Thank you for the detailed reply. Now onto the tough question of treating based off results or not treating based off of no major symptoms....
I am not the same physically since I got this 5 years ago but overall I am pretty good and live a normal life with a healthy 14 month old son. I took this same test last time my wife and I tried to...
I had eye issues when I was in middle of treating. It was kind of blurry/weird pain and feeling of having something in my eyes. I would get freaked out and went to eye doctor to make sure everything...
I think you misunderstood. I was feeling good but was still planning on doing more sessions until she told me she didn't think additional sessions would be needed. She could have easily gotten more...
A family member came across a lady that swore that this magnetic therapy worked for her. I ended up talking with the lady and decided to give it at try. I'm in DC but the magnetic therapy was in New...
I think you're worried way too much about something that we really know nothing about. A lot of people are probably exposed to "lyme" and never have any symptoms etc. I got a tick bite and got it 4...
Thank you all for the input. Always good to get as much information as possible, especially from people that have lived/understand it. Obviously there is no clear answer but I was leaning toward not...
Thank you all for input. When I had a consultation with one of the NP at Dr. J she told me that if I did test the baby and it came back positive I could treat the baby for 6 months with abx as...
My wife and I are expecting our first child together next month and I'm a little torn on if I should test the baby or not. When trying to conceive, I was on an abx protocol to lower possible risk of...
My body has tolerated everything except for plaquinell. My doctor was using it to stir up the bartonella and then kill it with abx. For me it shows up in my arms and becomes very painful and this...
For what it's worth, my wife and I are hoping to try and get pregnant in the next 6 months and we have talked to multiple doctors to figure out the best way to conceive safely. I think you are in a...
I would have it on and off for a year and half. I did 8 sessions of IV hydrogen peroxide about a year ago and haven't had any air hunger since. Not 100% but I'm pretty sure that's what did the job...
So my questions are: - How realistic do you guys think it is that I have all these stuff going on caused by lyme disease? Yes, 100% the tick bite causes all sorts of symptoms. When I first got bit my...
Yes, 3 weeks after 1st shot for phizer....
I got my first shot of Pfizer about 3 hours ago and haven't felt anything yet. Obviously comes down to personal preference/opinion. For what it's worth my LLMD opinion was to not get it....
No it looks like it was just IgG. I'm assuming they don't test for IgM antibodies for babesia. I think IgM would mean it was a new infection anyway....
I know testing is not accurate but I have tested positive every time the last two years through labcorp for babesia duncani so I know that I'm definitely dealing with that. I did treat with mepron...
I have been testing every few months through labcorp and the following has come up every time (most recent labcorp test being in Dec20): Babesia duncani WA1 IgG IFA: 1:256 Abnormal (one time in...
I had on and off air hunger for a solid 6 months. I ended up trying hydrogen peroxide IV's (I did 8 sessions) and shortly thereafter I think it went away. It's been over 6 months and I haven't had it...
When I was on heavy abx treatment I was having a lot of eye irritation that scared me as well. I too got it checked out and everything looked fine. Over time it went away so for me I think I probably...
If I do workouts with my arms I will have pain in the bicep/tricep area the rest of the night. Feels like an achey pain and as if my tissues are inflamed. My LLMD seemed pretty confident it's...
I have had lyme for 2 1/2 years now and wanted to do a detailed testing now to see what my blood shows before my wife and I try for kids in 10 months or so(crossing fingers). I told my LLMD this and...
https://ibb.co/MBmX9gz Got it, thanks. See the attached link for the photo. Super hard to understand, I'm assuming only people that have had this test done before are the only one's that would be...
I don't really have that many symptoms of SIBO. I was on and off nauseous for week or so when my stomach first started to bother me two months ago. Only other things I've really had were stomach...
Just had a Genova Diagnostics, GI effects Stool Profile done and it is very hard to understand. I don't have an appointment with my doctor for 2 1/2 weeks so was seeing if anyone has any insight on...
Keep you head up, it will get better. For me once I was approaching the one year mark I was really starting to get down mentally as I felt I would never get better. Shortly thereafter I really...
Thank you both for the comments this falls in line with what I've read. For now, just going to try and eat extremely clean and stay away from coffee for the time being. If it persists then will look...
I treated with a lot of antibiotics in 2019 and for the past year have treated with just supplements and herbs. Was feeling a lot better, but the last 2-3 weeks I've had some nausea and stomach...
100% people get better and don't come back here. Once you start feeling better why would you come back to the message boards about the thing that made you feel like crap? I come on here maybe once a...
Appreciate the input. I have asked my LLMD and she said she would have her get on correct vitamin protocol 6-12 months ahead of time to make sure she has proper nutrients etc., but that would be for...
Yes, seems like most of the literature on the subject say it's definitely possible but more tests need to be done to confirm etc. After searching previous messages on this forum it seems like most of...
I am still treating with herbs and vitamins mostly and I'd say I'm about 85-90% back to where I was. (Bit in July 2018 and started treating in October 2018). My wife and I are hoping in a year or so...
I think it was a couple months later is when I started to feel better. Then gradually overall each day gets better. Personally I don't think it was the disulfiram that made the big difference, but...
I come on here very sporadically, but at the beginning of my journey I would come on here a lot more hoping to read success stories. I am by no means 100% yet but I definitely am feeling a lot closer...
I’m Defitniely a lil itchy sometimes so that could be related to the MCAS I’m sure...
Iv introduced these supplements (one every 2-3 day) histamine block artemesia trycline mastica 5-HTP B-Complex Plus Mag Glycinate SAMe Saccharomyces Boulardii probiotic I also was taking histamine X...
I went on a low histamine diet the last 4 weeks after having my MMP-9 level come in at 550. My results came back in even more elevated at 860. I was adding in some new supplements this month but was...
Yes I think that was the one. Anyhow based off the low amount of responses it appears people may not be getting tested for this which is kind of surprising to me....
Hmm sounds like he just wasn't aware of this test. I forget what he said he was using to test for it but it started with a T....
Just spoke with my doctor and he said he has been testing me the whole time for possible MCAS but with different test. This MMP-9 is something that is relatively new and he just heard about it a...
After 13 months of treating my doctor tested me for MMP-9 for the first time. My level was 540 which indicates I could be dealing with MCAS. I don't really have any of the symptoms associated with...
I would Defitniely start a Facebook page for your yourself and join the group if you’re going to start dsf. Having more knowledge as you go along will be much more benifical for you and there are...
Ya not so sure about that..overall I was better off before dsf.. hard to know if the drug made me feel worse due to reaction to the drug or not but my gut was telling me that it wasn’t really working....
Update for anyone interested.. I started dsf 3 and 1/2 months ago and was on 500mg does for 60 of those days. I was on abx for 9 months prior.. sadly for me I don’t think it worked. Overall I am...
Just giving an update: I know some were surprised that my doctor had me on other abx while also the disilfuram. Given that most are reporting to stop all other abx he has now changed tune and decided...
I don't know if you would want to use me as a guideline. I'm more so at a crossroads myself on what to do next. I've been on the disulfiram for about 3 months now (in total only about 50 days at the...
Just giving update for anyone interested I just finished my off week and I don't want to jinx it but I'm feeling very hopeful the difulfiram is working. The last 3 weeks I was on the disulfiram (500...
Wanted to give update on where I’m at with disulfiram I’m approaching my week off abx and have been taking disulfiram for a little over a month and half now. Originally I dropped down from 500mg to...
That’s a good point and ya it’s possible this could be a bad die off. I worked up to 500mg after 3 weeks and after being on the 500mg dose for 1 week and feeling so fatigued I came back down to...
Always good to here other people updates with the drug. For me I'm about a month and half in on using disulfiram (only total of 20 days on the full 500 mg dose) and my response has not been the same....