That's great that she's making it work. Most of the success stories I've heard around functioning with Lyme involve people running their own businesses. I guess if it's successful it can buy you the...
I think the mistake people make is that getting a Lyme diagnosis after having gotten put in a bucket like CFS, Fibromyalgia, etc means you actually have a decent shot at beating the illness. That was...
This is probably going to be depressing advice, but I would probably reconsider investing several hundred $ dollars in your schooling if you are seriously ill with these infections. Granted, I don't...
My jaw has been the last stronghold of Lyme/Bart/Babs and nothing has managed to get it out of there over 10 years of treatments. I got my wisdom teeth out 20 years ago and Lyme went crazy in there...
Wow congrats! That's amazing results with DSF. Where were you at in your Lyme treatment prior to starting DSF?...
Not sure about others here but I feel like completely normal on benzos no Lyme symptoms at all. It's been this way since my teens when I didn't know it was Lyme. Just marvelled at how my neuro...
It's soo difficult to work & treat at the same time. I've only actually worked 6.5 of the past 10 years. I've managed to save enough during the working years to be able to take time off, but my...
This is what I'm suggesting could be an alternate explanation for Bart improvement after taking these anti parasitics: "Chronic helminthic infections induce predominantly Th2-type immune responses...
I guess that is what I was wondering about in an earlier comment, are these antiparasitic benzimidazoles truly in the same family as the antifungal azole drugs which seem to have some anti...
I'm just trying to understand what exactly it's doing. It's definitely hitting something in my jaw/sinus in locations that Bart abx do. However I have been getting night sweats since starting it...
I just found a paper which would seem to indicate that fenbendazole doesn't kill bacteria or protozoa: "We conclude that the current work suggests that treatment with this specific worming agent does...
It does seem to be killing Bart somehow, and given how hard it seems to be to get Bart into remission I'm happy to have another tool in the box. There are a lot of stories of people's eyes healing...
I have come across a few stories. I find it odd that the antiparasitics would hit Bart though. I wonder if they are killing it directly or if by killing off parasites it shifts the immune system...
Also found a group that uses Fenbendazole to treat Morgellons and Lyme. Here's their protocol: http://cancerprogram.weebly.com/uploads/1/4/2/6/1426390/fenben_protocol.pdf FB group:...
I guess these drugs are part of the Benzimidazoles group. Not sure how closely related to the 'azole drugs' which are antifungals....
Thanks for posting about your experiences with fenbendazole. I just recently started albendazole - currently taking 200mg / day. It is making me herx a lot and to me it feels like Bart herxing. I've...
Could be reacting to cilantro if you have significant heavy metals....
I've found most of my most intense herxes have come as a result of some kind of major biofilm collapse. These are also the most 'productive' herxes in that I get a big level up in improvement...
Thanks - great to hear you're working again!...
I'm currently seeing another ND in Dr MB's office and she has me on Rifampin and Minocycline. She did mention that she can't prescribe Mepron, also Rifabutin is not within their rights. Debating...
Hey, hope you're doing well these days. If I recall you're in BC and also have done a bunch of antibiotic protocols. I'm wondering were you were seeing a Dr in Canada or the US to get prescriptions?...
Someone posted this the other day: "I wanted to reach out with an update now that I have successfully completed my treatment with disulfiram. I have Lyme, babesia and bartonella and feel strongly...
I've been taking Disulfiram for a few weeks now. Herxing hasn't been too bad so far. I have had some random feelings of neuropathy / paresthesia in hands and feet since starting which is...
Reading more about MB it seems to be a nootropic as well, pretty interesting. So you think your remaining symptoms are mainly Bart at this point? I had always thought that Bart was more opportunistic...
Sounds like you're tolerating it pretty well. I'm 4 doses in: 125mg every 3 days. I definitely get strong neuro herxes from it. I have had windows of feeling really mentally clear around 3 days after...
How is the Disulfiram going Rikky? Do you feel that Bartonella is getting worse while on it?...
I think he's saying some patients stayed at 125mg every 3 days because they were in rough shape and couldn't tolerate any more. By staying at this dose they are aiming for improvements rather than...
I agree, it's worth the risk I think for a chance for the nightmare to be over. At least two people in the group have reported neuropathy, and someone else reported that their Lyme Dr. won't...
That's awesome Rikky! I'm starting to get more optimistic that there could be a light at the end of the tunnel after all this. I admit I'm a bit worried about the reports of neuropathy occurring in...
Took my first dose of Disulfiram yesterday - 125mg. Felt the effects pretty quickly - inflammation primarily in the jaw and an increase in brain fog. I haven't actually really had barely any brain...
Thanks! I will post updates here. My naturopath is having me start at 125mg every 3 days. It seems Disulfiram will sort of force a reckoning with how much Borellia/Babesia is left in my system. I...
I'm going to start on it in a week or so. I saw a naturopath on Friday who is going to oversee the treatment and check my lab work regularly....
Onlynamenottaken - Thanks! turns out my mom already goes to that ND! I've been reading up on it and am starting to believe the hype. Disulfiram really seems like it is powerful enough to put people...
Onlynamenottaken - Who are the NDs in Victoria BC that might prescribe disulfiram? I'm currently in the area....
Hey Rikky, Sorry to hear you and your wife are struggling with this stuff. I am trying the mercury detox route now but it all seems like a crapshoot and it's still unclear if it'll get me to where I...
I was worried about taking hydrocortisone but this book eased my fears: https://www.amazon.com/Safe-Uses-Cortisol-William-Jefferies/dp/0398075018/ ...
I've been taking 3 scoops a day (1 scoop = 3g) for around 3-4 years now. I initially herxed when ramping up - it was like a strange herx that would cause muscles to cramp up in certain areas. But got...
Hey astroman - I've had this long time issue where I would need to eat before bed otherwise I'd wake up in the middle of the night sort of stressed and hungry and have trouble falling back asleep....
Great article, thanks! I credit maybe 2/3s of my recovery so far to essential oils. I doused myself with Thyme and Lavender oil once a week for about 1.5 years and made a lot of progress. I worked up...
Thanks for the herbal kidney protocol - will give that a try! Yeah it's strange, I had been taking 150mg of ALA in my morning vitamins for years and had never noticed anything from it. The same...
I thought that would initially be a deal breaker for me too but in practice it's not that bad. I wear an Apple watch with a countdown timer and vibrating alarm. I just wake up, down a capsule, and...
Hi Mark and also other healing well peeps - haven't been on here in a while, nice to see some familiar names! I too have joined the ACC cult, been doing the protocol for 4 months now. I was active...
I've taken a fair bit of serrapeptase over the years, and have been taking monolaurin religiously for the past couple years. I found a review on Amazon under the inspired nutrition monolaurin that...
Blue - Sorry to hear about your business. I know what you mean about all the blood sweat and tears evaporating. Lyme has decimated all my savings and retirements funds.. dreams of home ownership,...
Thanks again for your responses. I have been taking this 3 months at a time for 5 years and unfortunately I'm at the point where I just can't keep the faith any longer. In trying to recover I've used...
I appreciate all your words of support. I just feel like I managed to slog through life for 20 years with Lyme, and managed to recover to some extent over 5 years of treatment. I'm only throwing in...
Rikky - I haven't tried LDI. I'm just a bit tired of Lyme roulette at this point 5 years in. gfields, I agree stress definitely makes things worse. I hope you manage to navigate treating Lyme while...
So I thought I'd post an update of my recent experience trying to find a job. I haven't worked in two years and despite not being in remission decided to try to find a job. I figured if I went any...
I just started looking for a job this week too. I'm not in "remission" but I hope I'm well enough. To be honest I really don't think very many people ever recover to the point of being 100% well and...
Yeah sweating is one of my last symptoms I've been trying to eliminate. The strange thing is that I would never really sweat too much before I started treatment. I would use the sauna and sweat a...