Walkingbyfaith so what should I mention next to my doctor? Do I have everything i nee for I a diagnosis? I also have elevated C4a, Low msh, low vegf, & high DHEA, Sulfate. Also have high T3 free but...
I believe mold may be a problem with me. Like I said I have the susceptible gene to get sick from it. This all started with me moving into a new apartment. After staying one night I woke up never...
Hearts in pain I have not yet tried anything natural but that will probably be something I try next. Dahlias, I’m sorry to hear you’re going through the same.. I wouldn’t wish this on anybody. Thanks...
Hey everyone it’s veen a while since I’ve last posted but I’ve not been doing to great lately. Basically I went 2 years undiagnosed & I was on antibiotics for bart, & Lyme for 7 months without any...
Well soon after taking the mino I did feel tired and weak & I guess that’s because I took it on a empty stomach. A hour went by & I took my tinidazole & ate and I still felt pretty bad. I felt bad 20...
Girlie, today once I took my minocycline I began to feel really tired and kinda weak. So I got something to eat soon after & I had anxiety really really bad because we went out to eat. & even after I...
Hey everyone so I’m about going o start a new job Ima couple of weeks and I’m kinda worried. Thanks to Lyme I have really really bad anxiety. & I know when I start working and get into a new...
Astroman my globulin level was good but my albumin/globulin level was actually high. 2.4 & the range was from 0.7- 2.3. Also some other things from my labs that were abnormal was DHEA- Sulfate, VEGF...
Right, that’s a lot of what I see on the web. Some people find it useful & others don’t. If you just type in, what is cd57 it automatically pulls up a million things about Lyme disease....
Doing some research on my blood work & I came across Cd57 which was low in me (44) I was just curious to everybody’s opinion about this test. I find a lot on the web about it & most people believe...
Now that you say you have a hard time watching tv at night it reminds me of myself. My family actually jokes because I usually keep every light in the house on because it messes with my eyes. I...
I also can barley open my eyes when the sun is out. Like it's almost impossible! I know this problem is very well known for Lyme but I never hear anything about driving at night unless it involves...
No I don't feel nauseous I just feel stoned!! I'm not sure whether it's my eyes or mind but I would say it's probably both. This isn't a new problem for me it happenes nearly every time i drive. I...
So I am basically in a fog all day long but it seems to get worse when I drive at night & I can't really find anything online about it It doesn't seem to be from bright headlights, I don't really...
Somgbirdie, like you if i give in and take a nap during the day my insomnia is really bad!! So I usually try to fight it and stay awake....
I wake up everyday already feeling kinda tired and unrefreshing but when I get around 12 I crash and can barley keep my eyes open. I was Mis diagnosed with narcolepsy & tried the medication for it...
Sounds like Lyme. I too woke up with brain fog & fatigue but mine has been constant for 2 years. & I can't tell you how many times doctors have tried telling me it's all in my head. They will...
Walkingbyfaith, Glad you're doing better!...
Well I'm glad it's gone away for you!'...
Anybody else have a problem with starring in space? This is one of my most annoying symptoms & it's hard to live with. Constant all the time I just catch myself starring out, like a crazy person....
Thank you!...
Id like to add a question to this. So because I'm having more bad days then good days is that still good? Like I said I had 2 good days in a row when starting and even though I had 2 more the next...
I'll talk to my doctor about it. Thank you....
Girlie no I'm not taking anything for my liver.. & yes I actually do use epsom salt but it isn't in my daily schedule I just randomly do it when I can. & yes I take probiotics. They are the flora...
Goshawk I think I detox pretty well. I drink lots of water, 2 or 3 lemon waters daily & yes I take activated charcoal. Does that sound like enough?...
So I've been on treatment now for 3 weeks and it's had its ups and downs like you all say but I wanna make sure you all think I'm making good progress. On good days although I don't feel 100% I just...
Thank you very much I appreciate it. & I'll ask my doctor about taking rifampin with food....
Thank you!! My diet is pretty good. I'm sticking with the paleo diet I only eat meat, vegetables, & fruit. I drink 2 lemon water a day & have activated charcoal coming from amazon tomorrow. Like I...
I've posted a lot lately & a apologize but I have something new today.. lol I woke up today feeling alright, took my rifampin & went for a walk. & since that walk I have felt nauseas and more tired...
All day I have just laid around and have had thoughts and thoughts. I keep telling myself this is just part of the process but It's not working. I can't get off the internet wondering if this is...
I see. I didn't know that. It's just when I see people talking about herxing or read about it they say stuff like "if it's too bad go to the hospital" so it just has me confused a bit I guess. I was...
It began as soon as I woke up this morning. Is that how you all know you're having a bad day or good day? Like if I feel like I wake up and feel somewhat rested that usually means I'm gonna have a...
Hey so I'm on my 3rd day of treating Lyme disease and today has been hell. I don't know what to make of what's going on with me, I don't think I'm dealing with a herx because it's mostly emotional....
SeanIRL I see what you're saying but I don't understand how I have been healthy all my life & then just randomly become ill. The only thing I can think of is Lyme. I had tick bites months before...
& actually my cd57 is low. It's labeled as abs.CD8-CD57 DHEA - sulfate was a little high VGEF borderline low...
My C4a actually was elevated. 0-2830 being within normal range mine was 5427...
Thank you both that's very helpful. I know exercise is an important factor in blgetting better so that's what I've been trying to do at least every other day. So would you both also say that band 23...
Borrooburgdoferii, thank you very much!...
Goshawk thank you very much! I see my llmd in 2 days & im sure we will discuss treatment then. I guess I just need to accept the fact that everything points to Lyme....
I just did the Horowitz's test & scored a 77....
I posted a couple days ago asking you all opinions whether I had Lyme & majority said yes it sounded like I did. I just have a question, so many people with Lyme I see have a hard time doing much...
I have been checked for everything, to the point where doctors just look at me like im not all in the head or just try to act like everything I'm dealing with is no big deal. My last doctor kept...
Notime4lyme, I can drive & feel like I seem fine to the outside world but I'm struggling. I look fine & am a fantastic pretender. I'm just tired of pretending I'm fine and am ready for my life back....
Walking by faith, I have not taken that test but we did discussed the possibility of being exposed to mold which could have triggered the Lyme. I haven't lived in that apartment in nearly 5 months...
Thank you goshawk!...
Let me ask you this. I kinda explained it earlier but I'm gonna go into detail. So my vision is just off... I kinda feel as if I'm a bit drunk. Like I'm not dizzy, or I'm not lightheaded but I'm...
No my dr isn't looking into it. I guess I should get it looked at again. I'm glad to hear you're making progress. I just want my brain and train of thought back. Don't get me wrong the fatigue is...
Thank you both for the replies. Girlie, no I could not see the blood it was picked up in my urine sample. As bad as Lyme disease is I just want a name for whatever is ruining my life so I can began...
I'm new here & just needed some advise from you that have Lyme disease Now my story is kinda complicating so I'll try my best to explain things well although I have a hard time explaining anything...