Hi, I have a prescription for antabuse (disulfiram). I was told to try get it in pill form as it may work better against lyme, but pharmacies in my country only supply it in effervescent form. Should...
I took invermectin (horse version) and had no problems with it. I did dose based on my weight....
Oh yes - I can't drink any alcohol. I get like 4 day hangovers. Truly. Not worth the pain. Also with my horrible depersonalization, getting drunk just doesn't feel enjoyable anymore. I'm already too...
Yes but negative for antibodies. I didn't get much gut problems with gluten, it was more the muscle pain, flushed eyes, throat would swell up sometimes, etc.. I would also feel really ill - like...
So one of the first symptoms I noticed when I first got ill back in 2005 is my muscles would feel like they were on fire anytime I ingested anything with gluten. It was horrible. Tried visiting...
Gosh, I hope they do.... I am on Daraprim and Rifabutin along with the Dapsone... (and Ceftin)[/quote] How are you doing on the new treatment? Are you responding well?...
Low CD57 levels are not a positive for lyme. Many things can cause it to be lowered. It should not be used as a diagnosis. If you tested negative, there's a good chance you don't have lyme....
The night of the bite, I laid in bed and my legs started twitching hard. I never had any twitching before that. I was worried it might be tetanus because it can cause twitching, but my tetanus shots...
Just RE: the pains, try cut out gluten for a few days and see if it helps. When I first got ill I had wicked muscle flares in my shoulders arms and legs. Cutting out gluten completely got rid of...
Thanks. The cost of the antibiotics doesn't matter for me as I get them for free. Public healthcare here covers them....
I don't see him til late January, so we'll see. I'll be sure to take high doses of folate, as it can cause anemia....
I booked an appointment to see my IDS. It won't be for another 3 months but that's ok. I'm going to discuss going back on my ABX with dapsone included and see how I fair. As far as babesia goes, I...
I'm not replying to your posts Charlie. I've no interesting in conversing with you. For others who suggested Dapsone, I read the trial on it and it looks interesting. There appear to be a lot of...
Also RE: MTHFR, I coded a website to analyse the various SNP's associated with MTHFR. So trust me, I consider myself pretty educated about the topic....
Hi guys - having a lot fatigue today but I appreciate all the replies....
I first start taking oil of oregano with high carvacrol content (85%) and then I bought carvacrol directly from a lab (97%). So about 6 months ish....
You haven't read a single word I've said and quite honestly, your posts are abrasive. You saying that it doesn't sound like I'm well read on lyme persisters is an attack on my knowledge without...
My sentiments exactly! If you have lyme, you should respond to antibiotics in at least some form after a few months. 18 months down the line and no improvement or herx, something is wrong....
I have ME, so it's difficult to know what symptoms are attributed to ME and which to lyme. Fatigue, brain fog, cognitive impairment, food intolerances, anxiety.. But more recently in the past few...
This is very possible Mark and one I've been considering. I don't have some typical lyme symptoms like joint pain or headaches. I tested negative for lyme about 10 years ago when I first got ill,...
I don't want to re-quote your post Charlie, as it's quite long and I don't want to flood the thread. I will say this - I'm well educated on lyme persisters and I'd like to consider myself well read...
Interestingly enough - one of my friends moved into an apartment a few years back and suddenly came down with bad fatigue. He realised there was mold there after a few months hidden behind something....
There is some slight mold in the bathroom which is next to my bedroom. I've been running an air filter and the bathroom window is left open all the time to ventilate it. but plan on moving soon and...
I tested positive for lyme with arminlabs last year and was seeing a good IDS since for treatment. I've been on ABX for almost a year and a half and my treatment was very thorough. Despite that, I...
Perhaps test your baby first to see if they test positive for anything before subjecting them to treatment?...
Because carvacrol is the active ingredient that has activity against lyme, not oregano oil itself. You ideally want to isolate it, which I bought at 97% purity....
Carvacrol obtained from oregano oil has shown great activity against lyme in studies. Specifically in combination with antibiotics....
You should e-mail them and ask them....
Carvacrol comes from oregano. It is the active ingredient of oregano that has activity against lyme. Not the oregano itself....
That's from arminlabs which is why I tested with also. CD57 results should not be used as an indicator of lyme, as many diseases can affect CD57 levels. It merely indicates that SOMETHING is...
Carvacrol which is the compound found in oregano which has strong activity against lyme. It doesn't matter if the oregano oil is in liposomal form if the carvacrol content is low. You're better off...
Not long, only about 2 weeks or so. You should give it a shot!...
Gentamicin is used to treat it....
Hey girlie! It's a compound found in oregano oil. It was shown to be extremely effective against lyme biofilms in a recent study. Here's the study if you're curious:...
It's not all in your head. That is something a doctor will tell you if they don't know the answers. If your symptoms went away on doxy - I would ask to be put on a combination therapy. Doxycycline...
Good god is that stuff potent. I tried some drops in water, and it almost killed me. (Not literally). It's so strong, burned my mouth. If you get even a smidgen on your lips, it will give a strong...
Add in artemisinin perhaps?...
Yes, it is very possible that vaccines are one of the many things that can trigger cell danger response. And yes, it's also possible that lyme can trigger it. In my view - any foreign body can...
Yes, this trial is being done by Robert Naviaux. He's a world leading mitochondrial expert. He's also beginning trials soon for ME/CFS using suramin also. His CDR hypothesis is very interesting...
Twitching was one of my main symptoms too. I was on ABX for about 7 or 8 months with no real results, until I doubled up my rifampin from once a day (300mg) to twice a day. Now my twitching is like...
Thing is I'm on a pulsed protocol...I'm thinking I need to take the abx daily for awhile. I'm not sure what Dr. J. says about new tick bites/acute infections...he's a pro-pulser...but probably not...
I don't believe vaccines cause autism. There are some vaccines that have horrible side effects in a small number of patients, like the gardasil vaccine. But overall, I think vaccines are critically...
SeanIRL - that's great. How soon after the increased dose did the twitching subside?[/quote] Hard to say, my memory is very hazy.. Over a few weeks I guess? My twitching is very mild and infrequent...
My muscle twitching subsided a lot when I upped my rifampin from once a day to twice a day, on recommendation by girlie on this forum....
Some lyme symptoms are similar to M.E, but ME has many triggers. Bacteria like lyme are just one of many. A large portion of people with M.E do not have lyme. But I would say anyone who is...
But lomatium is the only thing you added recently, right? Could your improvements have been attributed to anything else you took recently? That's the brand I was going to order anyways, just wanted...
Every single person who has ME/CFS was healthy until they developed it. It can be triggered by a number of things. I was perfectly healthy until I was 22. Was active in BJJ, judo, mma. Then I...
What type of stevia is it? Is it whole leaf extract?...
I also experience what you experienced. Could you link me the brand you bought? I'd be happy to try it. Also did you take anything else alongside it?...
Lyme is not the only thing that causes fatigue, or cognitive impairment. They are core symptoms of ME/CFS. There is a lot of confirmation bias in these forums, which is not good for anyone. Lyme...