Now, that’s a good question... To which I plead the 5th, lol......
Well, I just had a full blown flare. For this one I started with 9mg of budesonide for a day or so, and then started a Z-Pac 5-day course (500mg day 1, 250mg day 2-5) in parallel with the...
I beleive, at this point, I am ready to broadcast this theory of mine to a wider audience. Probably grab a URL, build a simple website, create a more refined writeup or two, hopefully can get some...
So, I have an update to this. I've been in symptomatic remission just fine since the last post. Using the Live Leaf to knock down any small attempts by the UC to emerge from remission (whenever any...
Sorry for the super late response. I'm here to update this post... But, yes, that's the stuff....
Sorry for resurrecting a zombie thread, but I found this while trying to search for one of my old posts in the Ulcerative Colitis forum (searched quorum, assuming it'd be a term not oft used). I use...
"Leaky gut syndrome is a digestive condition that affects the lining of the intestines. In leaky gut syndrome, gaps in the intestinal walls allow bacteria and other toxins to pass into the...
Well, I'm skeptical of the leaky gut thing, but who knows... In any case, if it were 'leaking' gut material, out of the colon wall(s), then there is no mistake - they would be foreign invaders that...
Yes, but the question remains - is it the immune system causing problems, responding as expected to foreign/virulent organisms that we've not yet identified, or simply depleted as a result of the...
Haha - yeah, no one wants to give up steak and burgers - myself included! That said, the fact that various diets lead to relief, remission, worsening of symptoms and/or flares, also provides...
Hmm, never heard of this, but a quick google search reveals success with it among others. I'll have to look into this. Thanks. Really, anything that has any effect on UC at all is a potential clue...
Please see my post here: https://www.healingwell.com/community/default.aspx?f=38&m=4144681 This just might help explain it......
Hmm, ok. Maybe contact the manufacturer. They are a small outfit, so it's likely can help you out....
No criticism taken. Though, I expected and hoped for criticism, as I'd like to suss this theory out. I have not looked at the Israeli study that you mention. I simply just don't have the time to do...
LiveLeaf can be gotten via amazon. It's not a prescribed thing, so anyone should be able to get that... Question is then, are you in a full flare or some level of symptomatic remission? I'm not sure...
To be concise, all I'm doing here is sharing my experience of finding an effective treatment for me, and throwing it out there for two reasons: 1) To see if it helps anyone else. If so, then maybe...
Hey, listen, to each their own. I didn't get all the way through that protocol of his, but it really isnt relevant in this case. As for following others theories, etc without safety knowledge -as...
It appears xifaxan targets only ecoli, so I'm not sure it'd work in all or many cases. But, hell, it's worth a shot....
Can't disagree with you there at all. I just think that the genetic predisposition is that of sensitivity to particular strains (or singular strain) of gut bacteria (or, the bacteria's by-products,...
Ok, well, I didn't claim that FMT was any kind of universal fix. What I did say is that I noticed that the study I had read many years ago noted a ~30% remission rate. And, what that said (and still...
Well, there very well may be explosions of various virulent/irritable bacteria in normal (aka, non-UC) people's intestines. But, those individuals just don't have such a bad reaction to it. They may...
I had not heard of the Briggs Protocol before. I have since found the paper and have been reading it. Makes a lot of sense to me, and I'm not entirely sure it's in contradiction to my bacterial...
Oligodar - No, I'm not positing that the bacterial quorum sensing (BQS) mechanism is in any way affected or broken leading to UC. I am positing that new substances can disrupt this process and...
Ok. Yeah, I tried something similar back around 2007, and I just couldnt survive on yogurt alone - I was an 8000 calorie a day eater back then due to youth and activity level......
Sorry to hear all that Andrina... I wonder tho if these post-UC or UC-coincident symptoms might be better attributed to the long and heavy med courses I'm sure you were subject to prior to your...
I'll add that I'm not sure the LiveLeaf will be useful if already in a flare. The purpose of it is to disrupt the quorum sensing mechanism and prevent the virulent bacteria from multiplying in the...
Thank you Have UC. I use the Gut Rescue version (red packaging), as that is what was recommended to me by the friend mentioned. It is a higher concentration dose than the others. It may be useful in...
I tried to post a link to the specific product, but a moderator took it down (against the rules I suppose). But, I'll name it (since they didn't kill the LiveLeaf info). I used 'Pleasant Probiotics'...
I think maybe the overall point may have gotten lost in my original story/post. I am hypothesizing that UC is simply an immune response to a virulent bacteria in the gut. But, I would not consider...
That's exactly the type of thing I'm looking for. Thanks!...
Hello Oligodar. 1) I believe Immunosuppressants work well to treat UC symptoms simply because UC symptoms are nothing but immune system reactions (it would appear). I'd say, look at it like an organ...
That's amazing, how two people with the same disease can have exactly opposite reactions to smoking... I have interacted with many with UC that found relief in smoking. But, I've also found that...
I will respectfully disagree with many though, that this is a super complex disease. I've not seen evidence of it manifesting in a complex way. Symptoms are fairly uniform (by definition I suppose),...
Well, it's not all too relevant to the remainder to be honest, but ok... If you stopped there you kinda miss the point of the whole thing. Are we sure this is the case? Or is it that the immune...
Sorry, I know it's long (looks a lot longer here than in Word, lol), but I feel full context is required....
I was diagnosed with UC in the winter of 2005. My first flare was brought about after a bout of really bad gut bug of some sort. My roommate at the time (I was in college, 26yrs old) was a Nurse...
Hello. I am a looong time member here, but have not posted in many years (UC has been in symptomatic remission). So, excuse the super long post from someone y'all have never heard of, lol... I'll...
"luv2ride said... What about using nicotine patches when you quit? Seems you'd get the benefit of the nicotine and could ease down on the dose slowly." Tried that - doesnt work... Nicotine is...
"wodin said... I have been maintaining remission for just short of a year now (Sept 2009) using NRT. I am still taking a rather heavy dose of Colazol (6 grams/day), but that's left over from tha...
"festeris101 said... I only quit once back in 1998 after smoking for 15 years. My first flare came around 2 years later. I'm still not smoking and I still have UC and actively in a flare. I'm...
kelli_C said... Don't go back to Smoking to stop a flare - I'm sure there are better ways!! I'm not going back to smoking to stop a flare... I was a long time smoker, so it was a pre-existing thing....
Hey all - havnt been on here for some time as I've been in complete remission without meds or anything for about 2.5yrs. Reason I'm posting is because I have been able to keep myself in total...
I for one think that diet plays a pivotal role in the course, or even the cause of UC - either directly or indirectly. I am almost 100% convinced that UC results from some sort of bacterial (or other...
Hello - I hav'nt been on here for quite some time (good thing I guess), since I've been in 100% remission (again) for almost 2 years. I quit smoking in December 2007, only to have the UC come back...