Does lowering estrogen cause depression?...
Is this true?? And my doctors are all functional docs. They're all great....
This is vital and intensely useful information. Before I drop the idea completely- is there any mechanism to attach an amplifier to the headphone output that would drive sufficient voltage? Or a...
If its any consolation I have this as well, don't know why...
This makes me wonder if thats why methylene blue is so bad for me- since it's a serotonin agonist it may be lowering dopamine further. I certainly don't turn into another person taking tyrosine but...
These are all very helpful. I guess I'm wondering what is causing my chronic derealization, altered consciousness, confusion, loss of willpower, etc. Most of this sounds like low dopamine but you are...
Man, im really sorry to hear that. It's interesting you mention thyroid- my total T3 is very low but my doc is resistant to treating my thyroid. Do u still do it? What are your thyroid markers now?...
Or I should add- if anyone has any resources that they found useful? I don't even know of my issues are primarily lyme or CIRS related anymore...
I'm starting to think this is a major part of what remains with me. If I miss even one day of morning sunlight, I'll totally tank. Lately, I hagent been as strict there and my memory, drive, will...
Loski01- heck yah I'd be interested!...
What is needed for a rife to work? There is a True Rife F122 for sale near me but its just the generator. It says it hooks up to my laptop and is controlled that way. Does that sound accurate to...
These are great, thanks so much. Do these things ever come up used? I feel like it's the kind of thing that would be shared communally...
Holy cow looks like I need to try a rife! They're so damn expensive though, did you guys buy one new?...
I'm sure this has been discussed here but want to bring it back. I recently spoke with someone who had full recovery after rife (post abx) and it's one thing I never tried. What is anyone's...
Please keep us updated. I know and have heard of a few people who have fully recovered on IVIG. Here's to hoping you're next....
Indeed :/ I just think that toxins are more of my issue than infections now. I have seen a lot of associations with biotoxins and dissociation....
My doctor is increasingly suspicious that the triggering infection may cause EDS in some people and there may now be a structural issue involved. However, I have no history of it in my family nor did...
I have found even one drop of MB makes me go nuts. I wish I could take it but it just doesn't resonate with me. IR is hhygely useful and if I could afford it, would be doing HBOT every day!...
https://nycim.com/phospholipid-exchange-therapy/ I have no knowledge of NYCIM they just have a good article on it.[/quote] Did you see any improvement on the PK Protocol? I did it for years and...
What antibiotics were you taking? Dr J isn’t “shy” with them. The Bartonella/Persisters protocol was really hard. Dapsone/daraprin/rifabutin/minocycline/Ceftin/ and a few more that I can’t recall...
Gfields. I'm glad you were able to get rid of it. We're you doing treatment for any particular infection when it dissipated? And worth asking- did the anxiety dissipate, too?...
Its a blood test that tests for transcription factors associated with things like Lyme, CIRS, etc.. Basically, looking for which genes are turned on and of its the right ones associated with that...
Holy crap. It's certainly not cheap now- 750- but definitely not 2k....
That's really helpful, thanks. I have tried it so many times but like I said, even 1 drop makes me go nuts. I'll be so off the wall and dissociated I can't come down for a day. I have wondered if the...
I have seen a lot of talk around this lately and I have a few opinions. It is fairly well believed to be a mitochondrial function enhancer which could explain why it makes people feel better. It has...
Dp you guys ever have both free T3 and total T3 tested? All my thyroid markers, including TSH, t4 and free t3 are always normal. But total t3 is really low yet Dr's never do much about it. I just...
I'm curious because I've been loosely diagnosed with CIRS and did a Genie to diagnose. The lyme section came back completely normal and CIRS was slightly elevated. However, im wondering if the lyme...
Saraeli- when I treated bartonella with Dr M in Bethesda, he had me on hydrocortisone for exactly that reason. He definitely knows his way around that infection. Girlie. That almost frustrates me so...
God, I want to experience that so bad. It's been 12 years now. Do you think you have an idea which infection it was? Or maybe a more general inflammation?...
This is really fascinating, saraeli. This all sounds really vagus nerve oriented. These symptoms came on for me when I got encephalitis and its been there ever since. My issue is being unable to...
The IFS is really interesting. I actually worked with a psychotherapist for a time and her work was pretty much identical. Unfortunately, I got no help with the dp/Dr because I feel so little, I...
Yes, it is. And I have both of what you speak of. Everything is so hazy in my brain, I have no idea what is caused by what because nothing makes things budge all that much....
I think I had it early on. I keep saying to my husband “ I don’t know who I am anymore” It was a really weird state[/quote] Damn. Yes, this is verbatim it. I feel like I'm hollow and empty inside...
This has been my worst and first symptom. 12 years running now. I've heard it associated with bartonella and biotoxins (both im confirmed to have) but I have not seen improvement in it yet. I am...
Do we know if Welchol and CSM bind the endotoxins from other bacteria such as actinomyces?...
Funny, I just listened to this after being told my CIRS is likely actinomyces by my doctor. Funny enough, my neuroquant is exactly as this guy describes an actino footprint looking- with all 4...
Sandyfeet- have you recovered, though? I'm curious if some people recover without their NK cells bouncing back....
I'm sure it's been done. They used to check my NK cell function and it was low, now they're noticing my NK levels are low. So, my CIRS doctor is now focusing a little bit on infections. I treated...
I just had a follow up with my doctor today and he said he believes my inability to clear MARCONS is due to still being exposed. Hence my c4a being elevated. His belief is Actinos. I've never heard...
Blazer- definitely let us know how that works out for you. Saraeli- what is your current status, are you recovered? I am considering finally getting Neil Nathan's book but tbh, after 12 years of this...
Saraeli- I was hoping you would find this. Did you make any meaningful progress on VIP? I know we have talked about that before but pardon my memory...
Thanks, Girlie and DudeAbides. I know there are a couple here who have been through it or been diagnosed, anyway. I'm not sure of it was CIRS from mold or Lyme but regardless...... I've actually been...
I looked through the previous few pages and didn't see anything directly pertaining to that, but if this is outside of this forum's scope, than please remove it. I know there are a couple other...
WalkingbyFaith. Did yours indicate any atrophy? Mine shows 4 spots of atrophy: hippocampus, caudate, putamen, pallidum...
Thanks, guys. My CIRS score was 5 and Lyme score was 2. It says 1 asymmetry found but im unsure how to interpret which. I'm going to read through those links and see what I can pick up...
Dr K in New England uses minocycline with Rifampin. Dr M uses Clarith woth Rifampin, then switches to Rifampicin later. If you do any macrolide with Rifampin, you should be good. Also, I personally...
I haven't seen my doc tp interpret this yet and don't know when I may be able to next. I have a CIRS score of 5 but am unsure what the volume differentials indicate. If someone here has the...
Saraeli, What was the proper way you addressed MCAS from Nathan's book? Tbh I have known about it for years but haven't read it because the energy of reading a book is something I just can't muster....
Fwiw I'm testing merhylene blue in my lab right now for its potential lifespan extension. I'll have results by March and will report back!...
Wow, your guys' c4a dropped a lot! Do you attribute it mostly to infections or do you think mold/toxins could have been the principal driver?...