Some of the best advice I found from the Lyme Facebook groups. Of course there is a lot of misinformation like someone mentioned but there's a lot of people who know what there talking about in some...
Have you tried Facebook? There are quite a few herbalist and tincture Facebook groups there. It seems like a lot forums have moved over to Facebook....
I think everyone is different. Some expierences more body herxes while others experience more Neuro stuff. When i first started treating my mental herxes were so bad I was terrified. Paranoia,...
If you're having trouble breathing after ingesting alcohol then you're most likely suffering from MCAS (mast cell activation syndrome). I started suffering with MCAS and my biggest trigger was...
Yes those sound a lot like Lyme / Babesia symptoms. And it's very common for lyme symptoms to come and go overtime. I would like to mention that if you're getting headaches, tiredness, and dizziness...
You must be in the wrong Facebook group. Lol. The two big ones I'm in have non stop questions from people all day. And the Facebook groups have a search function just like this forum does....
Everyone is on the Facebook Lyme groups. Tons of people are joining them everyday. Forums like this are dying out....
If your face is getting hot and your having some itchiness with headaches afterwards it might be MCAS. Just a thought....
I'm the exact same way. Xanax makes my Lyme symptoms about 90% better. Especially Nuero symptoms. It completely takes away my headaches and brain fog. For me I think it reduces inflammation and...
This sounds just like me. I started having all kinds of heart related problems and air hunger. My heart rate on average was about 125 bpm. Turns out I developed POTS. My cardiologist put me on...
Magnesium Glycinate helps me the most. If for some reason tgat doesn't work then I take some valerian root....
I take 200 mg daily. You have to ramp up Lamotrigine really slow because one of the side effects can be rare deadly rash. That's only if you ramp it up to fast though. I've been on Lamotrigine for...
My very first Lyme symptom was Depersonilization. What helps me the most is Lamotrigine (Lamictal). It's made a world of difference. Lamotrigine is the standard for Dp/Dr. That's if you want to go...
Ok I just found this. If you go to this link it says that one of the ingredients of Malarone is a folate antagonist. So i guess Malarone does have an affect on folate. Here's the link...
No one? Dang this forum is really dead compared to what it used to be. I guess forums are out and Facebook groups are in....
My Lyme doctor just put me on Malarone for Babesia. I've also gotta get bloodwork done each month now while I'm on it. I've read Malarone can deplete folate / B12. Is that correct? My doctor didn't...
Did you ever try the daily 6 grams of pure Inositol I suggested a few weeks back? That always helped me with intrusive thoughts. I also get them sometimes when treating. I believe it's an inflamed...
Your welcome. Make sure it's the pure Inositol powder. You need to take at least 5 or more grams a day for it to work. You can buy the powder in bulk pretty cheap from swanson vitamins. Inositol is...
About 9 years back I went through a period were I got intrusive thoughts all day long. Really bad thoughts. It waa non stop for 3 months. The one thing that helped me out was taking 6 grams of pure...
Have you tried Japanese knotweed? Large doses have helped me out in times of rage. On occasion i get ocd thoughts and Pure Inositol is helpful. You could always try sarsaparilla root. It's very good...
How do you know that you have long qt syndrome? What tests have you had taken?...
So I been seeing a LLMD for 3 months and he has me on Minocycline, rifampin, nystatin, and a few supplements. Last week I was put on Plaquenil and after 4 days I had a major herx. My heart rate went...
I got mine filled last week at Walgreens. They were running low on it and had to call the Walgreens across town to get it filled....
I feel ya. I have severe insomnia and jerks too while trying to go to sleep. Most nights I'm lucky if I get 4 to 5 hours of sleep 😔....
I used to get the flu pretty much every year pre lyme. Since I've had Lyme I havent gotten sick once. Go figure....
Trueflora brand probiotics have helped my bloating. So I guess with me it could be a candida problem?...
I have very bad nuero Lyme and Japanese Knotweed is great for that. If I'm having a real bad herx or head pains than I take a few of those and it helps inflammation. I havent felt much difference in...
So is anyone still taking Osha root? If so is it helping? It seems like the osha root talk has died down....
Could be a herx. I remember one time I took some nac and I herxed for 4 days straight....
I definitely feel ya. I've pretty much become a loner myself. I never go out and when I do it's by myself. I also am single and it does get lonely. And what I hate is all the fun stuff were missing....
My Lyme doctor says this is fairly common for people with Lyme. I recently developed severe Pots myself about 4 months ago. Had to be put on a low dose beta blocker. And I get all the other stuff you...
I'm taking 500mg twice a day. So that 50mcg you were taking was barely nothing....
I'm actually taking the L-orithine / l-aspartate combo right now. I've read that that those two together are the best for reducing ammonia. I'm also taking molybdenum twice a day and it really seems...
You can always buy a smaller 2 oz bottle of Jernigan Nuero-antitox for $28 on the website. Try it out and see if it works. I don't think $56 for a month's supply is price gouging myself. Especially...
I've been having the same problems this past year. Heart pounding, chest pains, shortness of breath, etc. I've also developed severe POTS in the last 4 months. Just in the past 3 months I've had 5...
I get these about every night. They stopped for a week once when I was supplementing heavily with choline. Had to stop the choline because too much gives me headaches. Neurotransmitter dysfunction /...
I get the squeezing and not being able to breath. It gets worse if I'm taking Sida Acuta and other herbs. I can't tell if it's babesia or bartonella anymore 😔 I also get air hunger after monolaurin...
Niacin is known to cause nausea in some people. Especially if your not used to it. It can also cause extremely low blood pressure so monitor yourself closely....
It's called the niacin "flush" not "flashing". I used to do around 500mg of pure niacin everyday just to get the flush. When you get the flush you know the niacin is working. Anyways I believe it...
I started taking digestive enzymes a few months ago. I remember the first time I took one I got really tired and slept for hours. After a few days the tiredness after taking them went away. But yeah...
I get those symptoms. The chest and throat squeezing tightnesss with severe air hunger. It gets worse for me when I take sida acuta or Japanese knotweed. So im guessing for me it's related to babesia...
No one is saying it was engineered in the 20th century. What they're saying is that the bacteria itself (which has been around a long time) was modified by the govt into what we now have today. Not...
10 years ago I was perfectly healthy and now I suffer from countless problems and here in the past year I've also developed an autoimmune disorder. The main thing my LLMD has me doing right now is my...
I've had heart problems galore. Ive gotten 4 echos, 3 chest xrays, 2 ct scans, stress test, holter monitor, countless blood tests with a 4 day hospital stay and the doctors couldn't tell me anything....
What up big poppa. Love the name....
I get joint pain if I use too much cats claw or not enough. If I stick with around 500mg a few times a day I'm good. Personally for me when I take it and get pains I'm pretty sure it's a herx. But if...
I once had this for 3 months straight non stop. My whole body felt restless like ants were crawling all over and I would get extremely agitated and would sometimes snap. Thankfully it went away....
What's lumbrokinase? And I can't say I have any red dots on my legs....
Well hopefully I can find something to help lower it over time. And yeah I have to watch my blood pressure to because it's already on the low side. I've been on metoprolol for about a month now and...
No it doesn't normalize. I would say mine is severe if while standing it's around 130 on average....