I was on LDN for over 2 years, and yes you can herx from it. It's not killing Lyme, it is boosting your immune system, which is then killing Lyme, which is what it is supposed to do. I definitely...
I have a TBI from when I was a baby and got Lyme right after that. No clue how I’m still alive, though I think the Lyme bacteria had some beneficial effect as it sealed off the head injury somehow....
Dr CK in Chicago in the West Loop, she’s in private practice. She’s been my doctor for 4 years and treats with antibiotics and herbs. Love her. You can find her through an ILADS search....
I've had all of these types of head pain that you listed from Bartonella. At times it felt like tiny knives were being ripped out of the veins in my head, it was torture. I have also had...
Is this trolling? Are you serious? Why even post this, just to insult and incite arguments? I have Bartonella. I got it from a tick. I tested positive for it. Bartonella is transmitted by ticks. My...
Oh I forgot, the first 2 times I ever used it -- on my spine -- I stood up and immediately collapsed to the ground. This happened twice, but thankfully I was able to walk after that. That was 2 years...
Yes, I have had massive herxes from my red light devices (I have 2). I usually have to take binders, and it will take several days to clear the herx. I can only do a couple minutes at a time, 20...
These labels are just labels, just words. If I stuck it out with any of the 5 therapists I saw I would have been "diagnosed" or labeled with all kinds of things, probably Bipolar, Borderline,...
There is really no point in seeing a neurologist -- your husband has Lyme and co-infections and he needs a LLMD. I saw 4 neurologists and they all misdiagnosed me, put me on steroids (poison), and...
Having a high ACE score directly correlates with chronic illness. https://youtu.be/95ovIJ3dsNk https://acestoohigh.com/got-your-ace-score/ If you don't know what ACE is, then go take the...
5 months is a very short time, I herxed constantly for 1 year on herbs and it did not look like I was improving, but I was. Are you detoxing daily? Do you experience herxes? Do you keep a symptom...
Hi Joe, I don't post much anymore, but I have a 40-year-old neurological Lyme and Bartonella infection, I have 15 brain lesions and I was misdiagnosed by 4 neurologists. I have a GREAT LLMD in...
edit: deleted my post because I have zero interest in helping Lymie24 after his other insulting posts in response to mine. Good luck....
So you've tested positive for Bartonella and you have Bartonella symptoms. Have you ever owned a cat or been scratched by a cat? Own dogs? My Lyme symptoms were so minor and basically hidden behind...
Cignet - since you've tried lots of antibiotics and herbs, have you tried just focusing on rebuilding your immune system naturally instead of just killing the bacteria? Things like daily green...
edit: I am DONE helping you people....
I take 500mg every morning on an empty stomach. I know people take it at night to help with sleep, but it never seemed to make a difference for me. When I was still getting bad headaches I tried...
If someone is taking antibiotics and herbs that kill Lyme and having all of these horrible symptoms then the most likely conclusion is that they are herxing. 1 + 1 = 2 and it doesn't make sense that...
Japanese Knotweed on its own kills Bartonella and is immune modulating, meaning it will strengthen your immune system so it can fight. The entire first year I was treating with herbs I had new...
I basically figured out I had Lyme and Bartonella on my own by experimenting and taking Cat's Claw. I wasn't taking anything else at the time, and had been told I had Multiple Sclerosis. Well 30...
I have stayed out of all the vaccine threads, but I'm going to say this once. I am NOT looking for an argument. Do whatever your conscience and your body tells you. My LLMD is actually NOT...
If you don't think you have Lyme then take the Horowitz questionnaire: https://www.tiredoflyme.com/horowitz-lyme-msids-questionnaire.html Again, I don't know why everyone is always in so much denial....
low-dose naltrexone https://ldnresearchtrust.org My LLMD prescribes it...
MedicalNerd - I haven't taken antibiotics, just Buhner herbs and LDN. The burning brain was probably at its worst before I even knew I had Lyme, I had a spinal tap and blood patch in 2013 and it...
cyanat: I read your other post, and you were taking a TON of stuff: ////// I'm about 5 weeks into treatment, and it's been pretty crapty still but some days are good, and symptoms return. Is this...
I've had stinging and burning eyes from Bartonella, it's a symptom that only started when I was treating and herxing (from herbs) -- never had it before then. It felt like shards of glass being...
I take binders almost every single night, I wake up in the middle of the night or at 6am to take 2 pills. I started with activated charcoal, sometimes people rotate different binders, I think...
FYI Turmeric makes me herx very badly, it breaks down biofilms and is anti-bacterial. I personally wouldn't use it for detox. I would take binders like activated charcoal much more often. Are you...
If you're craving chocolate badly make sure you're taking magnesium daily, preferably at night. You could be deficient. A good bowl of fruit will combat my sugar cravings. I put banana, strawberries,...
Before I was diagnosed with Lyme I would definitely get an increase in symptoms -- tingling, numbness, sometimes spasms and nerve pain -- when I ate sugar and specifically chocolate (I was a...
I don't know why so many new people on here are in denial. You have Lyme and Bartonella. You need treatment, ideally you should see a good LLMD. Neurologists will not help you, they will pump you...
Lamps I read your old posts. You are positive for Lyme and co-infections and likely need more treatment than just 3 months of antibiotics. Yes, you have Lyme. I would find a better LLMD or herbalist...
Detox is hugely important for me, I have to do it daily and it definitely helps. My LLMD really stresses the importance of detox as well. So no, I would not trust a LLMD who says it doesn't matter....
I would add: - earthing/grounding - vagus nerve exercises for your parasympathetic nervous system - lower stress levels long-term (this could mean quitting your job or leaving your spouse or just...
If you're on antibiotics you are likely having a Herhxeimer reaction, it's when the Lyme bacteria die that we feel the worst. You need to detox every day. And I would see a LLMD....
I have had severe burning from Bartonella, it caused trigeminal neuralgia and made it feel like my brain was on fire. That symptom is gone with treatment. If you felt better by the sea maybe it was...
These doctors are being paid off. They are not stupid. Anyone who would actually believe "there's no Lyme near Boston" would have an IQ of about 25. They are corrupt and they are being paid off to...
A lot of those symptoms scream Bartonella, and the fact that you respond to herbs makes it more likely. I got horrific headaches from Bart, and I've had chronic sinusitis. I wonder what you have...
What about drinking Cistus tea for prevention? It's supposed to help prevent Borrelia transmission or keep ticks from biting you I think, if you drink it every day, so maybe it does the same for...
I have never heard of this Boost stuff, but that sounds awesome and now I want to try it. I have used Microbe Formulas oxygen liquid drops and have definitely herxed from it with Bartonella symptoms....
Sometimes it's more than just the immune system.... There is something that breaks our immune system or deteriorates it, and it's not just the Lyme that does that. Everyone here should read Gabor...
It's ok to take breaks from treatment, I've done that when herxing badly. GO SLOW with herbs, they are very potent! I herxed from 1 drop in the beginning and it took me 8 months to get to 60 drops a...
Gemma: this is the best resource for detox methods: https://www.tiredoflyme.com/detox-methods.html You must detox via multiple methods every day. I take 500mg L-Ornithine daily still for headaches....
Wisco woman -- I just want to say you are not obligated to forgive her and you are not obligated to give a speech at her wedding. saraeli gave you some great advice above too. But -- you are allowed...
roadpup: I don't know who this male LLMD is who you haven't seen yet, but I recommend a different LLMD in Chicago, I can give you her info if you put your email address in your profile. I was...
This happened to me too, though I don't think I'm entirely done with Bartonella. As soon as my Bart bacterial load came down (after 2 freaking years) I started getting really faint bullseye rashes...
Medical - I was SEVERELY depressed and a complete mess when I first started treatment, that's why my LLMD put me on 1.5mg LDN. I was hysterically crying every day, very up and down. I have dealt with...
You do not need antibiotics to herx. I herxed from Cat's Claw before I knew I had Lyme, that's what led to my diagnosis....
I can respect project's posts and opinions and I somewhat agree, but -- I just want to say that after 2 years of Lyme treatment and completely overhauling my entire life I have NO desire to go back...