Hi friends, I'm reaching out for support because I am extremely scared and alone in my medical illness. I am in a really bad position– the same as I've read horror stories about from other poor souls...
Thank you all for your support. This community is incredible. I remember when I started having severe late-stage neuro symptoms being so scared, then coming here and finding other people like me and...
Thank you so much Saraeli. I'll respond with a more comprehensive reply, but just wanted you to know how much it means to me to have someone UNDERSTAND. God bless you....
I had dozens of systemic infections that wrecked me (stem cells, palliative care, hospice, etc.) and I tried to take my life. I survived and 15 months later I’m facing intolerable physical symptoms...
Wondering if anyone knows of a Boston area LLMD. Also interested in functional medicine, integrative docs, PCPs, psychiatrists, and neurologists who understand how systemic infection in the nervous...
No pertinent experience with chloroquine. Dr. L. in NY and Dr. DeS. in NJ use azithromycin for Bartonella. I certainly had a wicked Bartonella herx (neuropsychiatric symptom flare) on it. Dr. DeS. in...
Sorry for my ignorance; are you saying EA is more effective against yeast than Lyme? Which infection do you have? YFO is a much bigger issue than Lyme for me and EA tea really helps GIVE me energy...
Had a paradoxical reaction and Gabapentin made my peripheral neuropathy worse. Same happened with r–ALA....
OK, well my last name is very similar to "Herx." My Dad and I have jokingly coined the word "Hark" and been using it for months. I would be honored to have such a horrific medical phenomenon named...
Which always brings up a question for me, Traveler: Why is there not an equivalent name for the reaction one gets in response to an agent that provokes symptoms of infection (e.g. coffee gives me...
Absolutely. Scary thing is when your diet, exercise, detox, supplements, etc. are dialed in as much as possible and you wind up in the ER (NOT herxing but rather getting overtaken) and then it's...
Just wanted to share with the community that this is a fact for me. We all know stimulants suppress the immune system and aren't good for lymies. However, stimulants like amphetamines, coffee, or...
Thank you very much, Girlie. Anyone else know of/involved in a group here?...
I just moved back to Seattle after being treated in NJ/NY since my diagnosis this past January. Really wanting some peer support especially since I've gotten acutely sick again. Anyone know of...
I think I'm dying. Just want some love and reassurance! Thank you all....
Stop thinking about it. Pretend all your symptoms are something else. Make a joke out of it. Continue to take healthy steps towards recovery, but learn to enjoy just going through the motions and...
I really appreciate that, thank you!...
bump...
Hoping someone can cite personal experience with any western WA provider? Just accumulating names for now and will plug other forums/connections and look for reviews online before making calls......
Thank you for your help! Girlie gave me a good "western med" LLMD but besides Dr. K, wonder if there is another integrative/alternative practitioner versed in tick-borne illness? Want someone that...
Thanks PeteZa. I agree re: my western med LLMDs, but definitely need to visit integrative person like the Chung Institute in person (so far not just supplements/anti-parasitics but bee venom and...
Hi, I'm looking for resources back in western Washington (currently on the east coast). I'm doing well on my course of treatment (combination of integrative medicine at the Chung Institute in NJ and...
Does anyone ever recover from chronic Lyme disease? Because I have neuroborreliosis and psychiatric symptoms and behavioral struggles like binge eating and drinking alcohol, I can’t live perfectly...