I have had it done, but just once. I more than likely needed 2-3 of the SOT treatments one after the other. I PrimeSpot tested with very elevated EBV and moderately elevated Lyme bacteria. I can't...
I was a patient there in the summer of 2017. I did see patients improve, but it I could not go more than 5 weeks. I had emotional breakdown after breakdown. The treatment protocol days were too long,...
I go to Dr. F in Carmel. Not S. Indiana, but close. he's willing to go along with my treatment input....
WalkingbyFaith, Great news! You and saraeli and k07 have made me feel comfortable ordering the test from Great Plains. Even better that all of you weighing in helps others make a decision between the...
astroman, I never thought about long term Pharma antibiotics as a possible cause of the disc degeneration. It certainly makes sense. I’ve been on them for a year. My LLMD generally turns to herbs...
running wild, I’m glad to hear that your degenerative discs in your lower back are no worse than they were years ago. I hope that your pain is at least manageable for now until remission. Thank you...
Thank you for weighing in also, saraeli! I’ll order it soon....
Have you had spinal X-rays done? I’m only asking because I suffer from excruciating spinal pain. We all do to some degree I’m sure. My entire spine is damaged save for a few discs. Lyme causes...
You’re a gem k07!! Thank you so much for sharing your experience! I’m sure it will help a lot of us. I’m sorry to read that you’re still mold sick. :(. Now it’s time to see if I am....
Thank you for your opinion, Shasta. There are many children of Vietnam Veterans effected by this horrific chemical. My Dad is actually in great health, thankfully. My sister and I aren’t. I believe...
You get the first test for $700 at Real Time Labs. The second test is $250 or more now, but only if you order the second test in the same calendar year as the first. That’s how it was in 2017. Maybe...
I tried looking at other threads on this topic, but they wouldn’t open, so I’m starting a new topic. My Dad served in the heaviest Agent Orange sprayed areas of Vietnam from 1967-1968. He was with...
Has anyone since this was posted done a RealTime Labs and switched to Great Plains Lab for mycotoxins? I have done 2 RealTime for mycotoxins, but I just can’t afford to pay $700 for another test....
As a scientist, a former medical lab scientist, and someone who has gone through extensive genetic testing, I firmly believe in genetic testing. There’s only so much that serological testing can...
Thank you for answering. Your last sentence makes complete sense. Would labs even measure long term chronic inflammation? The answer is most probably not. After close to 20 years (17 years...
Thank you for answering wearyRAsufferer. No pain is good pain, but I’m glad yours has lessened. :) The medical community is only taught to treat acute (short lasting ) illness (sniffles, urinary...
Hair loss is an issue for me too, except it’s on the back of my head. Unfortunately I don’t know of anything that would stop it since it’s due to our whacked out hormones, but I do know of a fix...
Astroman is right about going gluten-free. In fact everyone should. It’s a chemical that messes with hormones, to shine a very small light on gluten in this case. Never see an endocrinologist for...
Hello, I’m almost always on the Lyme disease board, as I do have Lyme and a few coinfections, plus several other chronic illnesses. It’s like a cascade of craziness. I started having symmetrical...
Does your country have compounding pharmacies?Forgive me if that seems like a dumb question to you. Prescription CSM is full of fillers that can actually make the toxic mold in your body worse. I...
Has anyone actually tried Byron White’s A-Bart? That’s what my LLMD wants me on next. I need to get rid of this thing as it’s causing havoc to my veins, brain, bones, etc, just like it is to everyone...
I’m glad the treatment worked for your daughter! Great news there! :) Unfortunately, I do believe the government will continue to be a blocker of the treatment we need. Lyme disease patients don’t...
I feel it’s worth at least calling in for information, but who are they rejecting? People who aren’t celebrities? Meaning most of us? They did have a list of conditions they did not treat. MS but...
I haven’t gotten through the entire second conference yet, but this company/site is more promising than what my LLMD uses. I would feel more comfortable doing a stem cell treatment here. The...
That was my concern about umbilical stem cell usage at his practice. The chance of HLA incompatibility, and I argued with my doctor about it. I think there’s still a chance of rejection, but the...
My LLMD currently uses umbilical cord stem cells for treatment in his office. He hasn’t been touched by the FDA. Are you referring to only a fat based stem cell ban? It wouldn’t surprise me if...
Thank you for sharing your life experience with bone/joint/tendon/ligament pain due to long term LD, astroman. I’m so happy that you’ve bounced back due to very hard work on your part! This gives me...
I appreciate you chiming in. Collagen 2 are made to specifically address healing joints. I’m sorry the glucosamine hurt you. It does have it in the brand I use, but I just started using them. My...
Amelexanox (?) for Mast cell (MCAS) and BPC-157 for all infections (along with oral Abx) and mostly inflammation. I was on Thymosin A for 3 months, and yes I thought that it contributed to my joint...
Dr. N was actually the one I consulted with about BVT and my case in total, and he (and all) of the doctors I’ve had have said the “difficult case” thing. My current LLMD said it again on Friday....
No. My builder didn’t have that option, plus I don’t have that kind of money. I can barely live on what I do have for money. I lived in a brand new apartment building last year and was fine. LLMD...
Thank you for being so kind, sandyfeet. I’ve had CIRS for 19 years. It is important and a good idea to do a HERTSMI or ERMI test though to my new living space. My Shoemaker labs are actually...
There are tons of people on the bvt fb page who are dealing with mcas and mold who are still stinging and getting better. I am one of them. As long as you are detoxing I don't see a problem. But,...
I’ve looked into keto, and it does sound worth trying. Thank you...
Thank you. It’s possible my brand new house isn’t mold free. It’s was exposed to snow and rain during construction. It’s not a bad idea to test it....
My intention was not to single myself out from other Lyme patients as something “extra special.” Not everyone has the same combination of diseases, some get better easier because they don’t have...
Spinal column bones, but they have discs in between to cushion from being bone on bone, which Lyme bacteria love to dine on the “water” in those discs, and it creates degenerative disc disease and...
A month. an LLMD I consulted with who uses it in his practice said to stop doing it immediately! I have the autoimmune MCAS plus mold, and he said because of both, it’s very dangerous for me to...
I’ve had Lyme disease for over 17 years, and even though my elbows were the first to be affected and painful the same year I was infected by an infected tick, a good amount of my joints are rapidly...
Thank you 🙂...
My visual disturbances have not gone away, and I forgot to answer one of your questions, MA10. Yes, it did start suddenly, and they are continuing....
Then a few days later, lol "Military's Deadly Germ Lab Fort Detrick Biodefense Lab Shut Down Due to Sloppy Work, Leaky Equipment"...
You’re very welcome for the reply. I am not familiar with the effects that Babesia can have on a person, because it’s not one of my coinfections, so I cannot answer that. I’m very glad that your...
Do you absolutely need to use water? No juice, just water? I find it hard to get down with water. I’m grateful for your post on this became knees are absolutely shot and I want to get them healed,...
Actually I need to know if you’re living in Florida or California? California is where I may be able to help find you a good LLMD....
Sending you an email......
I suffered horribly from migraines as a preteen. Yes, there was dizziness, blurry eyes, extreme nausea, and extreme pain for me; everyday. It very well could be a migraine, but your continued visual...
I completely agree. This post is an advertisement, and it’s insulting to all of us who are fighting so hard to get rid of coinfections, and go into remission from Lyme disease....
It sounds like you do have Bartonella. Bartonella is a hard one to test for. Always hiding in red blood cells, or the urinary tract or bone marrow. Galaxy labs is the gold standard, but I tested...