Yes, I did a year of intense antibiotics but since I only had band 41 I was always a little unsure. I also had a lot of treatment for Babesia which I tested positive for. I know it's distressing,...
I modified my post. Above. I did have numbness and some burning but those definitely weren't my primary concern. In my limbs it was constant twitching, moderate cramping, moderate pain and occasional...
Listening to DCDs advice is a good idea. I'm just here to say I had twitching in my calves(and the rest of my body but calves were most severe) for 7-8 years. It's slowly improved over time, I did...
I think the HERTSMI-2 has recommendations based on ranges if I recall correctly. Something like < 2 is good. 2 to 4 is only a problem if you were previously mold compromised and have the genetic...
Thanks for the response. In general i agree with both your points. Hence why I don't use a probiotic right now, it's never really helped in the past. Weirdly stomach issues was the first symptom i...
Recently i started getting a lot of ads for a new probiotic. Seems like they have very similar marketing to Athletic Greens (AG1). Wondering if anyone has any thoughts on it, or any experience. And...
I know we all have different levels of results that we got from LLMDs. For me looking at the costs made me stop going to LLMDs all together. I just got completely disillusioned with the process,...
I'll post exact ermi scores later. But the lowest i got was 3.5 i think. That was cloth ermi in an apartment only 3 years old...
Thanks Saraeli That's actually quite helpful as one of the doctors i was looking at is on that list as well....
Sure, i didn't want to give exact details as they don't really post it anywhere. You join for a year and there are a few options but it's around $20 000 for the year and it's for an appointment every...
I don't post that often as things have been relatively stable with little improvement or worsening. I just recently moved and while assured that there were no mold and having had a previous tenant...
Ah ok gotcha. Strange, on my test it says the range 31-102. Are you in the US? i wonder why the ranges are different. I've also heard that on average the ranges have dropped down a lot for men in the...
Curious about your 60 result? Are you referring to free androgen? if so what is your total testosterone? I agree that for someone who is 28 even free androgen of 60 is a bit low, but well within the...
On these forums it is usually used as a cyst form buster as the others have mentioned, so i don't think you can really compare that to a protozoa. I pulsed it twice a week at 1000mg 2 times a day. I...
So DCD, any possible treatment options for what this is? What neurological condition do you think this actually caused?...
I get this all the time, not currently on meds. My twitching is severe, but having fluttering or spasming in the chest(especially the left side) sucks!...
Hi Remedy, you can try Capital Integrative health. Doctors are all MDs but they are open to herbal and eastern treatments. They used to have a dedicated nutritionist who was really good, not sure if...
Hi Disill I hear you, it is incredibly hard. I don't think i was ever as sick as you, but i relate to so much of what you say. The costant anxiety, waking up in terror with my whole body in pain and...
A lot of the discussion here goes right over my head, but wanted to say it's super interesting. I'll make a few anecdotal comments in another post....
I was reading an exchange between DCD and The Dude and it made me think that this is one thing that might help people draw some conclusions. I know some of us respond well to certain treatments while...
At WBF, i wouldn't treat with ABX again, it messes up my digestive system too much and i just never noticed massive improvement. However i did order some tinctures for JKplus and babs stuff(always...
Guys thanks so much for the responses. Very interesting to hear your thoughts, and while i am glad i am not alone, I am also sad that you guys struggle with flares. I think like DCD mentioned the...
For the last 2 years or so i have seen some initial improvement, followed by a general plateau where my symptoms are relatively limited and more importantly very manageable. These include twitching,...
I've had them my whole life, i guess they come and go, because i always notice new ones and never seem to have more of them. I have about 4-5 that i can see...
Yeah you probably have other things stopping you from fighting Babs properly. Other coinfections/Mold/Metals/etc/etc But when you say tests, what tests do you mean? Have you herxed at all from this...
Astro, just wanted to say i always find your posts helpful and informative. Thank you for sharing all your knowledge and experience....
Hope you didn't view my post as attacking you. Was agreeing with you about MS. I think it's not always lyme though, but definitely sometimes. I was trying to focus more on ALS since i researched...
MS is a symptom of something else, i think that's relatively easy to understand. Yes your body is attacking your own cells, but why does it decide to do that? Treating it seems very complicated...
I'm by no means a doctor or Cardiologist. But i've had heart symptoms and continue to do so. Wore a heart monitor for a month, after getting hospitalized for heart tachycardia that suggested heart...
Hi, yeah i've actually done it. I thought it was B3, but it might have been B2. I have a genetic defect where my body can't fully process B6, so after i got diagnosed with Lyme i was put on a complex...
Have you tried "intentional muscle release" before going to bed? Not sure if that is actually what it's called. But there are some methods available or even youtube guides. I do this a lot because i...
Thanks for the update. I really hope he somehow finds someone that can help him with that. Reading his books was so beneficial. Just having someone that has such a clear understanding of what could...
For what it's worth. I had just been diagnosed with POTS when my health started improving. It was really rough for a few months but slowly... very slowly... it improved. I don't think my case wasn't...
I had a test done ages ago by my Neurologist. My CK levels were 10 times higher than normal. He thought i might have some degenerative muscle issue that was most likely genetic. I freaked out since i...
Just to add what has been happening. Got the virus about 2 weeks ago now. I got really really sick. Had a high fever for 8 days. Crazy headache, body aches etc. My fever finally subsided yesterday. I...
Which CD57 test did you do? I've never seen one that specific....
It's not easy. As someone who lost a great love during my illness I feel like I can relate. I like what WbF said, if you know this is the woman you want to spend your life with, figure it out....
I'm in DC, if you are down here and want to meet up let me know...
So quick question for you guys. I've been on maleria prevention medication for about 10 days now and most of my symptoms have ramped up. It could be coincidence since I was traveling and under more...
That's great, I think being able to be that honest an vulnerable is something valuable you have gained. I will endeavor to do better as well. My best friend still reaches out to me, he lives in a...
Sorry for the long delay, i was traveling. I'm a programmer, i was already doing it when i got sick, and i took about a 6 month break just after i got sick, but only got worse and couldn't really...
That is hard. I recently dealt with a lot of that as well. I've seen some improvement the last year so my life went from living just to make it through the day to actually thinking about dreams and...
Hi Jova, i don't post on here often, most of my posts are me complaining about my health, or just generally questioning everything. But felt like i should respond to you. I am male, mid 30s... have...
Which Okra supplement did you get? I'll give it a try....
Yea, i have. I mean, i have good weeks and bad weeks. I don't know what causes the ups and downs, but overall i have more energy. A year ago, i would come home, plop down in my bed or on my couch and...
It is interesting how these infections mess with our nervous system. I definitely don't want to say that all your symptoms can be explained by POTS, but brain fog and headaches etc, don't seem far...
Question about cross contamination, i understand it's a concern, but my undersanding is also that Mold needs humit wet conditions to grow. So how does cross contamination work? I understand you can...
I've been using it for 5 months. I do get very mild constipation from it. No medication (herbals or otherwise) have ever really worked on me. Let me know if there is anything specific i can tell you...
I meant to add a poll to this. Didn't seem to work. Yea i already see a lyme specialist and a mold specialist. I'm more just curious as to how many lymies have gotten tested. It is very interesting...
Hey everyone i was wondering who has done HLA testing. Hoagie mentioned this in a thread a few months ago, and since then i have gotten HLA testing done, I am also mold susceptible as opposed to...