Regarding the "without pause" part - I wouldn't be too concerned about switching from rifampin to rifabutin because rifampin has a pretty short half life (3-4 hours). Assuming you are waiting until...
In my opinion, if a doctor believes you have Lyme/co's but isn't willing to prescribe antibiotics, maybe you should keep trying find another doctor to work with, even if it takes awhile. You could...
I am treating for Bartonella and have had both - pressure behind eyes and blurred vision. However I would describe both as mild and transient - not long lasting or severe. My experience with blurred...
A few years ago I used to drink herbal tea every night and had the same experience with cinnamon and ginger-based teas. The cinnamon in particular I drank for months on end and I would get the same...
I would have gone to my current LLMD much sooner. I found him in searches years ago but went to more fringe-y, naturopathic type practioners because the initial and recurring appointments were about...
A lot of excellent replies on this thread. I have come to believe when the CDC says there is "no evidence" of something related to tick-borne illness, it is like someone waking up in a windowless...
cppoly - Honestly, to me it doesn't sound like you have Lyme/coinfections at all. I remember seeing you post years ago and then, as now, you mentioned your primary symptom being insomnia and waking...
Yeah I was wondering what kind of treatment options the clinics would be open to - i.e., if they will be open to believing the symptoms are real, but continue with the traditional medicine paradigm...
Lymie24 - I am male and the exact same age as you. I got the booster back in December because my parents are in their late 60s, concerned about COVID, and felt better about visiting in person over...
sdarrah - Are you using resveratrol in the sense of it being a concentrated form of Japanese Knotweed and as part of a Buhner-like herbal approach? If so, many of us here have probably had some form...
I was loosely following Buhner's bartonella recommendations - JK and houttuynia were my mainstays that I took daily for nearly two years (never at huge doses bc I'm sensitive; houttuynia I never got...
dcd - If I recall correctly from another thread awhile ago, did you say your illness started after GI issues when traveling abroad? If so, I thought there might be an interesting connection there,...
wladek83 - Thanks for sharing that link, that was super interesting to see. I did have some flank pain and suspect kidney issues for several months before giving up on Houttuynia but had blamed it on...
I took Houttuynia for a little less than two years. Personally, my experience was 3 main effects: 1. Reduction of bartonella inflammation/symptoms - from the first dose, Houttuynia seemed to reduce...
Forest - when I first got sick I had some symptoms that sound similar to yours, I had dizziness/weakness and a sensation that it wouldn't take much to slip into unconsciousness or even die. The thing...
Hi Canary - the symptoms you describe when your husband was on azithromycin sound like they could have been an allergic or toxic reaction to the drug, rather than a reaction to treating bartonella (I...
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Nic - I probably don't have anything new or groundbreaking to say re: preventing Candida recurrence but a paleo-type low-carb diet (whole foods, avoiding grains and sugars) is supposed to be good. I...
Btw - Traveler - it's great to see you posting here again. When I was first searching for info on herbs years ago, your posts were both a big help and a source of inspiration for me....
I took Houttuynia for over 1.5 years. I did find it to be somewhat effective against Bartonella in that it led to herxes followed by improvements. Also, as Garzie noted it is supposed to help with...
Back of neck pain combined with brain fog makes me think of Lyme/Bartonella although cinnamon/oregano would also hit Candia and yeast/fungi hard too. Or, if you haven't really been having symptoms or...
Thanks for the replies. Garzie - that's what I was hoping to hear, I appreciate your insights....
(Also would be interested in hearing about experiences with clarithro/biaxin in general if anyone has anything to report, good, or bad.)...
Hi everyone - after a few years of going it alone herbally I'm working with an LLMD and am gearing up to hopefully start the clarithromycin/rifampin combo for bartonella, starting with just the...
For what it's worth, I just had my COVID vaccination booster and experienced the same thing. As I began to feel crummy from the vaccine response, my "normal" Lyme/Bart/whatever symptoms basically...
I took it at the very beginning of my treatment journey, when I was a few months into being infected with Lyme and hadn't had any antibiotics yet. It helped with the extreme fatigue/exhaustion I had...
I remember reading that somewhere, too and had the same thought. I guess the upside to living in our times is that, as hard as it is to get diagnosed/treated now, it was basically impossible back...
I haven’t posted much lately but still read regularly to learn from others treatments/experiences. Threads like this and all the infighting can be upsetting to see. WalkingbyFaith, you have are a...
Thanks Girlie, good to know the timeframe was more like weeks than days. I imagine (or at least hoping) that today's symptoms are just inflammation or residual herb effects rather than an immediate...
Yeah it's an interesting read. In case you aren't already familiar, Polly Murray is often credited as the woman who helped "discover" Lyme disease. She lived in Lyme, CT and it sounds like she was...
I haven't experienced this directly, but I read Polly Murray's memoir ("The Widening Circle: A Lyme Disease Pioneer Tells Her Story") and remember her describing this kind of reaction to sunlight as...
So after 15 months of Bart herbs, and not really feeling like I've made much additional headway for the past 3-4 of them, I've decided to temporarily suspend treatment to see what happens. I'm about...
I have great respect for Buhner's protocols. His work has helped me a ton. But I think that herbs tend to work slowly, especially for Lyme... his philosophy is basically for the herbs to out-compete...
Haha this reminds me of one of the funniest situations I had (with the same doctor): When I first was nearly 100% sure I had Lyme but negative tests - Me: I'm almost positive I have Lyme disease, can...
Thanks for sharing your story - sounds like quite a journey. I wish you continued healing and health....
My first thought when reading your symptom list was Bartonella - derealization, panic, insomnia neurological symptoms, vision issues, twitching, and many of the other things you describe sound like a...
I am sorry, I didn't mean to be negative or contradictory. I understand and support the idea that believing in your own recovery helps facilitate getting there. Just every once in awhile, when taken...
I went gluten-free several years before getting Lyme. I noticed a big difference about 48 hours after elimination. The symptoms I had from gluten - general (mental) malaise, low-grade depression,...
I have to agree with Adam B. I got curious and had to watch for myself - the guy mentions he had treatment with antibiotics, pretty extensively it sounds like, too. It's not fair to say mindset alone...
WalkingbyFaith - sorry to hear things have gotten so bad. Has the air purifier helped at all in the room(s) it's in? Any chance getting additional ones might help as a stopgap measure? If the...
Thanks, orbitingaround, glad to hear you're still making progress. I have also been through something similar to what you describe - days/weeks/months where it seems like my symptoms are all getting...
Resurrecting this thread with another update - I am now about 12-13 months into Bartonella treatment with relatively low-dose herbals, still JK and Houtt as the base. I have also tried rotating in...
Thanks for the reassurance, WalkingbyFaith, and sorry, it's not really fair to compare since we are all different. I know my treatment will either succeed or fail based on my own specific...
WalkingbyFaith, Sorry you're in a position where so much is unclear. I have been kind of following in your footsteps in terms of Buhner herbs so I was hoping that you had considered the treatment...
Just curious, do you think Lyme and Co (particularly Bart) are still a factor in your symptom picture? Or do you think the time you spent on Bart herbs took care of it?...
Wow Dude, sorry you are in such a tough position. If you are in the US, have you ever tried to file for Social Security disability? I've heard it's hard to get approved the first time, but that if...
I've definitely been there with the difficulty focusing and processing/integrating new information for work. My most helpful method for coping is trying to learn/stay on top of my daily "pattern" of...
Well honestly, WalkingbyFaith, I can understand why you might feel frustrated or shut out by a lack of funds... but I can't think of a single case I've read where any of those treatments you mention...
Seriously, enough with the conspiracy theories. This is a health forum, not one for political conspiracy theories. Plus, how can anyone actually believe stuff like this? If there was some kind of...
I've had similar outbreaks of twitches (chest muscle almost feeling like heart flutter and leg/foot muscles) being on Bart herbs. I can't comment on dapsone specifically since I've never taken it,...