Hey everyone, I think my wife and I have been exposed to covid. We came into contact with a couple who had made a visit to a family who had just hosted a person who has been confirmed with covid. Now...
Hi all, So Im starting to treating again, this time with buhner protocol. I am a little confused as to what buhner means with the houttuynia herb as he recommends a different website than woodland...
We need more celebrities and athletes to speak up like her! https://www.theplayerstribune.com/en-us/articles/elena-delle-donne-wnba-season-lyme-disease This is so sad......
So they are saying people who are elderly and those with "compromised" immune systems are most at risk. What does that mean? This has never been made clear to me. Do we, as TBD patients have...
The fact that u are herxing like crazy is a sign that it is working. Maybe try cutting down on dosage like girlie recommended. Haven't heard of azithromicin having any activity against bart. Bart...
Yes. MCAS and Bart can be connected. In some cases, bartonella can cause MCAS, in other cases it's completely separate from the bartonella infection. In my case, my MCAS symptoms came after the onset...
For bart i started with biaxin + rifampin at first then switched out rifampin to rifabutin in about 6 months. Yes, biaxin must be taken in combination to the rifampin/rifabutin....
I think that would be deep tissue. There is a technique called "rolphing" (?) i'm not too sure on the exact spelling but it should get the toxins to come out and move so it's more detectable for PCR...
Hey everyone, Just wanted to posted an update. It has now been 10 months since I have gone off abx and 8 months since I have returned to work, and now 3 months since I have gotten married to the love...
Sounds like babesia to me. I also had air hunger as my most worrisome symptom. I was put on malarone and artemissinin for that and it went away within a couple months. I suggest you get tested for...
Hi everyone, Just trying to consider revamping my diet for the new year. Anyone know of any particular foods that are good against bart and that boost the immune system? Something that may even...
Yup. I had my first "regular sickness" in 2 years back in september and I remember being really happy. Although I have slipped into a slight relapse as of late, I definitely think it is a good sign....
Hang in there. You can and will get better. It will definitely not be linear but it is most certainly beatable. Make sure you are detoxing, keep a log of your progress, and following up with your...
Hi everyone, So my LLMD recommended I give either buhner or byron white protocol a try for my slight bartonella relapse. My main infection is bartonella with possible babesia. Abx treatment was rough...
Wow thanks for sharing oregon. Looks like you definitely are closing in on a definite remission! I have heard of disulfiram for awhile now and it seems to only be growing more popular in the LLMD...
Thank you HeartsinPain. Hope you are doing better!...
Hey everyone, It's been awhile since my last update. I'm kind of stuck as to what I should do. I am not sure if I may be relapsing or just struggling through some residual inflammation or something...
Sounds like babesia (particularly the air hunger). I didn't start making strides until babesia was first treated (mepron or malarone)....
Hi Alexander, Sounds like my ALT/AST levels during my abx treatment. My LLMD told me every time they would start to climb to get it retested in a day or two. Sometimes the ALT/AST levels can climb...
Hi everyone, Hope you are all doing well or continuing to fight. I would just like to drop in and say that I am now at about 97% and fully returned to my normal functions (work, church, still waiting...
Exactly. Replaced rifampin with rifabutin after I stopped making progress on rifampin....
Hi everyone, Just another quick update...I have been doing well following the end of my abx treatment and up to 97% of my old self after treating with abx (Dr. M's protocol) for bart/babs for...
Great to hear Noah! So happy for you! I am also at a similar point as I finished my abx course for Bartonella last Tuesday and my LLMD told me to stop as well. However, she didn't talk about any...
For those of you who live in the US...particularly in California and have some experience applying for disability benefits... So I just got denied for long term disability from my insurance and I was...
Hi Garrett welcome to the forums. I am a 29 yo male with similar acute onset as you and one of my first symptoms was air hunger. It's the sensation you describe but all doctors that I saw told me...
Hi everyone, So I am pleased to say I am on my last 2 weeks of abx for my bart treatment! I am about 90-95% symptom free now and trying to eradicate the last little bit of bart left in my system ( if...
Glad you are doing better! However, 6 months is still a bit early. Maybe try changing dosage or mixing up some abx if you plateau? Unless you are feeling closer to 100% which I know I'm definitely...
Has anyone tried flotation therapy? I've been hearing it can be good for detoxing? Is it worth the try?...
Which tests are you talking about? Blood tests are run periodically to test for safety (make sure your other organs are not damaged during treatment) but I don't think they determine the efficacy of...
My doctor friend is trying to understand my condition and the whole phenomena of herxheimer reactions (herxing). He thinks that it is only known to occur in spirochete organisms (aka lyme, syphilis,...
Thanks for the quick reply Girlie. I am still on the 300mg, my doc wanted me to hold until I see an ophthalmologist for a baseline eye exam as 600mg on rifabutin can sometimes lead to uveitis. But...
Hey everyone, So I have been treating for bart and babs for about 8 months now. I started with biaxin then added rifampin then added malarone and artemisinin. Then I replaced rifampin with Rifabutin...
For those who have recovered or are significantly better, let's talk about herxing towards the end of treatment. I am currently around 80% on my good days an only herx maybe 1-2 days per week....
Sounds like babesia or bart. I've had those exact symptoms. Please don't give up hope, it really does get better with treatment!...
Wow.. that is a relief to hear. Thank you Astroman. Hopefully I will recover as you have!...
Thanks seb. I have heard good things about the Byron white formulas. Will ask my LLMD on tues. What kind of liver detox do you do? I do liposomal and intranasal glutathione, NAC, milk thistle...
Was frequent urination the only symptom you had? Did you have burning with urination?...
Alisia, welcome to the forum. I too was positive for Yersinia Enterocolitica through quest...my LLMD didn't see it as too big of a concern though. It usually isn't too pathogenic in patients. Your...
Hmm yeah I remember you mentioning that you had liver enzyme issues early on. How high did they get? Also, yours never came back elevated again? How often do you do safety labs? Mine has normalized...
Hey guys, So just got my safety lab results back and my liver enzyme levels have increased considerably... (AST - 63/ALT - 128) ... I'm more concerned about the ALT levels as the highest they have...
Same problem. Does it seem like your energy dips after you eat? What is your diet like?...
Aww.. thanks Heartsinpain! Does mino have anti-inflammatory properties? Yes I am already on LDN 4.5mg it's great. From what I remember, we started treating around the same time. Great to see you are...
Hmm Thanks guys. Great advice. Yeah, not sure if I have lyme or not but pretty sure bart is still my main infection. I have a followup on Tues with my LLMD so I'll ask her if I should rotate meds....
That is a valid question.. my story just doesn't make sense that I ever got bitten by a tick. Also, my symptoms tend to point towards bart and babs rather than lyme although I know that quite a few...
I am still taking rifabutin with malarone and biaxin, yes. I did consider switching the biaxin to minocycline but my doc opted not to do that.. forgot why. I have Bart and babs, no lyme. Thank you...
Hi everyone, so I've been treating for about 6.5 months now and after making some progress on abx I feel like I haven't been making too much progress anymore the last month or so...Also, it seems...
I do still have them, if you would like to see them, shoot me an email....
the dry lips, nasal passages, gut (?), eyes ...particularly eyes can be a manifestation of sjogrens which presents in some patients with bartonella. How long does it take people to recover from abx?...
It sounds like MCAS which is a common manifestation with bartonella. Never heard of liposomal doxy? you mean liposomal glutathione? Also, z-pack and doxy alone is likely not enough to get bart. Need...
I visited his clinic back in may of last year. He diagnosed me with lyme and prescribed me BPC-157 (both oral and injection) and thymosin alpha but this was before I even trialed any abx for my...