I'm in my mid 30s too. I look good. Used to be very active, very healthy, climber, runner, skier, paddler, now I barely get through my day...haven't been able to work in years. It sucks, but we gotta...
The pain, head ache, rapid heart beat, brain fog/confusion, and shortness of breath all come on for me with exercise. I've been dealing with it for about four years. Did over one year of high dose...
My calves sometimes, mostly my thigh and butt. I get bad leg pain with exercise....
Yep. One of my worst issues. Active Lyme, Post Lyme, Post "other" infections, and Chronic Fatigue can all cause Exertion Intolerance....
Astro; I know the culture test exists, but have never heard of anybody actually having one done. I think it requires cns fluid and is rarely done. To my knowledge, when we talk about Lyme test, we...
This is where my mind is right now; Post Lyme, Post Viral, Chronic Fatigue...my symptoms fit for any of them. I think they are all the same, or very similar. Check out the CDC web page on Chronic...
Thanks Dude. I'll check out those links....
I was consistently low for years. Then I recently ended up in the ER for an infected abscess, and feeling really bad. The test in the ER showed lymph count at slightly elevated....
We should also remember that the Lyme test is testing antibodies, it is only proof of past exposure to Lyme. Indicating either an ongoing or past infection, with no way to know which. The test means...
Girlie: all of this post illness syndromes/ Chronic Fatigue are expected to improve over time. Sometimes months, sometimes decades. I have often wondered if the healing attributed to treatment ( on...
I used to be convinced that the herx reaction was proof of an active infection. But now I'm not so sure. Maybe somehow antibiotics can cause a "herx" reaction without an active infection. Now I am...
Interesting. If it is autoimmune.... why do antibiotics cause a herx?...
I totally agree Girlie. Lyme is so individual and unique to each of us, there is no silver bullet that works for everybody. I am just frustrated that the mainstream medical community acted like there...
When would that sometimes be, if not when Neuro and cardiac symptoms are present, and oral antibiotics have failed?...
Just wondering how many people here have tried, and what results you had. Thanks....
No. I know oral antibiotics work for early stage Lyme, but at some point the Lyme goes to late stage, and in late stage Lyme, IV is much more effective. I'm saying I and maybe others might be late...
Also: The most progress I ever made was from Minocycline. Horrible herx, but then some noticable improvements. Minocycline is one of the best orals for crossing the blood brain barrier.......
Hyperthermia. They inject you with something to raise your body temp really high. They call it "shake and bake"....
Excellent link! Thanks for posting!...
Girlie: Yes. Herx is a reation of the body to OSPA. OSPA is released when Lyme is attacked and/or killed. Right? So I have a population of Lyme in my brain, oral antibiotics can't kill them to...
"shouldn't herx for months and months" What if you had neuro Lyme and kept taking oral antibiotics that could not cross the blood brain barrier and kill the Lyme. So the oral antibiotics kept causing...
Had one member here (last year?) Who was very excited to go. He had high hopes. He did go...and we never heard from him again......
I met one Lady who went to the "Shake and Bake" clinic and said it cured her. She claims that antibiotics failed multiple times, and after that clinic she has been cured for years. She does yearly...
Sooo frustrating!!! How can I have Post Lyme when I still have intense herxing after 16 months of oral antibiotics!?! Preaching to the choir I guess......
I know that Herxheimer reactions are real, and accepted with regards to syphilis. But does mainstream medicine recognize Herxheimer reactions with regards to Lyme? I have a meeting with a new doc...
I can appreciate the request to keep the posting positive. But I also appreciate the honesty of this post. I grew up in a Lyme hotspot, always in the woods, lots of bites. I lost my best friend to...
VW: I have seen some people going up to 20 stings, and some people max out at 10. What do you think about 10 sting vs 20 sting protocol?...
BB: I follow the protocol popularized by Ellie Lobel. Check out her YouTube vids on bee venom therapy. Always do a test sting your first time, and always keep an EpiPen handy and know how to use it....
I started BVT at the beginning of the month. Now I'm up to 10 stings 3x a week. The first few sessions gave me really strong head pressure/ache herx. Now the herx is mostly in my neck and shoulders....
Maybe. I'm just confused why I would go looking for other problems before addressing the neurological Lyme as best I can first. My symptoms are all well known neuro Lyme symptoms. Except the air...
I did Mepron, cryptolepis, artemsia,Clindamycin, and Alinia for Babesia. For about six months. I feel like we tried to fight Babesia really hard. But no improvements. But I never had the Hallmark...
LLMD said extended oral is as effective as I.V. and I.V. has more risk and more cost. But I'd like to know why the local doc didn't talk about IV before sending me to the LLMD. Couldn't he have sent...
Okay. I guess I thought that the CDC set the policy and the doctors followed it. But if they tell you it's all in your head and the symptoms aren't real, then it really doesn't matter anyway....
News to me. I felt abandoned and ignored by mainstream medicine and the CDC because the only option I was given was oral meds. Now that seems unfair because my doctors and I never gave their...
The CDC recommends IV antibiotics for late stage Lyme with neurological and or cardiac symptoms. It's on the website. Is this new? I was diagnosed in 2016. With neurological and cardiac symptoms. I...
Write your own script... sometimes we have to be creative with these things. We do what we gotta do. All in the name of health. Good thinking....
Yep. North coast of Cali, just south of the Oregon border....
Yeah I think Lyme usually lowers BS. So if mine is high even with Lyme....maybe I should worry about it. My worst symptoms by far is fatigue and low energy, which certainly wouldn't be helped by BS...
That's 115 on a fasting blood test....
My blood sugar usually test a little high. Around 115. My doctor says this is pre diabetic and recommends diet and exercise. But I already eat good and exercise. Besides, and before Lyme, I've always...
There is at least one study indicating that Diflucan can work against Lyme. Apparently it is very good at crossing the blood brain barrier. I searched this forum and found posts from people who said...
Interesting. You can pay in Bitcoin too. Maybe I'll try that. Thanks Girlie! You always respond so fast, I really appreciate your help and dedication to this forum....
I thought I'd give ADC a try but during the checkout process they asked for a prescription. And they don't take credit cards. I was under the impression people were ordering from them without a...
I've read some theories that some of us have genetic traits that make it easier for Lyme to overwhelm the immune system. But I don't quite get it. Can anybody explained these genetic differences?...
I tested positive on an igenx IFA test for B.Microti...
I would have to check my records to see which specific test. But I took some kind of test and it came back positive for Babesia. So five or six months of Mepron, then sweet Annie and cryptolepis for...
I took Mepron everyday. No pulsing. And I took tests to make sure the level of Mepron in my system was correct....
I did 1 tsp 2x a day for five or six months. Plus the other Babesia drugs. I was very disappointed I didn't see much progress. Thinking about trying it again. But Mepron sucks! And I have a hard time...
My symptoms and my lab results point toward Babesia being my main issue. So last year I did about five months of Mepron in combination with Zithro or Biaxin. Also added in Clindamycin sometimes. And...
The nebulizer thing? I think it's been talked about here a bunch. Seemed like a scam to me ...but what do I know. If I remember right the only members who had anything good to say about it were new...