There is a reason this forum doesn't see the traffic it used to. And kudos to Fergleman for using the Fallout thumbs up dude - If only laughter was the best medicine!...
duncan - What do you mean abx destroys you now and it's not a herx? You mean your gut and stuff? Or allergies?...
Yes, I have. What are you worried about? They are in the same class....
More than likely you will be fine. Just get monthly labs to make sure. I had this same fear last year, as I was prescribed rifampin plus Clarithromycin to treat an old Bart infection. I took these...
^amen to that...
Jemsek wasn’t the messiah. If we are ranking doctors, Horowitz is in a higher league along with Burrascano and the late great Charles Ray Jones. I see a doctor in San Fran that does remote...
Can someone please remind me of why it's advised to treat coinfections before targeting Lyme?...
Allen - I have twitching as my last symptom too. About a year ago it was basically non stop in my calves (not foot arches though). Now it is maybe 10 twitches at random a day, which is not bad at...
Thanks for the update Bailey. Changes in weather does weird things to me too, but it always has, even before Lyme. I wonder when we will get an official update from that clinic. Very strange!...
How are members like Bailey doing and have they heard anything? I remember that Bailey had seen Jemsek for many years and was basically friends with him....
I doubt that he passed away. Three days ago 6 providers resigned without notice. This screams legal issue and I’m guessing internal....
Thanks Girlie! Also, it’s official now. The clinic is closing....
I saw this clinic from 2015 through 2022. For the past 1.5 years, I have been with a different LLMD. First thing my new doctor had me do was a complete co-infection Igenex panel (testing can be...
^ and after being on them for 7 years....
Girlie, I saw one of the PAs in December last year. She is great....
Bump...
I read the thread title thinking you had a relapse. What a relief. Anyway, chronic illness PTSD is a real thing. Probably a mix between that and adulting....
Even those with only an EM rash who treat within hours can potentially show igg bodies for the rest of their life, correct?...
Some llmd do test after treatment. Charles ray Jones said some parents would test their kids for igm and pcr after treatment concluded for peace of mind. I know Dr RS in Bay Area tests for igm...
Are you testing for igm and igg antibodies? When you tested negative for Bart, was that pcr, fish, or igm negative? Assuming you showed igg antibodies if you tested for those....
It's about the same as when they were at their old location. Bailey is right...usually the appointment extension works for getting ahold of a person. Be forewarned: this office is not known for...
Wow, sorry for that. What state do you live in? Also, what do you do for running water, restroom, etc.? Sorry for asking these questions, I just can’t imagine that situation being sick....
WBF - you really live in a car and don’t go in the home? You eat and sleep in the car? Because of the mold inside?...
That’s awesome! Were you able to get the ivig covered with insurance? What diagnosis got it approved? Did you have any improvements with all those abx?...
The remaining symptoms that are not resolved with diet are cognitive, fatigue, and insomnia. Besides that I dont have any symptoms of another infection. Maybe it is a leaky gut thing and my gut is...
For a second there I thought we had a treatment that finally took the edge off!...
I’ve enjoyed at least a half pot of coffee daily for the past 15 years. Wonder if I would feel better or worse without it (after the withdrawal period that is)?...
While it does suck to pay more, keep in mind their operating costs are increasing as well. They are not immune to these crazy financial times. Everyone got a nice 10-15% raise this year, right?...
Thanks Kane! Sounds like you might be close to turning a corner and improving then. Do you herx a ton or why can’t you handle more abx?...
Why not try a protocol with less time off, or even continuous, until you start to improve? It sounds like you are just holding it in check just enough, but not killing enough to further improve. Do...
Trkane - do you continue to get better being on maintenance for so many years or have you plateaued? Have you tried stopping all abx?...
Love this post. Have you seen the TED Talk on procrastination by Tim Urban? It’s hilarious and very true. Well worth the 14 min. Here it is: https://www.youtube.com/watch?v=arj7oStGLkU&t=2s ...
Yeah, Lyme is not often by itself, this is true, but just looking at the Borrelia and the possible interaction with a vaccine in a long-standing infection was the root of my question. Mainly just to...
Think the vaccine currently being tested (manufactured by Pfizer) will be therapeutic as well? As in offer a “cure” to those already infected and not just a preventative vaccine? Not sure I’ve seen...
In 2020 I developed fatty stools that still have not gone away. That’s my only symptom, though. Enzymes and other bloodwork was normal. Do you have symptoms other than pain? Are your pancreatic...
I'm not a doctor, but I would be willing to bet your lyme and bart has returned. If I were you, I would try a course of abx as soon as possible, and if you find relief, keep going. Good news though:...
Don’t drink that often… but I consume a moderate amount of alcohol. I definitely don’t hit them on anything because every time I wake up there’s pain up and down both of my shins.[/quote] Ah, I see....
Could be, but seems coincidental to me. How much did you drink? If a lot, maybe you don’t remember hitting your shin on something....
I see him and was just at his new office last week. I have had a recent flare/relapse after over 2 years of being off abx (really happy about the 2 year achievement), and was prescribed amoxicillin...
For those parents out there who had kid(s) seeing this doctor, curious who you see now? Did he train anyone to replace him?...
Curious if anyone has any experience with this Dr., and if so, any feedback would be greatly appreciated. Feel free to email me if you don’t feel comfortable responding here. Thanks!...
Astroman - I have had floaters for over two years now. It started after I ate a really spicy habanero pizza....really strange. Anyway, I have no other symptoms (no GI pain, no gas, normal color...
What are the remaining symptoms if you don’t mind me asking?...
Bro - what are your remaining symptoms?...
I really don’t think anyone knows the answer to this at this point. “Time will tell” unfortunately....
I haven’t been on here for more than two or three years until last week. I have a absolutely noticed this forum is significantly less busy than it used to be when I first joined in 2014 until...
Hi Chappelle, curious what happened to your thread today about a flare up? I don't see it anymore....thanks....
Histamine intolerance can be a possible cause if your acid levels are normal....
Bump....
One bottle of wine? That’s a fair amount. Haha. I don’t have any alcohol when I’m on abx not because of interactions, but to allow my liver to concentrate on the meds and not meds plus alcohol....