What have your Bart symptons been? I have it and have been on Rifampin 2 months and Azithro pulsing for 5 months. My pain has been chronic for 8 months and hasn't changed as I was diagnosed with PMR...
Thank you for info!...
What exactly are everyone's symptoms with Bartonella? I started Azithromyacin last Dec and now 1 month on Rifampin...was supposed to do blood work again to check on liver and Bartonella....
Can I ask a silly question? What is MCAS? I started Rifampin 2x/day, 150mg a week ago along with the Azithromyacin (300mg a.m. only, 1 week on 1 week off) which i started in December. Fighting...
Running wild - I have Grovers Disease as well. Just saw dermatologist and it's from overheating when you work out usually as tiny red spots over chest and stomach - my back is severely dry as I do...
Finally after months of this severe muscle, joint inflammation with new Lyme's WB and Bart positive testing, I have been diagnosed with polymyalgia rheumatica. I thought it was solely the Lyme's so...
Solaris - yes I've been on 200mg doxcy finishing 2nd month and have been told to renew. Just started 250mg azithro for a week, then 500 for 1 week, then 1 week and repeat with 500mg for 2 weeks on...
My LLMD just had me start pulsing azithromycin as 2 weeks on and 1 week off. I'm on 2nd month of doxcy as well for Lyme and Bart - will see how this goes! Newly diagnosed with both....I understand it...
Just reading this thread - I have severe inflammation in all joints and muscles, hit me in July then diagnosed in Aug. I was a big triathlete diminshed to minimal excercise now. Using motrin...
I was initially diagnosed w Lyme in Aug through LabCorp WB test...just started with LLMD on 2nd round doxy when Bart diagnosis came in last night from Igenex ($500). 10 strands(?) and 2 were...
Great to know about these lab ordering sites - I'm sitting on lab work issued by my LLMD to see if insurance will cover any of it. Lightlife - I too am in MA and have spent a couple of months trying...
Good to hear such positive outcome! I too had read about this and is is accessible at several places throughout MA. I have it bookmarked along with the other therapies I've been trying to read...
NicHostetler I agree! The mornings are the worst and I'm new to this...the pain and stiffness makes me panic that I'm not researching quick enough to take next steps. I can hardly get out of bed -...
Wonderful! And may we love what life we have and love those who help and support us!!...
Just watched it - Blue Cross Blue Shield is the one denying coverage in Mass. even though the law for coverage was passed in 2016....
I missed it! It was on Fox News stemming from the lawsuit in TX against 5 large insurance companies. I thought Mass. passed a bill saying insurance did have to cover ongoing Lyme treatment but wanted...
Thank you so much for these references! I have list from lymedisease.org as well to start calling. I did consult w Lyme Center so far. Probably cancel Dr at Lahey as he won't work with alt therapies....
Interesting you say this - I tested positive on WB for band 23 and 39 and the infectious disease specialist I have been trying to see (he specializes in tick borne disease supposedly) feels I do not...
Looking for receommendations - getting the run around.......
This is so very sad - and all of you who are fighting, the daily work it takes, is the hidden gem in everyone. I noted that there is a petition floating around I need to google. Another friend who...
Hi Cherylfelice As far as TMJ I did splurge on a custom mouth guard which has worked great. Had to do it years ago but just had tooth remoced also due to root canal infection, prior to new diagnosis...
Thank you for well wishes and input! I found this particular doctor from a review by Boston magazine of the best Infectious Disease Drs in MA. I had to go into each profile to read their expertise...
What a wealth of information here but quite overwhelming. I was a very athletic woman in my 50's when I took a spill in a race in June and have gone downhill since, finally asking for lyme testing in...