I treated for a little over a year, with a few months off the antibiotics in the middle. Good luck with the migraines, I hear those are the worst. I have a chronic tension headache. If everything...
I like Dr. G! He's a nice guy, very thorough. He doesn't treat quite as aggressively as I've heard some Drs on here doing, but I like his approach. He prefers antibiotics with a couple herbs, but...
I don't know if it's necessary but a bit of Cats Claw and Japanese Knotweed for a few months won't hurt, so I figured I may as well....
Kind of a milestone today (technically Friday, when it happened). I had my appointment with my LLMD and we looked at my history and how all of my symptoms (except my headaches and neck stiffness)...
I see a Dr. G in Boyton Beach, FL. That's not very near to Clearwater though so it's probably not the same person....
I've had 2 MRIs. The first one a year and a half ago showed something that might have been a lesion or an image artifact, they weren't sure. The second one I had a few months ago was perfectly...
They can be present around the clock, as soon as I get up for the day. Living with a constant headache isn’t fun. It’s impossible to find triggers for it when you always have it, unfortunately. It...
My LLMD doesn't want to treat me for babesia since I've tested negative for it twice, and only having headaches is pretty thin evidence. I might try some babesia herbs down the line though. At this...
The ice pick headaches you describe are very uncommon for me, I maybe get 1 per month. My headaches are classic tension type: Feels like a tight band around the back, side, or front of head,...
I started taking Lion's Mane a week and a half ago because I've heard good things about it regarding headaches, which are my sole severe symptom left. Unfortunately it hasn't affected my headaches at...
Mine never fully went away but it improved with treatment (antibiotics, some herbs, time). I don't notice it unless I look for it 99% of the time now, so it doesn't bother me....
I don't know about specific diets, and I'm in a bit of a different situation than everyone else here, but I've recently been experimenting with adding carbs to my diet. I found out that I had been...
I’m not willing to change my LLMD at this time. If this current line of treatment then that’s something I can circle back around to....
I don't believe I have babs. I've brought it up to my LLMD before but he doesn't want to treat me for it because I tested negative and because I don't have the usual symptoms for it. I'm certainly...
Hey guys it's been a while. There hasn't been too much of a change yet but my neurologist and I are going down the list of treatments for my persistent headaches while my LLMD and I are keeping up...
Measles is quite obviously returning because people are not vaccinating. Anyone who can't see that is willfully ignorant of that fact. It's returning only in populations of people who have not been...
I made some pretty quick progress with Rifampin, though it didn't get rid of everything. I may need to swap to mino with it instead of azithromycin, could be worth a shot. It definitely helped but I...
I take Rifampin everyday and Azithromycin every other day. My LLMD and I believe bart is the cause of my remaining problems, though, so we don't have a third antibiotic in there (although I do take...
The buzzing in my feet has been my longest symptom and these days it's barely there anymore. Bart treatment knocked it out, Rifampin+Azithromycin. Both times I've started that combination the...
I find it interesting that the entire brain had higher inflammation as well, not just parts of it, for every one in the "symptomatic" grouping. Hopefully that will help lead further research into a...
(Article Link): https://medicalxpress.com/news/2019-02-scan-technique-reveals-brain-inflammation.html "The scans revealed that across eight different regions of the brain, PTLDS patients had...
To weigh in on the other side: I've gotten 2 colds in the year and a half since I got Lyme. That's a normal amount for me....
Ok, that's good to hear! I can deal with temporary setbacks I just wanted to make sure that my treatment protocol wasn't suddenly failing after a good month and a half. I travel a ton for work so I'm...
Hey all, quick question. I've been getting over the tail end of a cold and am just about better now, but my Bartonella symptoms have flared (More headaches and tingling has come back in my feet)....
I have had a recent eye exam, they're fine. I even saw a neuro ophthalmologist for a more comprehensive examination. I'm doing pretty well with vitamins although I may try taking some extra magnesium...
I think my neurologist wanted me to start with a low dose, I've read that different people respond to very different doses. Hopefully I won't have many side effects! Obviously if they're worse than...
Yeah I understand that gabapentin is hit or miss for people. I assume that my neurologist (who deals with a lot of headache and migraine patients) knows what he's talking about when it comes to...
Hey all, been a while since my last post. I hope you all are doing well. Back in December my LLMD and I decided to put me back on antibiotics to combat bartonella (which we think is the cause of my...
My LLMD says ringing in the ears is primarily Lyme itself, but who knows....
In 4 months I had seen significant progress in some areas, but not all. If you haven't seen any improvement at all in 4 months you may want to consider re-evaluating your current treatment plan with...
Since my discomfort is tied to my medicine, several of which are specifically noted as causing GI issues as side effects, I’m pretty confident that that’s the issue. If my issues continue after...
My LLMD called me back (he’s great, I really appreciate how fast he gets back to me) and told me to stop everything for a week, and then slowly reintroduce things one at a time starting with low...
I’ve tried all the diets in the past, none of them made any difference for me. My stomach issues go away completely after a day or two of not taking any medication, I think months of taking this...
Hey all, I’ve been fiddling around with doses for the Buhner protocol to see if I can find something my stomach can handle, but whenever I take the herbs, vitamins and supplements my stomach gets...
People associated with this website have been trolling the Lyme subreddit for the past week. They answer every single post telling people Lyme isn’t real and they should snap out of it, and similar...
How long did you try it for? It didn’t start helping me until after a few weeks of use....
Girlie have you tried Capscaicin for nerve pain? It's been helping me out. It's a topical painkiller derived from Chili peppers, you can pick up a .1% solution at any pharmacy for like $10. You've...
I have a mild keratosis right now. My dermatologist thinks it’s related to dry skin issues though. I always get really dry skin in the winter and fall. Try moisturizing....
There’s a stretch my PT taught me that helped my stiff shoulders a ton. She called it the ‘student stretch’. Turn your head to look down at one of your hips, reach up with the arm on that side and...
Hey everyone. I said I'd post an update after I saw my dermatologist, turns out there was nothing to worry about. He identified the spots right away as Keratosis Pilaris, a minor skin condition that...
I'm not on cryptolepis but I am on other things that can cause stomach discomfort like I listed above. I'll give it a break for a day and see if that helps then. I've been feeling alright lately and...
Thanks for the info. The last time my stomach bothered me was when I was on a bunch of antibiotics and they were causing me problems. This feels similar, but not nearly as severe fortunately. Do you...
Hey all! I've been doing pretty well lately all things considered, though the past few days I've had some mild stomach issues. I'm on a ton of Buhner herbs and other supplements and have slowly been...
This is all assuming that this is Petechiae in the first place for me too. I’m basing that because it looks similar to depictions I’ve found online and from what a nurse practitioner told me a month...
I’ve heard Babs and Bart, Girlie. My LLMD won’t treat me for babs since I haven’t had any of the hallmark symptoms of it: No air hunger, no night sweats (or sweats at all), or any of the other normal...
I’m on both of those supplements! Part of the Buhner protocol. I’m on a plane right now so I can’t take pictures, but I’ll try to remember for when I get home tonight. Im going to run it by a...
Get outside in the sun. Even if it’s just a short walk, that always relaxes me. And a bit of sunlight everyday is good for you, gotta get that vitamin D!...
Thanks, I’ve read those other threads too but nothing conclusive. I hope it’s a sign that the herbs are working but who can say for sure. It can’t be good to keep hemorrhaging internally though, I’m...
Hey all. I’ve recently (past few weeks) developed red spots on my upper arms that strongly resemble Petechiae. I’m seeing a dermatologist Monday but I wanted to ask you all if you know what could be...
I don't believe that the US government is capable of anything that elaborate. I'm not going to participate in this discussion anymore. For me this is a place for healing, not for arguments about...