I was told by a doctor who claimed similar success rate what happens to the other 5%-6%. Answer : “they give up”. In theory your success rate should be 100% just might take awhile to find correct...
Thanks bluelyme. I am in Washington DC. Freshwater fishing is very so-so here. It would be a miracle of biblical proportions if I can get out of the house in any meaningful way by spring-time. I have...
If anyone is interested my email should be visible. I am pretty sick(sicker than average) but I don’t want to compare each others suffering. This forum is great but it is calmer to stay away...
In trying to figure out why I have been crashing so badly in my notes in early September I have going up on oregano oil. But I have been crashing prior just maybe not as badly. I have been taking...
I know this is old post. How are you doing with oregano MedicalNerd...
Thanks RainyCloud, If you don’t have Babesia then this symptom points to bartonella and I am wasting time waiting for a supposed Babesia herx to calm down. Our plan was to hit Babesia and keep...
Have been treating Babesia for about a year. Had some harsh herxes and not much progress for awhile. I was continuing treating bartonella simultaneously. By this summer I was doing better, not well...
If you got destroyed by nattokinase and that’s a relatively mild enzyme then you have a lot of biofilm. If you don’t have enough to kill whatever it is releasing then you will get more symptoms but...
Thanks all for responding. I will open another thread as it has been 2 weeks without PT so that might not have been the issue. Girly, I don’t think I have back problems, per say. I don’t need...
Astroman, i will email you if ifs ok. Seems like we are only 2 people in discussion :) too much to write here anyway. My c4a has been checked somewhat regularly. It was about 750 (normal is 650) last...
Thanks astroman. I wonder if a relatively bad physical injury cascades inflammatory effect throughout the body. To a lesser extent than at injured sight. My c4a shot up to out if range 13,000+...
Update if anyone is interested. Had appointment with llmd today. Yes, any physical therapy or manipulation like that can cause herx as it releases stuff. I am not sure how are we supposed to get well...
I got a herniated disc, maybe a month ago. At least that’s when symptoms started. C6-c7. I couldn’t sit still for a week or so pain was so bad. Ibuprofen 600mg was maybe helping but not sure. My lyme...
Thanks astroman, I don’t think/hope I have spine problems and this is something isolated. To keep all this in shape active lifestyle is needed and lyme prevents me from doing that. I guess my follow...
Thanks saraeli, I have been doing glutathione for 6-8 weeks now and I had good stretches as well as bad stretches while on it. Sometimes I felt like it maybe helped, other times I felt like it...
I got a herniated Disc, not sure how. I have been doing physical therapy and it’s getting better but still pain and other symptoms radiating to the arm. Therapy consists of neck traction (I think...
No I do not believe that’s the case. It was never gone to begin with. It was just being suppressed/under control. You start from scratch in a sense that you still need to kill everything. Now, can...
I am not an expert but if you pull antibiotics and relapse in a few days then you were never in remission. You relapse after half-life of whatever antibiotics were keeping it in check. Like tylenol...
Garzie, Can I email you?...
Wladek83, Rifabutin was for bartonella, i am stuck with Babesia, that’s true but there is protocol that I am trying to get on right now since I had to stop everything and while I am unhappy with...
Garzie, T-lab is in same office as dr. M. He looks at the slides themselves (obviously) and he gives much more information vs what “official” report states. I had a slide that officially stated...
Very good. Yes, we should have targeted both at the same time. Who knows, each case is different. But I have been treating both for about 9 months simultaneously although it took time to get on high...
Right. From 21 to 142. That’s the positive here. I wish my treatment would be as responsive. Btw my triglycerides jumped to 1,400 too. I am not overweight by any means, nor do I eat anything that...
Just a little update. My platelets are 142 2 weeks after stopping rifabutin/Mepron/ivermectin. Hematologist says it’s not the meds but immune system reaction. Dr. M thinks it was a consistent herx...
I have been taking rifabutin for about 1.5 years in latest stint. I took it before and we thought it was gone but after 3 months had to restart. Both times a total nightmare to get on. And it took...
My bet is on Mepron and the associated herxing plus Babesia itself drops platelets. I was on rifabutin for a long time and finally made a breakthrough. Was feeling much better then suddenly things...
I only tried for a week. Small dose too. 2mg. It did “something”. Probably not by itself but synergetic-ally with Mepron and other things. My platelets dropped from 60 to 21 too. That could be...
Thank you again Garzie. I try to implement what I can outside of treatment itself but my case is probably one of the harsher ones and although I am not at my worst some symptoms still are. I am...
Thanks Garzie. Yes, I know. Concerned about both but more about Babesia as I think we had bartonella more under control. I improved a lot on bartonella treatment but then switching over to Babesia...
My platelets dropped too low (20s) so we had to backtrack a few things. Mepron, rifabutin and recently added ivermectin (straw that might have broken the back) as my platelets have been dropping for...
Dim vision here for sure. Along with other visual symptoms. It does improve a lot when I have better stretches. My vision symptoms have been my very first symptoms. They are extremely frustrating....
I am very very discouraged at my situation but we have to trust that our drs use antibiotics correctly right? I think in my case as I was gaining upper hand on lyme, bartonella blew up as that was...
If bartonella reproduces once daily… Supposedly it took 11 days for average bacteria with division time of ten minutes to start developing resistance to antibiotic dose that wasn’t high enough to be...
I have been taking rifabutin, minocycline and clarithromycin for a long time. Mepron was added 2 months ago when i suddenly started feeling very unwell. It is difficult for me to differentiate...
How fast can mepron hit? Especially when restarting. 3 weeks on, 1 week off. Then restating on 8th day. I know mepron is still in the system so it is not from zero. Restarting 1.5 tsp twice a day....
Does it feel like you are being “choked” a little. Not literally by someone but like by “itself”?...
I am being treated by dr. M. He uses the enzymes for biofilms mostly and towards the “end” of already “successful” treatment. I never heard him say anything about some enzyme deficiency. What that...
You went to Dr. M and failed his treatment? How long did you go for?...
Something similar happened to me recently. Just like you said few months of getting better with ups and downs then terrible crash. Dr said as we were getting control over bartonella, babesia went out...
Ummm... I have brown(although with blue recessive), so Bb I have gotten insanely sick and my treatment has been very difficult, although successfull at first. Just to be more clear. My mom is blue =...
I still can’t muster enough mental power to start my own thread, but these are the most cruel symptoms. The unreality soooo bad. I had at a “manageable “ level until one day it just hit! I didn’t...
Thanks, I will, Really need help...
Gad65 is against encephalitis. I don’t know what your level of functioning/suffering is....
I don’t want to argue, really I don’t, i feel very unwell. EBV, everyone has it but as you note it, immune system keeps it in check. Until immune system is “fixed” you are in trouble. Fixing ebv will...
This my first post, I have yet to tell my story. While i agree with mpost in general, this is not what is happening here at all. It happened/happening to me, except my symptoms are much more severe....