Thanks for the reply and I hope you're doing okay George. It's kind of insane what many of us have had to face. I guess if it helps, it took me around 4 years of treatment to be in a position where...
I've lost so many years to illness, I feel like so much of my life has been in some form of hell or struggle. It feels like I've woken up and all of a sudden I am 31. My story is similar to many I...
You're right about worrying making things so much worse. I am susceptible to very bad anxiety, especially health anxiety. Something I'm trying to get better at not doing. A work in progress....
Not entirely sure on the nausea, etc. I'm wondering if it's from a long course of doxycyclone recently. I've also noticed that I'm getting quite noticeable dark circles under my eyes whenever I get...
Hi RainyCloud, really nice to hear from you. My hair loss basically resolved itself, somehow. I'm not quite sure how. It was really really bad initially - I'd run my hand through my hair and end up...
I have developed really bad nausea which comes in waves, alongside burping, gas, and diarrhoea at times (sorry too much info). I concerns me because many of my original symptoms are much better, and...
Very recently I've been experiencing bouts of quite intense anxiety in my throat region (rather than chest). This is a new symptom for me, and I have no idea where it has come from. I recently...
Thank you, do you think this would coincide with hard, painless lymph nodes, nausea, weakness, night sweats, all within 1-2 months?...
I tried MMS about a year ago. It was one of the worst things I've ever done in my life. I was ingesting it, which was fine, but I decided to make several spray bottles of MMS + DMSO and spray it all...
Thanks - I've noticed that my flatmate has a horrific cough, and sometime throws up in the bathroom. I've decided to get out of this flat as soon as possible, even if it means (at 29) staying with...
Yes I have moved to new place about 3-4 months ago. It is quite mouldy, and I don't like it so I'm planning on leaving soon. It would surprise me that this short period of time could make me...
To provide a bit of an update.. I feel my body has been deteriorating quite significantly over the last few days. I've been left with a dull headache where the lymph nodes are, horrible nausea...
Thanks so much for the comments, honestly I wasn't expecting any. And I was quite embarrassed to re-check this thread, because I sound weak and pathetic. I guess what's concerning me the most right...
I don't know how people make it through this life. I just feel like my life has been filled with constant trauma, struggle, and pain. I've made progress with my illness over the last few years, and...
Thanks RainyCloud, I appreciate your response. I've always had incredibly thick, dark, strong hair and a perfect hairline, so it has been very traumatic to lose so much hair in a matter of months. I...
A few weeks ago I posted here about the insane hair loss I've been dealing with. I have been experiencing a strong tingling sensation in my scalp which feels like bugs/parasites crawling around my...
I have had issues with my scalp for probably over 10 years now. It's often itchy and I get flakes that come out when I run my hand through my hair. I've suspected it's some form of psoriasis, but...
Thanks for your reply. It is just very strange that it came out of nowhere, a few months ago, and hasn't stopped since. I have had my thyroid tested and it has always come back as fine. I have lyme,...
I was under quite significant work-related stress a few months ago, but it would seem odd for it to continue this long if it was from stress that long ago? I haven't stopped an adaptogenic herb, I...
About 3/4 months ago I started getting weird tingling sensations within my head/scalp area. Ever since then I've had quite significant hair shedding - i.e. multiple hairs on my hand when I run my...
Yes the feeling does vary. I can go whole days without feeling anything and then it comes back again. It can feel different depending on the position I'm in too (i.e. lying on my side). My blood...
That's interesting. I wonder if I have this, I'm just not sure how to distinguish between this feeling and actual heart issues. What does costochondritis feel like to you?...
I had this symptom. I have Lyme and bart. My PCP sent me to a cardiologist when I mentioned my issue. The cardiologist said I had leaky valve regurgitation. But once I told the cardiologist I had...
Thanks Traveler. I often get my blood pressure checked when I have an appointment and it has always returned normal (according to my doctor), so hopefully this isn't an issue for me. Sorry to hear...
Hi Purple, No I have not received the COVID vaccine. It is actually not available for my age group in my country at this stage....
Hi everyone, I wonder if anyone has any advice regarding this heart pressure type of symptom? It's not a feeling of pain but a feeling of slight pressure in my heart region. It's not particularly...
I used to get this a lot when I was very unwell. Nowadays, I rarely get this, which is nice. Improved with long-term treatment....
Hi everyone, I've been taking tramadol for around 5 years now every single day. I don't want to take it, I hate the stuff, but sadly it's the only thing that helps me with the pain. I want to get off...
I feel like I've been in your exact position - I was 24 years old, struggling for 10 years with no answers from any doctors.. extremely close to death. By some miracle I found out it was lyme and co....
Thanks a lot dcd. I'm hoping that it's not serious - although I'm sleeping most of the day at the moment and unable to work which is really tough after spending so long getting my life back into...
Hi all, I have been doing really well (about 80% improvement with 3-4 years treatment) until recently when my kitten died and this caused me a lot of grief as I heard him dying and couldn't save his...
Do you also have horrific herxes when you use it? I can't use it very often because it knocks me out for at least 3 days, sometimes weeks, with very intense herxes. No herb has given me these kind...
Its important to note, in response to my above post, that the device that I use is somewhat limited compared to most machines I assume. It only has one option basically - it oscillates within a...
I'm not a rife advocate or anything, and I've never used the official version... But I can only speak for myself and my own experiences with the Scenar device. I believe that what I use (the Scenar...
We had some mold removed from our house about 1.5 years ago, I don't think there is any more but maybe I'm wrong. If I have mold toxicity inside my body, do you have any recommendations for treating...
Thank you, I really appreciate all of the responses. The trauma is certainly something I have to deal with at some point. For now, it seems like my symptoms are fluctuating between lots of pain and...
I purchased a device called a Scenar. I think its essentially the same as a rife machine (i.e. emits pulsing electromagnetic frequencies). I bought this because it was relatively cheap (like $250...
Hi everyone, I'm wondering how you all deal with the depression that stems from this illness? I have probably improved approximately 50% in the last 3 years treating which I am very grateful for....
Hi, I used the standard buhner herbs which did help, but I think I made the most progress from using a rife machine (similar to the spooky2). The rife was extremely brutal in terms of the herxing...
I am sorry you are struggling so much. All I can say is that around 3 years ago I had horrific nerve pain throughout my whole back and my legs. It was unlike anything I have ever experienced and I...
Although, I have looked at the ingredients of the adrenal supplement that I am taking and it contains glycyrrhiza glabra (liquorice root). Apparently this has side-effects similar to prednisone? That...
I thought it would be appropriate to mention that I have tried an adrenal supplement. I have gone from waking up at around 12-2pm every day, to being able to wake up at around 7.30am. My energy...
Thank you Garzie. This is a helpful list....
I'm not sure. I've had my thyroid tested a couple of times and the levels were all fine. I've taken thyroid supplements in the past but threw them out because I didn't notice any improvements....
Thank you Mark. Have you had adrenal crashes? I will look into that book. I found that when I was on an extremely strict diet (only eating meat such as chicken, beef, and a small selection of...
Thank you very much for the reply, I appreciate it. In between the crashes I seem to be doing quite well (I have been treating for about 2.5 years and a lot of my symptoms have improved). I am a...
I am taking a lot of different herbs and supplements such as: astragalus, collodial silver, magnesium citrate, coenzyme-Q10, JK, cats claw, cordyceps etc. It seems to have gotten really bad recently...
Hey, I sometimes get extended periods of crushing fatigue that I just cannot shake. It feels as though I haven't slept for days and am on the verge of passing out, even if I've had a long night of...
Hi WalkingbyFaith, How would you describe the electrical pains that you get?...
This is really interesting. I never thought HSV and EBV could be the culprit with all of this pain. Is it possible to treat these viruses? From what I've read it seems HSV and EBV cannot be cured?...