@WV Mike I kept a daily log of how he was doing right through his disulfiram and I'd have liked to see him 100% before giving it all up, but he's a young adult and I had to support his decision. At...
It has been several months since I last posted - and even now I am reluctant to rock things that seem to be so good. So my son decided himself back in April that he had had enough pill popping. He...
Thanks for this Quin. He hasn't exactly relapsed - he has never shown any signs of babesia before this - his LLMD didn't think at the start that was necessarily an issue but she did suggest it might...
Girlie - I may be clutching at straws somewhat, but what are your thoughts on this happening when the other infections start to get under control a bit - as in the babesia rises up when the...
potsnpans bloods due to be checked on Tuesday. WBC has fluctuated while on abx. Last check these were slightly low. ALT slightly high - but has just moved to 250 DSF hence reduced back to 200. We’ll...
Thanks for this - I wonder then if the symptoms might have been triggered from treating with the disulfiram?...
Seeking some wisdom from those who might know. Can someone have babesia but not know it? Back story (this is my son) positive test for borrelia following EM rash in Nov 2018 treated in acute stage...
Good luck with it and listen to your body. I’ve not been updating on the forum for a while as I think that there are daily ups and downs but this week we have seen a turning point. To summarise my...
it's been a while since I updated but this is where my son is up to: He is now on day 31 Days 1-14 100mg every other day with no issues. Day 15 - current 100mg daily. The first week of that had no...
@UnsightlyCignet I thought you and my son were on a similar timescale but he is still taking every other day for the moment Day 1 – November 19: 100mg Day 2 – November 20: No dose Day 3 – November...
Ok, thanks Lapis_29 we can take a look at that. We see the LLMD in a couple of weeks so can talk it over then. Cheers...
@JovaLyme - the brand of Disulfiram we have is from the Actavis group. Each pill is 200mg each and we cut in half. They are small and round (a bit like a paracetamol) so would be difficult to cut...
😊. He’s my baby. Always will be. His poor wee brother is now permanently on tick alert and on the case whenever he’s off doing what teens do...
That’s interesting thanks UnsightlyCignet. He wears glasses (all day) anyway so he’s used to having his poor mother’s rubbish vision but the additional Lyme vision has bothered him a bit. They think...
Latest update: 19th Nov - 100mg 20th Nov - 0 21st Nov - 100mg 22nd Nov - 0 23rd Nov - 100mg 24th Nov - 0 Reporting fatigue (but did have a busy family event at the weekend, so that would have been...
Hi Does anyone have any experience with this diagnosis - my son has just been to see an eye specialist about some of the vision problems he's been experiencing since Borrelia / Bartonella decided to...
That's interesting. I had the pain around the right eye/temple on disulfiram as well. It ended up worsening and becoming absolute agony. Please watch that carefully. I ended up with severe...
Ok, I'll try to update how we are getting on with things here with the Disulfiram, but I am reporting things second hand as I am the mother not the patient... Day 1 - 100mg taken in the evening with...
Unsightly signet - my son is joining you having had day 1 dose of DSF yesterday. Today he feels more tired than normal. He’s staying on his combined abx too as he’s borrelia / Bartonella Wishing you...
Quick update. White cells back in the normal range so we guess that does indicate antibiotics could be the culprit. Was good exercise taking a break from them - he took 5 days off and now back on the...
Thanks Girlie. That’s reassuring to hear. I’d like to think that a break could be useful to see how he’s doing generally but it feels like there’s no right or wrong direction with all of this stuff...
There’s always a plethora of great advice on here so hoping to hear some thoughts / experiences with this. My son has been on triple antibiotics + herbals since April 2019 for borrelia/Bartonella/chl...
Thanks for your thoughts everyone. I should add that I asked his girlfriend today when they showed up as I spotted them when he came out a shower while I was working from home. Go figure - she said...
Just wondering - we noticed a few stretch mark like marks on my son's arms this morning. He's been treating triple abx + herbs since May (initially doxy + azithromycin + rifampin but switched doxy...
Thanks auzzie. He decided not to take any after two very tired days. It may have been a herx reaction to the minocycline or he wonders if it’s his body as much later in the day he had a burst of...
Sadly not that he’s ever shown before - I did wonder but then know I cook with soy and he’s not shown any reaction before. Thanks though...
Thanks for your thoughts. He has had some side effects of the mino and it could be that rather than the glutathione. We’ll try again another day and see if the same thing happens and perhaps reduce...
I've had a search through past posts to try and find out if this afternoon's sudden onset of drowsiness in my son is related to him trying Tri-Fortify Liposomal Glutathione for the first time. He...
Thank you for this advice. I think some of the herbal supplements are designed to deal with the cyst form too but I think you’re right to be more focused on his symptoms rather than any blood tests....
Thanks Girlie. He's been on this protocol for 8 weeks - and had a few weeks more doxy before he started it. The clinic retested him using the German BCA lab and the markers they use for the three...
Hi. I've been lurking around for a while and gathering a lot of really valuable information so thank you to each and every one of you. I'm a Lyme Mum. My son developed a EM rash but took a bit too...