I was wondering if anyone has had a similar experience. I have been out of work for a while, and I don't qualify for disability. I have been helped financially by my dad but it has gotten to the...
I was on csm but I had this all before too. I stopped meds and it didn't help change my symptoms :(...
Are you seeing a CIRS doctor? I got laid off and have no funds currently and I don't know where to turn. All of this is so heartbreaking and I feel hopeless honestly. Doctors cost money I don't have....
Yeah, the HERTSMI-2 result is a 4 and the 5 mold groups that are considered the most dangerous are low. Group 1 is 10.28 and group 2 is 10.06. I even asked in the mold group and a lot of people said...
I did the one that tests more molds, and my score came out to a 4 which is considered real low. I collected from dust off of tvs, cabinets, tables, window ledges, and even wiped my ac vents. There...
Hi all, Thanks for the responses. My CIRS doctor told me he thought my symptoms were normal and fitting with CIRS and it was highly unlikely I have lupus and CIRS, but I am not totally sold on that....
I know this is a bizarre way of describing it, but for the last 4 months I have gone even more downhill then I already was. It started with all over itching. Legs, arms, back. Went to doctor as I had...
Thank you! Hope you are feeling better now too....
I have treated lyme and all coinfections with no progress. Not sure if you have heard of the Shoemaker test called GENIE, but it is a fairly new test that shows Gene Expression and it really seems to...
What autoimmune issues do you have? I have only been diagnosed with CIRS and not lyme, although I did go down the lyme path for a long time, but we seem to have realized that may not be what is going...
Did it reverse with treatment? Did you stop the PC completely?...
Yeah but I have that as a regular symptom anyway, it just seems more intense with the PC. It feels like nerve irritation almost. My feet and joints feel tight and achy and the nerves feel like they...
Hey Jessica, did you ever get to the bottom of the throat closing sensation?...
Was the cause of this ever found?...
Did it go away eventually or did you discontinue use?...
What were the other supplements you were on?...
Did any of you figure out what was making this reaction happen? Having the same thing myself and just started PC....
That is scary! What took you to the hospital in the end?...
I think I spelled it wrong. It is phosphatidylcholine otherwise known as pc....
Hi all, New here and I am sure like many have been around the houses for years trying to figure out my health concerns. Doctor basically thinks I have CIRS caused by mold. I was wondering if anyone...