Yeah it’s an LLMD! It’s going to be for at least 3 months. I tested positive for myocardial antibodies which my doctor believes is from having Lyme carditis at some point, I failed a hearing test in...
Lol... I have pots and horrible autonomic dysfunction with neuropathy all over and I can’t stand for longer that 20 minutes without almost passing out. I don’t think I should be on my death bed to...
Well guys, I’ve sat back for a few months and I’ve tried my hardest to make my own hay-maker and I think I’ve came up with it... in 3 weeks I travel to Columbia MO to be placed on IV antibiotics and...
Depersonalization! Sorry!...
I have DR/DP and I’ve heard marijuana makes it worse... does anyone self treat with marijuana for nerve pain?...
I wouldn’t be too worried but I would look into something..my entire life my resting heart rate has been about 50... When this all started for me, I rushed to the ER in the worst panic attack of all...
So, I’m curious as to if any of you experience this... so, I still work full time in a prison and sometimes at work (I work midnight-8 not any inmate movement) I’ll kick back in a computer chair and...
It hurts my heart a little every time I see someone else is struggling with derealization/depersonalization.. I’ve definitely been better than I was but my mental symptoms have BY FAR been my...
Thanks for replying!, as for herxing symptoms I am unsure honestly. I don’t believe a sore throat has had anything to do with herxing and I have no clue about EBV but I did have it as a kid? I am...
So, ive posted a few times concerning catching a cold, and my entire family has been sick for the past month but I keep cycling through it, ill get a sore throat, itll stick for a day or so then go...
I really hope we don’t die from dysautonomia lol.......
Ardhi.. your symptoms are the same as 90% of ours! And it’s crazy, we got sick literally the same month same year.. your symptoms do sound like dysautonomia.. which I also have.. hope you continue to...
I can’t find a sore spot if I poke around... mine is more like radiating pain and not necessarily centralized... if someone asked me where it hurts I couldn’t tell you specifically literally the...
I too have dysautonomia, I’m not even sure if you could even classify mine as POTS because I have so many other symptoms along with it. I’ve been sick for about 8 months, it’s gotten better with...
I had this for a while. My muscle twitches have greatly diminished.. I’m not sure if it’s the antibiotics or the gabapentin that’s caused them to stop... I know how annoying they are.. I have them...
One of my very first symptoms, about 14 days after being bitten I had woke up with such an inflamed hip you could feel the heat from it just by hovering your hand over it. This has been one of my...
I’m taking azithromicin, amoxicillin and flagyl... I have days I am much better but since posting above I have had a rough few days, neuropathy is back, derealization is horrible, ear is ringing........
So, with my new treatment I have seen some success but it was like it all went out the door after I woke up this morning. I haven’t had neuropathy in over 2 months and I randomly wake up this...
Dahlias! I’ve been so dizzy I could hardly walk around! Crazy we both start out a cold like that.....
Does anyone experience macropsia? Sometimes I’ll randomly feel like my tongue and teeth are so big, if I have my arms crossed they feel 3x their size and my legs and fingers the same... such an odd...
its crazy that most folks I speak with also have the ringing in the left ear.. i had a hearing test done a few months back and i too have hearing loss... my symptoms are also spot on with what you...
Hey y'all, So I definitely caught a cold from my little boy and my wife! throat has felt swollen all day and within the last hour it feels sore.. since my dose of flagyl last week I have been so...
Thanks for the reply! I jumped over on another forum that seems to have some folks who have dealt with dumping syndrome after gastric bypass surgery and I stumbled upon a topic of omeperazole 20MG...
Hey guys, this may seem like an odd question for some but im wondering if any of you have had a similar experience.. As most of you have seen in my signature and other post I have had major...
So, I take flagyl a few days a month and yesterday I took 500mg 3x.... normally I do feel like I herx pretty hard, but this morning I woke up and my derealization was basically gone (had it...
MAN...... I used to have a sore toe and think “this is it I’m dying” literally 40 ER trips in 6 months...... don’t ever feel embarrassed. It’s hard to not worry when you have 1,000,000 things going...
Girlie I think tino may mean... Is it harder for blood test to detect Lyme and coinfections after antibiotic treatment may have suppressed the infection.. I’ve heard 2 sides tino and I’m not sure...
Isitlyme- Your symptoms sound identical to mine except I don't have trouble with sleep, in fact I could sleep all day....
Thanks girlie! Hopefully I can get some info on the coinfection tests.. did you do igenex?...
Hey guys, so ive had an Igenex urine and blood test sitting in my cabinet just collecting dust for the last 5 months, after my equivocal results on the western blot i decided that my money would be...
Any other medical professional in the US makes 330k per year, for 52 weeks and 40 hours a week thats about $160 an hour. you tell me why i should have to pay double to an...
all these doctors claim to be so passionate to help us.... i guarantee they wouldn't be as passionate about us if they weren't driving that Porsche 911 to work every morning....
LOL how can you not call that a money scheme? 2000 an hour? i wouldnt pay 2000 an hour to sit down and talk with God..... so many sick people are taken advantage of.. From every possible realm of...
I also hope that im not rubbing anyone the wrong way, i am 110% disgruntled and displeased with my overall experience with Dr. J Clinic especially after hearing all the success stories, But i cant...
Also girlie, I was beginning to feel like had I not questioned what I was prescribed or had I not refused to take it, they would have never refused to give me the antibiotics. during my initial app...
yeah the expense mostly.. I had spent the initial 950ish on top of the 8 hour drive + stay.. waited almost 3 months, was never given the first antibiotic and then was told I would need to pay another...
I’m not sure what has caused my weight gain... I guess it could be antibiotics but I’ve never been so stationary in my life so it’s probably a little bit of everything.... I’d love to try the rowing...
Yeah I def did lol. I’ll carry on with the old post... sorry bout that y’all....
ill talk to him about it in april, if i have to ill switch back to dr j... ill do anything to get better. financially switching to this doctor was my best choice but if ultimately i have to pay to...
its also frustrating because i havent been able to find a trigger or a pattern. it does seem like i cycle through feeling awful and feeling decent but i have found no correlation between any foods or...
my pots is weird too. ill wake up sometimes and i feel like my heart is racing so bad, sometimes i can walk up stairs and im fine and then sometimes i cant walk 25 foot on a flat surface, if you...
my current LLMD has me on the azithromycin, flagyl, and amoxicillin.. I go back on the 23rd of april for my 3 month check up. hoping I can break through and see a big difference when I go back. I...
Does anyone else get the weird chest pains? I’m doing a lot better. I can’t say that I’m not seeing any progress, but I’ll still have a numbness/crawling feeling all over my head, I still have muscle...
My feet absolutely kill me in the mornings, this has just recently started about 2 months ago. When I get out of bed from my soles to my toes are so stiff and sore... what causes that?...
Yeah, I definitely plan to continue testing.. I just for my own peace of mind. Could anyone tell me if those 2 bands are Lyme specific? Or what they could mean? I’ve tried doing some research on 66...
Thank you guys for your continued support. I let people underplaying the mental side of this get to me for the first few months but now I let it go, I know what this disease does to you, I know when...
Dr j Clinic pulsing schedule is the one im currently using now! i think the flagyl is what was causing my Herx reaction? but the doctor is in johnson city TN. i am actually located in Eastern KY.....
So, as many of you know i was being seen by an NP at Dr J. Clinic.. i havent been very please with the care i have been getting there. between pricey appointments and their delay in prescribing me...
What is tbd? I definitely need to start some type of diet. I’m telling you that ribeye absolutely killed me...