I was told by two LLMDs (maybe more?) that my very high c4a meant inflammation consistent with CIRS, probably related to mold illness, possibly related to tick-borne infections (but treating them...
This is interesting, Astro. I have not felt confident taking a window AC apart to the degree that you describe because I worry about puncturing the freon in some way and poisoning myself! So it's...
I'm sorry this is a cyclical symptom for you. Do you think it's mostly triggered by the change in weather, i.e. heat? Is your circulation good in general, and do you get plenty of physical movement...
Yes, this is very common. ELISAs miss a huge percentage of cases, so patients with symptoms are encouraged to push for a Western blot whenever possible. My first few ELISAs for Bb were negative....
No one wants folks from other forums taking administrative action on our forum, but also isn't it pretty obvious that Michele was trying to help? Let's assume good intent....
I've been away from the forum for a few days dealing with personal stuff, and it appears that I missed a lot! I'm sorry if my absence has made things more complicated, and thank everyone who has been...
I don't think the administrators of this site are likely to reply to this, unfortunately. Even the mods hear little to nothing from them, even when they reach out directly, so unfortunately we have...
I hear you, Rainy. This was not a threat of suicide, and this did not violate the forum rules. And even if it had violated a forum rule, the ethical thing to do is provide resources to a person you...
Wow, yes, I would be curious to see that! Thank you! My email address is enabled in my profile....
Garzie, just out of curiosity, do you have a list of which antibiotics commonly used for the three Bs are bacteriostatic versus bactericidal? I've often wondered but have not bothered to look up each...
You might want to look into multiple chemical sensitivity (MCS). A popular treatment for that is limbic system retraining, such as the program Dynamic Neural Retraining System (DNRS). Another...
Quick reply to one of your questions: Yes, people who do not take binders absolutely can get better. I never took binders regularly. As someone who had issues with nerve signals in my gut...
Jamistarr, welcome to the forum! This absolutely is a good place to ask questions. A good LLMD should be able to treat you and keep you on your SSRI if it's providing benefit for you. There are...
The two things that come to mind for me with this question are that either you have gut dysbiosis that the antibiotics were managing to some degree (leading to better neurotransmitter production...
If anyone who attends this summit would be so kind as to post their notes, that would be much appreciated!...
Bhava, I'm curious what your goal would be in testing for endotoxins? Would it be to measure how effective a treatment is at killing microbes? Or to determine whether symptoms are from herxing or not?...
Bands 39 and 41 were positive on a standard Western blot but not until years into treatment, when my immune system was in better shape and making antibodies again. I tested positive for Borrelia...
I will add that my friend sees only a conventional medicine primary care doctor, so I highly doubt she gets full thyroid testing done, nor many of the tests we here would want in her situation, so...
For what it may be worth, I tested positive (on basic LabCorp tests) for Borrelia hermsii before I tested positive for anything else, but I never had fevers. I had major fatigue but oddly not...
I did! I have passed along your thoughts, and we shall see what she does with them. I appreciate everyone helping to brainstorm about this. It's awesome how you follow up, Dude....
Hi, Rainy! Right now I'm taking a few supportive supplements, but not targeting a specific infection. My knee pain has been improving, possibly thanks to a new mattress topper and a new physical...
Yes, that's very familiar to me. I had this symptom all along, but it got worse with antimicrobial treatment. I noticed some improvement with the following, but it didn't resolve until I addressed...
In 2019, I took the GI Effects Comprehensive stool test through Genova Diagnostics. All the data points you mentioned - total SCFAs, butyrate, propionate, and acetate - were right in the middle of...
If you have been taking pharmaceutical antibiotics as part of your treatment, then I would assume you have developed a case of SIBO or dysbiosis in general, unfortunately. Those four symptoms sound...
At one point I was taking 45 different supplements, some multiple times per day. They all had a purpose, of course, and some test result or another that made my doctors and me believe I needed them,...
https://rawlsmd.com/herbs/neem I use neem extensively in my garden and can vouch for its antibacterial and antifungal properties in that context. I also found topical neem helpful with shingles. I...
Yes, because I was supplementing magnesium but no other electrolytes, and not eating much, the ASG increased my potassium above where it should have been, causing my heart rhythm issue. This is what...
This sounds very familiar to me. My neurological symptoms, including facial twitching, were directly related to mast cell activation syndrome (which was always triggered by any amount of die-off for...
I was very weak and not eating very much, which is why I was susceptible to ASG throwing off my electrolytes.(At least this is what I was told.) I was hospitalized because my heart rate went up to...
If stress causes a rash for you, then it might be mast cell activation syndrome. For this, you can take antihistamines, curcumin, quercetin, etc., eat a lo-histamine diet, and manage the histamine...
Pickleball Player, I actually improved a great deal! I was sick and mostly bedbound for three years, but made an 85% recovery that has held for the past five years. I just meant to convey that while...
Pickleball, it sounds like you're probably just herxing, no? Unless the new provider has you on exactly the same protocol, then it makes sense that your response to the meds would be different, and...
I did mean to write 25 BPM, meaning the amount that the heart rate rises. So if your heart rate is 60 BPM lying down, and goes up to 85 BPM when sitting upright, then that's rising 25 BPM and would...
I was just reading today that antibodies from cow milk and colostrum are broken down easily by gastric juices, so I imagine transfer factor capsules are enteric-coated in order to remain intact until...
I have read: - Reduce IL-17 with astragalus - Reduce TNF alpha with andrographis, cordyceps, houttuynia, and Baikal skullcap Sounds like you still have inflammation happening. IL-4, IL-7, TNF alpha,...
I wrote a book in response to this post yesterday, but the forum told me my login was invalid and deleted it. So I'm trying again, more briefly! Lots of good advice here already. People have mast...
LitleBee, the last sentence of my message was in reference to the amusement park outing being worth considering. I do think Primal Trust and other related programs are phenomenal, but I only meant to...
LitleBee, not only is this not a stupid question, but I hope you will update us on how it goes! It's so important to do things that make us feel like human beings with a full range of experiences. If...
That does sound like POTS, pretty much exactly. POTS is as pinkblossom described, and can also include a drop in blood pressure upon standing (when it should rise). There are lots of ways to treat...
ASG does contain a hefty dose of two electrolytes, but using it more than once per day (as many are told to do for a herx) can throw your electrolytes way off, especially if you're not taking in a...
So I'm replying to my own post with what I'm considering. D-limonene Slippery elm Marshmallow DGL (licorice) Ginger Probiotics Lemon balm Apple cider vinegar Liquid diet Aloe vera juice TUDCA Olive...
A lot of LLMDs seem to recommend the Researched Nutritionals brand of transfer factor - which is bovine colostrum from cows who have been infected with the specific infections you want to treat. So...
Greetings! Somehow I contracted what seems to have been a stomach bug 13 days ago - fever, vomiting, diarrhea, cramping. I felt much better the next day, and vomiting and fever stayed gone....
Showers used to flare MCAS for me as well, which was really frustrating. I hope you find ways to manage your MCAS effectively soon! In the meantime, it sounds like bathing using cloths makes the most...
Trkane, that's hilarious! I like how they have to specify in the abstract that the results do not constitute health advice, lest we all binge Oreos. Quin, Garzie, and Blazer, I passed your advice...
Hoping for some insights from the smart folks here. My friend (who has a tick bite history) has had increasing lipids and triglycerides over the years, to the point that her doctor now wants her on a...
People do combine methylene blue with herbs, and it's fine. How much of an herb you start with depends on how sensitive you tend to be when you take ingested treatments. Do herxes leave you in bed...
My advice would be to introduce the herbs slowly or even one at a time, as some of them can cause strong herxheimer reactions or side effects, and it might be helpful to know which one(s) you're...
TTP is listed as a serious side effect of valacyclovir. Would you consider using different antimicrobials for addressing Borrelia, now that this condition possibly has developed for you, or perhaps...
The 30 days of doxycycline alongside the Buhner protocol sounds great. I would not worry much if you have access to all that. If you want to add another layer, then Buhner recommended astragalus for...