seen him say that about DSF and I have never heard...
From NatCapLyme's Facebook page: "This is terrific news and we are thrilled that our dear friend, Dr. Joseph Jemsek is involved. "GLA’s first study will focus on the treatment regimen developed by...
OoO is oil of oregano. I think it is available without a prescription from hopkinton drug compounding pharmacy. Alinia is a broad spectrum anti-parasitic. It has some effect on viruses and people...
I think the doctor you are thinking of is dr. S.P. in Wilton, CT. I know he uses tetra and diflucan, but I didn't know it was for bart. I've heard a common combo he uses is tetra, alinia, diflucan,...
https://www.facebook.com/LymeMIND/videos/837344113388840/ It's 7 hours long! Just happened yesterday. Has lots of the all stars in it....
I think augmentin can hit the extracellular bart, but it isn't as effective and doesn't hit the intracellular bart, which is supposedly where the majority of bart is. I think that considering your...
I take 8 pills per day as well. With the JSC. 5 days per month....
Chaoelle - Do you have any other symptoms in your shoulder besides pain? Popping / cracking / excess mobility, etc....
I went with another former member of this forum. Neither of us got better and the majority of those who were with us at the clinic didn't get better unfortunately. They have recently laid off a lot...
I had this. And seem to have it still from time to time. Treating with a rotation of abx and getting out of mold is what made it go away for the most part. It's interesting to note that I had an ear...
Did Dr. J prescribe you DSF Rikky? I just had my face to face with him last week....
I noticed SOT was getting a little bit of traction today. Sounds like Dr Holtorf and his clinic in California are using SOT. https://www.facebook.com/BetterHealthGuy/posts/10162293748390424 ...
I remember Dr. Phillips in a video talking about how mepron has shown to work against lyme. Might have been in a test tube. Not sure if he specified....
That's a good point Rikky. I wonder about the pathogens deep in the connective tissues......
You are the first person I have seen mention Egoscue. My brother taught me a few of his exercises in his book and I used them during my triathlon seasons. Really helped keep my hips aligned and...
Girlie - Yes....
Yes. I only know one lady through my friend. She says she took it and is 95% better and had her daughter take it too. They make it specifically for what was found in your blood I guess. That is...
I am on it. It is one of my favorites because it hits a different form of allergy inducing compounds called leukotrienes. All other meds are anti histamines....
What peptides are you taking and what peptide do you think was harmful to your joints? I have taken peptides before with Dr H in El Segundo, but I am pausing for the time being due to running low on...
Yes. I have this and air hunger. Not sure if they are related. The squeezing seems to be on the left side of my chest almost near the collar bone. It seems to be worse when I eat high histamine...
https://www.revolutionhealth.org/supportive-oligonucleotide-therapy-sot-for-lyme-others/ Does anyone know anything about this or anyone who has tried this? A friend sent it to me and I am pretty...
I second the mast cell idea. If you have histamine issues, your blood vessels are already dilated. Going into a hot shower dialates them further and lowers blood pressure, which could cause symptoms...
Are you taking vancomycin as an IV or oral? Just curious. I haven't used vancomycin myself, but I recall that it showed good results on persister lyme along with disulfiram....
Girlie - I've been going there about 11 months now. This will be my first time seeing Dr. J for a full appointment. He popped in to say hi at my last in person appt with Kim F, but only for 5-10...
Girlie - We are flip flopped. I am seeing Dr. J in September instead of Kim. Will your appointment be by phone?...
Girlie - Like Sebreg I've seen a few people here and there on it. I don't know which LLMDs are prescribing it though......
Tafenoquine? That is a new anti-malarial that is supposed to be good. 14-28 day half life for Taf. That is probably it....
Girlie - True. Dust or dirt. Good point. I'll try and cover it from now on. Astro - Thanks. I too have had a lot of 2 wheel pedal crashes. :) Most everything healed up without a hitch though. Until...
Wow Girlie. Thank you. I didn't know it was so powerful on it's own. Glad to hear about that. Regarding leaving the DMSO in a bowl and using it for multiple days... I was more wondering if it is...
Astro - Do you feel that DMSO on it's own is healing to the connective tissue? Can I leave DMSO out in an open container like a glass bowl and use it for a few days without it going bad? That is...
Hi Girlie. Yes claritin is available with no prescription. It is pretty cheap if you don't get the brand name. Kim F at the JSC prescribed ketotifen, singular, DAO, and quercetin / bromelin at the...
It is an H2 blocker. Zantac is the brand name. It should help with MCAS, but maybe consider coupling with an H1 blocker like claritin to really get an effect. The JSC has me on both + singular and...
I ordered this yesterday. Arriving tomorrow. Super excited to try it. I just got the kind Lapis recommended. I have also been using Penetrex and DMSO that Astro recommends. First putting the Penetrex...
Astro - I am considering trying penetrex and dmso as well. I would probably just try one thing at a time, but debating between HA and penetrex currently. Connective tissue in my palms and heels...
Quin - Could you show me a link to valproate's usefulness in lyme / bart? I would like to research it. Thanks for the tip....
Welcome UpBeet. LOL, well regardless I really liked that clinic. Dr H was very good. I started that protocol, but didn't finish it. I switched to something else. It was probably my request lol. I am...
Lapis / Astro would using this topically with DMSO increase absorption? I have a few trouble spots that I would like to start trying new things on. Never tried high dose HA orally either. I have...
Do you make the BVT drops? Or order them blue?...
I am alright. Moved over to Dr J in WA DC last October. Was one dapsone 3 days a month at 50mg and had a flare up in the connective tissue in my palms and heels in May. Still feel it today. Trying...
It sounds like you are being treated at PFM in Cali? That is what they told me as well. I never heard of besides from Dr H's PA at the clinic. I wonder if it is one of Dr. M's older bart treatments....