Great news, Girlie! I’m glad to hear it....
Interesting! Thank you for the responses. Saraeli, I hadn’t really considered that since he has never had some of the classic symptoms like trouble with eye contact, and he has what seems like a very...
Thank you, Breezzy. One of his doctors thinks detox is the main priority. The other thinks treating infections is essential, while also detoxing. We have received a lot of guidance from the first and...
I’m glad you’re doing well and that you were able to go back to work! I’m on maintenance with Dr. J too, and also doing pretty well. I would actually like to be able to get the vaccine since I’m back...
I used to have that kind of sensation. Alternatively felt like my legs were floating while lying down—very annoying. I’m not sure which infection it was but treatment helped with both of those issues....
I’m wondering this too. My family did fine with the mRNA, but I had scary reactions / flares and still have neuropathy from the second one. Won’t be getting any more unless something convinces me...
Hi! I used to post here a lot but haven’t been here for a long time. Still appreciate all the support and info I found here, and the great people. Wanted to get your thoughts on situation with...
My LLMD added artemisinin to my bart protocol to rein babesia back in, very similar to what you would be doing. It definitely helped....
I believe all three of my children have congenital Lyme as well as subsequent reinfections. (All three oddly also had tummy troubles / food sensitivities as babies.) I mostly agree with Saraeli --...
I tend to think bartonella too. Though a co-worker has numbness and tingling in her legs and it appears to be mold-related for her. I herxed with burning and itching skin when I started bartonella...
It's a rollercoaster. I've read many times that mood issues are especially associated with bartonella, but I think it could be any of the infections....
I'm sorry you're feeling so down. :( Here's a virtual hug. There will be a bend in this long road sometime. We can't see around the corner now, but you never can until you get there. Hang in there....
I withdraw from people too, and then I get even more depressed that no one is around, lol. I wanted to add that if you have issues at Walmart, it might be a vision processing issue caused by damage...
Thanks for the responses. Hugs back to all. WBF, I needed to hear that. We're all pretty much on the same diet, except the youngest, who has a lot of food issues, and my mom. The oldest two are...
I posted a few weeks ago when my third child tested positive for Lyme. Now my mom has been diagnosed too! (By her PCP -- CDC positive.) That's me and my four nearest living relatives. This thing is...
I've read that tiny red pinprick dots are bart, and a local LLMD told us that as well. I'll try to find a link later....
Battler, thanks so much. I was thinking that too. I never would have picked up on these subtle signs if it hadn't been for what I've learned so far between his siblings and myself....
I don't have a lot of answers for you, but I wanted to mention that I also had a massive panic attack while driving. Afterward I learned that inflammation caused my brain to have trouble processing a...
Thank you, running wild and Daisies. Elvin, I agree. I've don't even like to share toothpaste tubes. Daisies, I know you probably get it more than anyone. This was one of my worst fears, and here we...
Thank you, sandyfeet and Patty....
The infections can be passed too....
He is acting OCD tonight. I am feeling completely devastated, and I don't have one friend close enough to call and talk about this with....
What does that mean, Joe? Are you saying antibodies are passed but not the infections?...
Thanks. Yes, I do. I remember having horrible chills at night -- don't know when but definitely before the last one was born. Probably had it since I was a kid. Had plenty of tick bites as a child...
Got my 7-year-old some comprehensive testing after a lice incident and he's positive for 4 Lyme bands. Not unexpected but very upsetting. 3/3 kids. I tried so hard to protect him but he's probably...
Yes, the lice have been treated. It wasn't the J clinic. It was a local LLMD who is our PCP. It would be daily. I asked the J clinic but haven't heard back yet, and they probably won't advise me on...
Hout didn't do much if anything for my kid with bart....
We came back from vacation with lice. (Lovely.) I'm worried about the possibility of this spreading our infections to my youngest with no known infections so far. He shared a bed with me and I have...
I guess not, lol....
Welcome! I'm sorry you've been dealing with all of this, but I'm glad you found this board! You are definitely not alone or blowing it out of proportion. My kids go to a great LLMD in Fairfax. Please...
Does anyone get bloating from nightshades?...
Wow! Glad that helped you, and thank you for sharing!...
I also have doubts about maintenance -- like I thought that means you are completely symptom free. Plus I think, what if I didn't take enough of the biofilm and cyst busters. But at the same time, I...
I'm in VA and Lyme is rampant here. If he doesn't have the tick to test, I would do a few weeks of doxy. That's what I do when we get bitten now....
Girlie, no persister meds, and they're not in the forecast, because after 2 more rounds like this, I'm supposed to start maintenance! I was so scared of rifabutin, but I haven't had anything worse...
We interrupt your regularly scheduled programming to say: This example of emotional instability was brought to you by candida, round two of bart treatment, and not enough detox baths. Sigh. Thanks...
They do help, but they are sick too. We are a mess over here right now....
It does help when I'm very strict. But yes, maybe there's more to it as well. It's not just that I wish that I could eat anything (though I do). I'm not bored, I'm exhausted. I'm cooking for five,...
Yes, I know I need to do better. I'm not worried about people not respecting me. I'm just so damn tired. And I thought this would be ok. This frustration is not directed to you -- I appreciate your...
I'm so frustrated. Yesterday I was out with a friend with our kids and she wanted to go get ice cream. I had a kids' cup of no sugar added ice cream, and today I look 7 months pregnant. I'm tired and...
No, we've been separated longer than I've been sick. (I'm sure years of stress contributed to my illness.) It's not good and I want it to end, but it's complicated right now for a variety of reasons....
Yes, I read those articles, but I want to know how scared I should be next time I eat meat, lol. I also can't find how long it takes to develop that allergy after the tick bite. Seems like not much...
I'm so sorry you're going through this. If you do end up divorcing, the relief from that daily stress may well help your healing. I say this as someone who has been living as separated in the same...
I was terrified to start the Rifabutin but it's been fine -- easier than the babs protocol so far. (On my second bart cycle now.) The biggest problem so far is skin itching and mild burning, but...
Yes, I think that's normal. I had to go back on a strict candida diet this spring. I felt awful at first, then great. Hopefully someone else can explain why that happens. I hope and think you'll be...
Yay! I have to say, I expected this news since I first saw posts from you -- you're so helpful and kind. Thank you for taking on this role!...
Got a new tick bite last week. Just found out it was a lone star tick. Anyone know what the chance of developing alpha gal syndrome is? I can't find any information on that. I felt like I was pretty...
I thought I had the candida more under control than this. :( Tough beast....
Just read that candida ferments sugar into ammonia. https://www.thecandidadiet.com/ph-levels-candida/...
One more thing -- I also smell like cat pee (lovely), which normally means I haven't detoxed enough, but this isn't a medicine week....