Hi Girlie, Thanks for answering my questions! Glad you’re doing well!...
Hi all, I need rifampin, but can’t tolerate it. I used to years ago, can’t now in my late 40’s. Last time I took it, it caused bad adrenal surges. Raised cortisol, not a good experience. I’ve heard...
Thanks for responding! Yeah, I have high EBV antibodies and was wondering with those if the protein spiking from the shot and the antibodies if that had anything to do with it....
I know...right? After all this cr!p we deal with on a daily basis, some of us have the displeasure of actually seeing the Lyme in action. Ugh, I’d be like “shoot me now!” Brave person that has this...
I can’t say whether or not one should get the vax. I personally think it should be left up to the individual. I will merely share my experience. I was dx’d with Lyme in 2014, and have treated off and...
Anyone have an aggravation of symptoms after their vaccines of vaxxed? I got my 2nd shot 8/13 of Moderna and have had a flaring of my cranial neuropathy and balance issues. Also terrible fatigue....
I believe heavy metals are largely to blame and I regret not starting there first and working my way down....
Garzie, Thank you for your explanations and experience. You’ve comforted me! Going for more studies and pray it’s not as serious as it seems. It’s definitely not electrolyte related as I’m pretty...
Hi all, I’ve been dealing with tachycardia since May after a short course of Rifampin to which I had to abort using due to frightening adrenal surges. I have slight chest pain and shoulder pain but...
Sorry to hear about you not feeling up to par. I haven’t noticed anything other than my usual aches and pains which don’t alter much....
If I may, I’ve researched heavy metals extensively about 4 mos into my second flare of Lyme which began the end of April 2019. I’m convinced this, along with a poor genetic ability to detox, is the...
Huddie, Yes, a little it has. Nothing awful though. My symptoms redistribute. When my head improves my gut flares and vice versa. I associate my Lyme with heavy metal toxicity....
To Huddie, No, I had noticed a reprieve in my brain fog/lightheadedness bobble head when I walked a day before after nearly two years of hell. So not in remission. Today I felt it a little come back....
Hi everyone, I’m about 18 hrs post Covid vaccine. I got the Moderna. I have a very sore arm and I noticed some of my Lyme nerve pain mildly flaring, but nothing unmanageable. We’ll see. Cheers!...
Yes, I’m going through the same thing. Even when I took things to lower the inflammation. The body thinks it’s under attack....
I’m all about following best practices. Best wishes at Jemsek’s clinic!...
I don’t mind wearing a mask while everyone is going maskless or practicing social distance and avoiding crowds. It sucks, and I don’t know how helpful it is but it seems that’s my best option. 😖🙁...
To be honest, I realize this is the issue and completely misdiagnosed or unrecognized by my LLMD. It was my neurologist referred by my LLMD that raised this as a possible underlying cause of my...
Okay, thank you! I’ll ask!...
Okay, thank you all!...
I’m currently suffering terrible POTS symptoms as result of a Lyme flare that kicked up in 2019. As such I’m unvaccinated for Covid. Irregardless of all the controversy, I think it’s wise to...
I’ve heard Sanoviv is better. They have a Facebook site you can join to see for yourself. Which country are you from?...
Girlie, thanks! I’ve heard of rifabutin and I remember mentioning it to my doctors. I’ll try again. How’s this different from rifampin? Does it raise cortisol? Thanks again!...
I get this. Tested pos for Lyme but negative for Bart even after an expensive test with a specialty lab. All symptoms are Bartonella like not Lyme. Do you have amalgam fillings? They can cause these...
Hi, I joined a year ago. Was dx’d in 2014 due to a pos IgM & correlated symptoms. Treated for 6 mos aggressively and improved only to gradually have symptoms return in 2019. They’ve merely changed....
I read about her years ago suffering from Lyme. Still little is done about it in the every man’s world....
I forgot to mention this is a Marcons infection in my head. But I’m mold negative. So the treatment and antibiotic is specific. Has to be Rifampin. Herbs won’t even come close to touching this....
Hi guys, I visit here every now and again. I have Lyme and strong Bart symptoms. Have a seriously inflamed vagus nerve. Was treating w/Rif 150 mg’s twice per day & was really helping and herxing....
Thank you for the tips! Will do! This helps a lot!...
Okay! Thanks! I’ve been doing it up to three times per day. Would you stop or keep going?...
I am in San Diego and have two names of Lyme Literate Doctors if you DM me. Thanks!...
Hi folks, It’s been a while that I’ve posted in this group. I have Lyme/Bartonella and other issues. In the last four mos have been dealing with cranial neuropathy, brain fog, and occipital neuralgia...
No loss of vision, but I have gotten spots and floaters....
Thanks all. Taking milk thistle and liver supplements. The IBS is manageable if I don't take the ABX and there's no diarrhea. My doctor said to stay on it, that it's my body reacting to it. We'll...
Not surprised. So sad....
I'm hugely concerned and think this why we have such a plague of autoimmune diseases. Technology and the EMF toxicity....
I'm going through the same thing. I have bad neuropathy in my arms and was taking Minocycline. It was really hitting the neuropathy and no sooner. Cramps, bloating, no diarrhea, but don't want end up...
Some believe have neuro dominant Bart like me and only occasional joint pain. Some people have joint dominant Bart. That must be what you have....
Thanks for sharing this...many have this problem on top of Lyme. Every little bit helps!...
Perimenopause, or stress? Stress really does this to me. Can you have a u/s to make sure it's nothing structural? It sounds hormonal whatever it is....
Hi folks! It's been awhile since I've been here. My hope was to treat this flare, have my amalgam fillings removed and move on to heavy metal detox through the Cutler Protocol. Best laid plans. I...
Interesting, post. I know that I recently in treating a near eight mos. long Lyme flare, have tested positive for neuronal antibodies. I was told it can be another marker for Lyme disease....
I wondered that too Carlnpa...about the head pressure. It's certainly making a difference in my inflammation. I backed off of the 100 mg to 50 and another 50 four hrs apart. We'll see. Thanks for...
Cignet, I've noticed good things with L-Glycine. They say this is a good way for the liver to build up glutathione. Better than NAC....
Once again Cignet, you never fail to offer such and wonderful suggestions! Best to you friend and thanks! 😉👍...
Hi folks, checking in after a two mos. break. from Healingwell. Hoping everyone is as stable as possible. After Xmas I thought I'd gotten better but wasn't the case. I am now really nearing the end...
Walking By Faith, Thanks for sharing that! I appreciate it. I have concerns and doctors have recommended I wait a while until I'm a little more stable. We'll see. Best wishes to you for 2020!...
Happy 2020 Cig! I will continue to email you also! Thanks for the well wishes! Praying for positive changes in the next coming year for you Cignet and everyone else at Healingwell-Lyme!...
Thank you Christianw/Lyme and Girlie! Thanks for your support and wishing the both of you the best in 2020 and throughout! I'll probably be back...but wanted to touch base and let those that have...
Hi all, I haven't posted much in the last couple of weeks. Busy with holidays, family, and really side-lined with herxes and effects of the illness. I wanted to thank you all for your support over...