Hi Girlie! How are you?! I’m still on just the one and nearing the 6 week mark. I have my follow up scheduled to discuss next steps. I’ll ask him if we can attempt that route. Although I came up...
Thank you! I think part of it is maybe my ID (who is fairly LL but not certified LLMD) wants to take the IV route sooner due to the neurological symptoms that have been going on for at least a year...
I’m finishing up my ABX in the next week with zero changes (good or bad). My doctor had said if there was no change he would want to move onto IV. He said having done oral ABX would help make a case...
WOW I had no idea thats how that worked! How do we know if a place uses spectroscopy to measure? I had it done this most recent time at Quest Diagnostics rather than the hospital where I previously...
Are you seeing a LLMD? (Unless the ID dr is lyme Literate- he won’t be knowledgeable in lyme treatment) Are you only taking the one antibiotic? To treat these infections two or more antibiotics are...
So I’ve been in treatment (Oral Ceftin 1000mg) for about three weeks with no signs or feeling of improvement. My ID is looking to do IV if I have no signs after 6 weeks of oral antibiotics. Two...
Thank you two so much for your responses! I’ve started treatment today and am ready for the road ahead. Trying to remind myself healing is never linear....
I can’t help but feel anxious and a bit depressed between my diagnosis and starting treatment. I picked up my rx two days ago (500 mg 2x/day of Cefuroxime axetil until determining if I’ll need IV)....
Hi all! I’m a bit newer here, and I’ve recently made a post about a few different routes my neurologist has offered me for diagnosis. One being to see his ID referral, second being a nerve biopsy...
I’m newer to this forum, but I just had an EMG done a few days ago myself. I was diagnosed with small fiber neuropathy. My neuro had discussed with me that the test was normal because EMGs test the...
Pardon in my explanation above of my most bothersome symptoms. Those weren’t to say what is necessarily the worst as much as what upsets me the most or in an specific order. The SFN he also noted is...
Thank you so much for this! My neuro is patient and pushes for answers to help me but didn’t explain too much about the bands and what each means. This makes much more sense now....
I’m still new to a lot of this, what do you mean by molds? How long do you expect to be in treatment? I’m glad to hear you’re responding to treatment for it!...
Hi all! I’m new on here, but have spent the last 1.5 years looking for answers from multiple specialists, labs, tests, and second opinions. To start, I do have severe hypermobility disorder. But 90%...