I don't feel toxic so much as I feel like I'm about to have a stroke. It's no skin off my nose going to this appointment. At least they can scan my brain and see if anythings actually happened which...
Thanks dcd2103 I'll make my email available in the profile. I'm too sick for a phone call if I'm honest. Sounds stress me out to hell, have a spaz attack whenever something unexpected happens....
I'm untreated here. Except for a 2 week course of doxy that was underprescribed. I was this sick before I took the - the disulfiram just made me rage, that's about it, I did go fairly ham if you look...
My head feels so horrible and has done ever since doxycycline in October. I was in two minds about going to neurology, but I've decided to bite the bullet even though it'll cost me a fair bit to...
Quin No joke. This is some scary territory to be in. I'm coming off this stuff now. Gonna hope that herbs can fix me up. I haven't got a clue as to what to do with myself. Seriously feel like I...
It's good to hear you're alright RainyCloud. I feel like I'm on deaths door if I'm honest. I've barely been sleeping for more than 4 hours a night for the past 4 months. My life is so horribly f*ing...
I overreacted a bit. I appreciate your patience, Babs. Thanks for clarifying. Indeed, God does turn these things into blessings....
I'm gonna give the Skullcap a go as well. I have some on the way this week. If it helps with the pain then I'm sure it'll do me some good. It's good for brain inflammation as well....
What was your solution? I'm trying my hardest to keep the faith. Trying my hardest to get my body back into a state of functionality, where I'm not fearing fighting off a seizure 24/7, not sleeping...
I'm waiting for some chinese skullcap and taurine along with a kilo of turmeric. Then I'm gonna get on to some cat's claw as well. Might as well give this disease hell....
I'm only using alka selzer for now. I'm using the buhner herbs, japanese knotweed, Gou Teng, salvia and some turmeric. It's definitely the DSF. I'm taking it back down to 62.5mg tonight. I'm worried...
oregonhay I'm backing off right now if I'm honest. 1 week at 187.5mg and I'm having the most brutal rage attacks. Praying that the CDC bastards have a nice place with their names on it in the lake...
JovaLyme, See this is exactly why I just settled for living with OCD and not telling them that I thought I was hearing voices because it was just like that, intrusive thoughts. If I had told them...
I've sent him one. I reckon he's okay, it's just he went in hard on the disulfiram which is known to do this kind of thing to people. Couple it with the living hell that is lyme disease and you get...
You're telling me. I'm just gonna pray and hope for the best here. Hope your internist can help you out. That sounds horrible and funny at the same time. Insight after insight into what does what! I...
Thank you BabsBunny. I appreciate your end note. It can be a bit much to take at time, this illness. I've been really wrestling with it recently. The new testament, is very confusing, and I have...
steelogreens I've literally been having raging herxes, literally punching cupboards herxes because of the brain inflammation. This disease is so awful. I've got to laugh, but Turmeric knocked it...
I agree with you. Religion is disgusting. I believe in a personal relationship with God, a higher power, the creator. The bible talks a lot about these things, I've read into Daoism, Buddhism and...
Pain and evil is predicated on the existence of Good. Simply put if there is no, good then there is no evil. Good does not need evil to exist though, does it? Evil is the absence of good. Simply put....
The amount of zinc needed to disrupt copper absorbtion is much more than the average 50mg. Are you sure it's not just a herx? How good is your detoxing? I get twitching as well but it's shortly...
Bartonella's really got me worried so I'm gonna increase my japanese knotweed and the cat's claw dosage as well. If disulfiram get's rid of borrelia, then helping my immune system along while it's...
Eliza, I keep on getting the brutal panic attacks when I'm trying to fall asleep. It's absolutely horrible. It's a symptom of both bart and babesia which is not good news for me. Gonna look into...
🔹RainyCloud, I know it's rough right now. Please consider backing off the disulfiram. It's a rough ride with lyme and I know you haven't had life easy either. You're tough, but please, we all need...
RainyCloud, Please take care of yourself. You can get through this man, for sure. Take the disulfiram down a dose because this is too high I think. Seriously, it seems to be causing the psych...
Here's my schedule again. Day 1 - November 19: 62.5mg Day 2 - November 20: No dose Day 3 - November 21: 62.5mg Day 4 - November 22: 62.5mg Day 5 - November 23: 62.5mg Day 6 - November 24: 125mg Day 7...
That seems normal enough. All the same ingredients are in my serrapeptase, and most other supplements. Most of them are anticaking agents and fillers, like magnesium stearate. Nothing unusual here,...
Charcoal slows down the travel of food through the gut so it can definitely feel like it's making things worse, sometimes it actually can. It causes constipation so it's not ideal....
Yeah I just put them in quarters or halves but crushing them seems like a more viable approach. It's fiddly stuff lol. I also add a filler because I'm reckoning all of that air in them is going to...
Is it like reynauds? I've read that reynauds can be an autoimmune thing. That and the blood vessels are damaged by bart and babesia....
Same here lol. I hope to God it's over quick and that I feel more human afterwards!...
Agh my bad. Chlorella worked for me but I've fortunately not got any fillings at all, due to swallowing so much toothpaste as a kid! Here's a list anyway, I feel bad that I couldn't help. A lot of...
MartinK Effervescent form in capsules means that it'll do what it does in the water, in your intestines. I think that might cause a stomach upset. I understand you're worried about neuropathy. You...
That sounds awful. This disease is just vicious. You could try Chlorella? It works pretty well. Also deals with heavy metals as well as die off. Wishing you health. 🙏...
Martin K I'm not sure if that's a good idea, the effervescent in the enteric capsules, it might make you sick. If you take the effervescent one, take it normally and the zinc should take care of the...
Some people are having success, others not so much. There are facebook groups and there is a lot of information on them. However those of us on here will do the best we can to provide information...
It varies, some people don't get much. I got fatigue as soon as I took it. It varies for a lot of people. It seems to be related to the amount one is taking, some people start herxing after...
I just had my first herx, a bit more of a headache than usual today. A bit less sleep. It's been 2 weeks since I started. I had a course of bactrim a month ago and it didn't do anything for me, it...
What kind of cinnamon and is OoO oregano oil? Are there any other supplements you're taking? How long ago did you stop the disulfiram?...
So here's me on day 14. Feeling considerably better. Had my first major herx, a bit more of a headache than usual this morning. (Still here wow. Didn't expect this. Turmeric barely fazed it.) My...
A lot of people claim Bart herxes on this. I personally don't know. Before I started, I had a course of bactrim, which did nothing. I'm hoping to God that I do not have it. If you go for it it's...
dcd2103 Here's some of the FB discussions on autoimmunity. Most people are alright on it with issues like Sjogrens, MS, SFN and such. If you can speak to a doctor about it....
I'll go through facebook and compile a list of autoimmune sufferers. I've found one now but I'll make an upload for it. It depends on individual tolerance but the aim is to have 3 to 4 months at max...
steelogreens Always good to hear from you. Especially on the up. That sounds excellent. How frequently have you been taking breaks? Can you summarise your schedule up until this point? I'm...
That sucks man, how'd that happen, you weren't mugged were you? Hope you can sort something out. I've got an old Galaxy S3 which is good enough for me right now. About £50 or $65 on ebay, worth it I...
oregonhay, Good to hear you're improving. I'm definitely gonna wait for Friday before I try 250mg if that's your experience. 187.5mg is definitely making a difference for me right now and I stink...
🔹RainyCloud, Most likely. I'm gonna order a load of turmeric as well. Just took a teaspoon in the tiniest amount of water and felt some relief, also good for the liver too! Along with the ginger and...
It seems like you're taking all the right steps. Best of luck, I wish you health....
I don't think it would cause you any harm. A lot of people are desperate to get better and of course, worried about having bad reactions and so I think they worry themselves about nothing -...
God is not responsible for our pain. God sustains us through it, through these hardships. I refuse to believe that God is the author of my pain and grief. 1 John 1:5 "God is light; in him there is no...
Here's my schedule for the past fortnight: Day 1 - November 19: 62.5mg Day 2 - November 20: No dose Day 3 - November 21: 62.5mg Day 4 - November 22: 62.5mg Day 5 - November 23: 62.5mg Day 6 -...