Hi Saraeli, Thanks so much for responding. I have spoken to people at my drs office who got better with SOT. I also belong to a Facebook group devoted solely to SOTs. I haven’t really checked on here...
Hi there everyone, Long time lurker but posted only a few times. I’ve been really sick for the last five years, but low level sick for 20. Mold, Lyme, Bartonella, Babesia. I see many people on long...
Can’t sleep either. First time in awhile that I got out of bed at midnight and came downstairs to have coffee. Sleep wasn’t happening…damn moon lol....
Hi alsmith, I’ve done it once a week for the last four weeks. I take a binder a couple of times a day, try to walk a little when I can, epsom salt foot baths, lots of immune support supplements like...
Hi there! I just started doing exactly what you’re doing around a month ago and I’ve had four treatments so far. I definitely feel like they’re doing something. Just make sure you keep up with...
Hi Girlie, I had Covid a year ago and got the monoclonal antibodies. A day and a half later I was better, and the next week I felt the best I felt in years (Lyme, bartonella, mold Toxicity since...
Maybe pull back a little with your activated charcoal. As per Neil Nathan, stop for a few days until symptoms subside, then gradually reintroduce your binders. Also, as long as you are taking them...
I had really bad hair loss on the top of my head for a couple of years now. It would stop and start up again and was always worse on one side. I hated styling my hair trying to cover the bald patches...
Thanks Sandyfeet, Walkingbyfaith, and Saraeli. Walkingbyfaith...mold was a huge issue, (dreaded gene and sick for years) but I left my house more than a year ago and had my new apartment checked. I...
Sandyfeet...thanks for your suggestions! I was going to order the Cat's Claw but I will add the milk thistle and hawthorne for sure. I've read Buhners book, but sometimes with the lyme brain, it's...
Hi everyone. I hope you all are staying safe and healthy. I've discontinued my antibiotics for Lyme and Bartonella because they were just too hard on my stomach and I couldn't take the pain anymore,...
Oh lightlife, Sending you so much love in these trying times. It is so hard to feel overwhelmed with guilt that you aren’t doing enough as a mother, and then the depression follows. It seems to be a...
You’re doing so many good things for yourself and you should be really proud!! We already do so much reading about our illness that adding another one on top of it can’t be good. We can only do so...
Thank you Girlie and GanglionCyster. My doctor told me to get the Green Dragon LB protocol which has several herbs in it, but I didn't know if I was better off getting them separately so that I know...
Good morning everyone. I had to discontinue all oral antibiotics for Lyme and bartonella due to severe stomach issues. This is the first time that I look really sick with so much weight loss and...
elizka26...so sorry you are going through this as well. This seems to be the nature of things with treatment. You treat one thing, but you get something else instead. Sending you good thoughts....
Isitlyme...I’m starting to lose confidence in him. This whole thing is so disheartening....
Thanks everyone for your replies. Quin...I'm taking probiotics. Green vibrance in the morning and S. Boulardi in the afternoon. The diarrhea isn't severe, so I don't think its cdiff. My mom had that...
Hi everyone. Started Biaxin back in December for Lyme and Bartonella, and added in Omnicef and Rifampin over the last couple of months. Had to stop Biaxin due to stomach issues a week ago and now I'm...
Thank you Quin...I appreciate your help. I guess so many different things can come into play, and it is reassuring to hear some of them :)...
Thanks WalkingbyFaith...I appreciate all your info. It gets really confusing to decipher what is what. I'm sure my gut is messed up by living with mold for 16 years...just never had stomach pain like...
Hi everyone. Started Biaxin and Omnicef back in December for Lyme and Bartonella, and added in Rifampin a couple of weeks ago. I noticed a small improvement in my brain function these last couple of...
Thanks for telling me that WiscoWoman. I'm never prepared for them....
So happy for you WalkingbyFaith...hopefully that'll take a load off of your shoulders!! I trust mold dogs more than any company or test :)...
WalkingbyFaith...what is the IV PC line for mold??...
WalkingbyFaith...I haven't started on antifungals yet. My doctor just added Rifampin to the Bactrim and Omnicef combo, so maybe that'll help a little bit. I do take binders every day...either...
Thank you all for your help. Cignet...I was diagnosed with CIRS from mold a year ago, but chased that diagnosis for years before I finally got an answer. Moved out of my house and was treating the...
Hi everyone. Started antibiotics over a month ago for Lyme and Bartonella, and initially my brain just felt better and clearer and I wasn't getting any more mystery bruising (which occurs mainly on...
Happy Birthday to both of you!!...
I think it's a combination of Lyme and mold that are causing many of these autoimmune diseases. One in four people don't have the gene that recognizes mold as a foreign substance, and 50 percent of...
Orbitibg around...I feel for you because I went through the same thing ten years ago. Was detoxing from opioids and boom...the trauma hit me like a ton of bricks. Maybe it's the body reminding the...
ACE29...I don't know if you live in a legal state, but cannabis has been a LIFESAVER for me in terms of pain. I lived on Advil every single day for years due to bad headaches, and five years ago I...
Thanks so much for all the suggestions WalkingbyFaith. I've been on the ISEAI website many times, but hard to find a mold doc. Will check the other two websites...thanks again :)...
Any recommendations? I have CIRS and need someone who knows mold. My last mold doctor was all the way up in Vermont and not very good so now I have no one treating it. My LLMD admittedly says that...
I started houttuynia a couple of days ago for lyme and bartonella. The first day I used one drop morning and night and the next day I used 2 drops in the morning. My anxiety is through the roof, eye...
Aerose...just wanted to tell you that I went back to skin care school to become an esthetician when I was 44. Everyone in my class was 20 years younger than me, but I learned not to care because I...
It sounds like depersonalization, which I had for a few months. I think it's the body's way of protecting us from the shock of our reality, although I have no evidence to back that one up. I feel for...
I am so sorry for what you are going through. It sucks. But that doesn't take away from the fact that your timeline is yours alone. You will achieve great things...one of them being conquering this...
Humanconclusion...I am so very sorry for what you are going through. I have been there mentally and it's just so hard to fight when every day is as miserable as the last. Hang in there though...I'm...
I was told to start with a quarter of a teaspoon as well and about a half hour away from other supplements. I just put it under my tongue and let it sit there for a minute before swallowing. It...
You can not get better in a moldy environment if you're sick from mold as well. The first step in the Shoemaker protocol (which many mold doctors use) is to remove from exposure. Mold illness, like...
Thank you Girlie, WalkingbyFaith, and saraeli. I really appreciate all your responses. Next time I see him, I'll show him this thread and maybe it'll open his eyes a little. :)...
I'm sorry you're dealing with that Girlie. It is a HUGE accomplishment to be able to go back to work. Things have a way of working out, although it sounds trite to say. Hoping this situation resolves...
Just saw my pcp today and when I told him about my diagnosis of Lyme and Bartonella through Igenex, he said that all his patients who used Igenex tested positive for Lyme. Is this true?? Any false...
F*Lyme...thanks so much for all that info. Love your name btw. I have been battling insomnia practically my whole life and just recently started sleeping ok, and the thought of it returning was more...
Thanks Elvin...I had been sleeping so much better for the past several months so it is probably a herx. Thanks for answering :)...
Diagnosed with Lyme and Bartonella three weeks ago and started taking Biaxin right away. I developed really bad insomnia and just when I thought my body might be adjusting, my dr added Ceftin to the...
Mine in January was 527 and no one ever said a word to me about it being connected to MCAS. I know I have it...very itchy and taking clartin 2x per day....
Thank you saraeli for all that information! I was diagnosed with CIRS in January of this year and have been out of the house since February. It's hard to say whether the mold has been effectively...
Thanks Girlie and physed girl...very much appreciate your help....