Does anyone else have or have had severe debilitating eye pain 24/7 and horrible visual disturbances? Mine has been going on a couple years but leveled off until July and the visual disturbances have...
It also showed that I had sometime had mycoplasma pneumonia and hhv 6 which isn’t the sexually transmitted herpes and ebv if that helps any....
I think it was band 41 positive and 23 ind. on one and band 41 positive on the other. I can’t remember which was which I don’t know what I done with my test results...
I tested with igenix only one band was positive and one was ind. which really makes me wonder. Have suffered beyond words Lord please all I ever want is just a glimpse things are finally healing back...
I don’t really know if he was ilads trained seemed really knowledgeable but when things continued to get worse I couldn’t get any help. I’ve stopped all treatment everything that was going on just...
Thank you for the reply. I have actually stopped all my treatment it only being a clinical diagnosis and things dramatically getting worse. The doctor I’m sure meant well and was trying to help me...
I tried and tried to get help with the eye pain and visual trouble he didn’t know what to do. They done a lumbar puncture and tested my csf for lyme and it came back negative. So makes me wonder...
I always go to an opthalmologist. I’ve been to two neuro opthalmologist retina specialist and three more specialist to no avail. Lord please all I ever want is my life back to normal. I have been...
Yes I was admitted into university of Louisville they were very caring and believed me 100 % just could not figure it out. This has taken me below rock bottom. To be so young all I ever want is my...
I have been dealing with an undiagnosed illness for over a year. My worst problems are severe eye pain and visual disturbances that have dramatically got worse. I have been to so many specialists had...
Thank you...
I am still having the neverending eye pain and visual disturbances that are beyond my worst nightmare. I was hospitalized at university of Louisville week before last and they couldn’t figure it out....
No idea whatsoever. Started out of the blue. Just progressively gotten worse. I’m lost for words on what to do...
I have an opthalmologist I see and have seen retina specialists and many more who all say my eyes sturcurally are fine. This is terrible for your vision and eyes to keep getting worse with no help....
mpost, did you have any of the eye issues like I’ve described along with terrible eye pain?...
It’s one of the few things I haven’t tried. I’ve saw people talk about it never have got to try it. I’m Praying fighting this babesia now will finally take care of it. It’s gotten so much worse I’m...
I’m still on the rocephin iv for a little while longer but he put me back on zithromycin and malarone along with an anti viral medication hoping it would help with my eyes. I’ve not really...
Has anyone else had severe eye pain and visual disturbances that no one could help with with babesia? So far my llmd has been treating me for Lyme and just now started to treat babesia aggressively....
Can your diet really affect your eyes badly? I have tried so many things this eye pain and vision trouble is absolutely killing me. And your white blood cell being really high doesn’t always mean a...
Has anyone else had a problem with there white blood cell count going sky high then coming back to a reasonable range? Have no idea for this reason on iv rocephin at the time also. Very worrisome....
Have no idea the cause. Have been to at least five specialists two neurologists no answers. Praying this iv antibiotic and God will take away this eye pain and vision trouble. It’s about took me...
Just wanted to ask again everyone’s opinion for the best supplements and herbs for severe eye pain that maybe people have had luck with. Been checked thoroughly nothing structurally wrong. Any advice...
I had the head pressure and everything before any treatment I know last year when we were trying to figure out what was wrong I got at times where I couldn’t hardly lift my head. And had no idea what...
I’ve tried everything just one of the things that’s always there. Not nearly as bothersome as my eyes and vision but still enough to make you worry...
Does anyone else have almost constant head pressure and get head rushes very easily? And also wake up every morning with fluid on my ears almost like I’ve got out of the shower and ears are always...
Has anyone else experienced severe chronic eye pain that no one can diagnose? I also have many visual disturbances that developed out of nowhere. I have been clinically diagnosed with Lyme disease...
Thank you. There’s so much going on I don’t know what to do. If this eye pain would subside I could at least function again and start working on everything else. Everything I’ve done and been through...
It seems to happen to me the most during the morning times like within an hour or so of being awake. It is upon many bad visual problems the worst being bad afterimages with my eyes open and closed...
I have so many things going on but yet again have another random question I can’t find an answer to unless you google it and it’s definitely not something you want to hear. I’ve had mri and ct which...
My Llmd clinically diagnosed me with babesia started off with Mepron and zithromycin but ended up switching to the iv rocephin due to my eye pain and vision trouble getting so much worse. Still using...
Does anyone else have almost constant head pressure, ears that are always full that you can’t get to pop, and fluid in the ears in the morning? For me it’s every morning, not era wax, but I guess a...
I don’t think we have anything like that close to here. Is it extremely expensive?...
What scared me was the neuro op said your optic nerve looked a little funny never explained or anything said it might be because your far sighted. Wasn’t a real professional answer. But I had just...
Once again I’ve got another rookie question, after another mri and neuro opthalmologist visit because of pretty much unbearable eye pain and vision disturbances, has anyone had severe eye pain or...
Is there any herbs or supplements you can take for Bart that wouldn’t interfere with the antibiotic that you know of? I know many people have mentioned Bart but even my dr didn’t but I’d try anything...
I already posted this but forgot a subject so I don’t know if it got posted. Has anyone had any luck with iv rocephin helping severe eye pain and visual disturbances? I’ve posted so many rookie...
First of all I have been clinically diagnosed with lyme. But my worst symptoms that continually have gotten worse are debilitating eye pain and visual disturabances. Even my lyme doctor doesn’t know...
I just ordered some yesterday. Willing to try anything at this point that hopefully will help...
Ok gotcha...
Thank you. I only found the root form of capsules so far I’ll have to keep looking...
Where would I find somewhere to have something like that done?...
Can you use the capsule form of Stephania root or is the stephania tetandra better?...
What is the bvt you mentioned? I’m sorry still new to this...
About a week now. My llmd don’t even know what to do about the eye pain and visual disturbances. Beyond scared to death because it was indeterminate but he considered it positive....
I have stopped everything at the time because I could definitely tell I wasn’t having improvement...
Rochepin iv and I emailed to see if I need to stop my oral. So hard being so far away there’s not one even close to me besides him...
I have no idea at this point. My llmd won’t talk to me over the phone just through email. I’m beyond desperate...
My doctor started off treating babesia but have only got worse. Suppose to start iv antibiotics tomorrow. Praying with everything in me for a great improvement very very soon. My vision and eyes have...
Has anyone had any luck with Jernigan’s neuro anti tox 2 cns pns helping with severe visual disturbances such as terrible afterimages light sensitivity flashing lights seeing bursts of light blue...
have been having such a terrible time for so long with eye pain and terrible visual disturbances. I don’t even know anywhere for sure to post just desperate for any help or ideas. Been to multiple...