Thanks for chiming in. You definitely gave it a good go -- good to know....
hey WalkingbyFaith & Sheekster - do you have any PK Protocol experience updates? I'm down to one symptom, which is vision/cognitive processing especially when I'm driving. My new LLMD is recommending...
@Strategy92 - I just started these enzymes and agree they are doing something. I took one between breakfast and lunch on Sunday and then another between lunch and dinner, and I herxed. I am still...
Hi Aurorakitty - I know a Buhner herbalist in MA. Drop me a note at my email address in my profile and I'll send you the info. All the best....
ugh, not psyched about bart. i just got some more sida acuta, and am going to give the des bio bartonella series a whirl. not gonna lie, i'm pretty bummed to have backslid like this, but i'd rather...
Yeah -- the stevia was totally unintentional - but nothing changed in regards to me lyme/co-infection protocol - i was and still am on a version of the buhner protocol. i noticed that the...
Hi All- I haven't posted on here in awhile because my health has been generally good -- I've been treating with a mix of ABX and herbs for a little over two years, and actually I thought I would be...
hey @commandersorebod - i've had really good luck detoxing from mold with liposomal glutathione and cholestyramine. i use researched nutritionals liposomal glutathione, which is in an MCT oil base...
great - thanks for passing this along I'll look into it. I think I've seen ECGC come up in the Buhner Bartonella protocol?...
Oh wow. It is like we're on the same page.... I've definitely slipped into the suicidal thought lane and like you although I wouldn't do anything to harm myself, getting into that head space is...
Hi All - It's been awhile since I've posted to the forum. I've been getting along quite well physically and have pretty much across the board good days these days. What has me really perplexed is...
Hey physedgirl09 - I have dealt with brain fog quite a bit on my lyme journey. I started doing thyroid support about a month ago, and the brain fog is pretty much gone. It's of course different for...
thank you!!...
Hi All - I was thinking about using Sealantro for general detox and was wondering what others experiences have been with it. For example, could I herx? I haven't done any heavy metal focused detox...
@Alfredo - email me and I can send you a list of docs in the Boston area, including an LLMD that takes insurance. Glad you're feeling back to 90%!!...
@MAF249 - i definitely agree about the immune system piece. I'm going to add in more immune support in the coming weeks and see how that helps. I'm planning on adding a transfer factor and colostrum....
As the day has gone on, I'm starting to feel worse. I'm going to give the pulsing a whirl - I think that is the way to go. Thank you for your feedback!!...
Hi All - I'm up against what seems to be an on going question in my lyme treatment. To stop ABX or to pulse them? I had a string of 5 or so relatively symptom free days in the last week, and my LLMD...
I have had air hunger and swallowing issues. The swallowing issues are gone after 10-months of lyme and co treatment, but I still get the occasional air hunger. I found the swallowing issue made me...
Hey @NicHostetler - I buy all of my tinctures from Woodland Essence. Buhner recommends them, among others. I go with quality over price - woodland essence doesn't have free shipping either :( I've...
Hey @NickHostetler - sorry, I missed your follow up question!! I take 3 dropperfuls a day from a 8 oz bottle....so probably about 3/4 of a tsp. I took that much from the beginning and I buy from...
Hey Sandyone - I'm in Boston and have some names I can send along. Please send me an email (you'll see it in my profile), and I'll get back to you....
Hey There - I've got some herbalist, LLMD, and functional medicine contacts in the Boston area. The functional doc takes *some* insurance, which is a nice bonus. Send me an email at the email address...
Hi LymeeeSick - I have had excellent success with Gou-Teng. I highly recommend it. I had really bad neuro symptoms - brain fog, felt like I was floating above my body when I was having conversations,...
Yea - Japanese Knotweed is one of the core herbs for Lyme. I would suspect since you reacted to it you should keep going with it. My symptoms came up out of the blue in the middle of the winter. I...
Hi Chris12321 and welcome to the forum! It sounds like you're on the right path....It's hard to say why your Lyme is chronic - but once those buggers get in to you, you never know what the impact...
i don't know about painful eyes, which sounds miserable!!! I've used Stephania (1/2 tsp 3/per day) and just started Zeolites, both of which Buhner recommends for floaters. They've helped. I've been...
Thanks for all of your insights everyone - it's really really helpful to hear about your experiences....
I use Woodland Essence tinctures. There are two types of cat's claw - uncaria tomentosa and uncaria rhynchophllya. The rhynchophllya is the cat's claw particularly indicated for neuro issues. I'm a...
@PeteZa - as I've lost symptoms I'm definitely fearful that they will reemerge! How long did it take for your symptoms to clear? I know it's different for everyone, but it's helpful to hear from...
I've definitely lost symptoms - my brain fog has cleared, my tingling is gone, shortness of breath is rare at this point. That being said, I've picked up symptoms - nausea and fatigue. Sometimes I...
I definitely am going/went through an anti-social phase. I especially find it difficult to hear all of the great stuff my friends are doing while I'm at home nursing my wounds. I can't help but be a...
Hi There - I've been treating for lyme and babs for 9-months now. I'm definitely doing better than I was, but I still feel crappy. What's confusing to me is that I have had 4 or so symptom-free days...
@PJB1959 -- forgot to include directions!! To prepare coffee for the enema, bring to the boil 1 liter of distilled or filtered water, add 2-3 heaping tablespoons of organic ground coffee, boil for 2...
@PJB1959 -- Definitely get organic coffee, but other than that there are no other requirements. there is a company called SA Wilson that makes a blond color coffee for enemas --...
Thanks all - it's just helpful to know that others have felt this way....
Thanks for the anti-inflammatory suggestions. Since I've been feeling better my detox has dropped off....I'll step that back up....! thank you!...
Hi Traveler - Thanks for your response. I just feel so unthankful for feeling better! I'm not sure what you been about anti-inflammatories (which means I'm probably not taking them!) Can you give me...
Hi All - After about 9 months of treatment for babesia and lyme, I've been at consistently 95% for about 3 weeks except my mood is terrible. I'm angry, I'm sad, I'm just emotionally volatile. I'm...
@bluelyme -- what's bvt?...
@tickbite666 i'm worried about a relapse going off antibiotics as you mention with your experience. Interesting about pulsing the antibiotics. Yea, I can see what you mean in terms of your options...
@PeteZa - how long did you do the antibiotics all total before moving to herbals? It's very encouraging that you had a smooth transition. And I like the approach of stopping when you run out. It...
@Nic - About two weeks into the Doxy I realized that I was going to survive. Adding in Cat's Claw and Knotweed were huge - I could feel my immune system kicking in - it definitely pushed me to a new...
hi All - I'm considering switching up my babesia and lyme treatment path and was interested in hearing about the experience of others. I started treating for babesia in september 2016, then added...
hi MAF249 - I'm working with an herbalist who has me doing the Hulda Clark parasite cleanse. He has me taking a massive dose of it every 7 days, rather than staying on the full protocol over the...
thank you for all of the feedback!...
I feel like taking a break could result in losing ground, so I'd rather just keep the antibiotics coming. My doctor instructed me to take 10 days to get up to 500mg of biaxin per day. I'm very...
Hi There - I've been on doxy for about 3.5 months, and seeing decent progress, but my doctor wants to switch me to ceftin and biaxin. She's given me specific instructions on how to start the biaxin...
Niacinamide has been recommended to me, and I have a bottle of it sitting on my counter, but haven't taken the plunge yet. what do you mean by "the flush?" thanks!...
Hi All - I just found an Infrared Sauna near me, and I've used it 4 times now. I really like the way it makes me sweat and subsequently feel, except when I leave everything smells really bad. I live...