Hey all! Read somewhere on the Global Lyme Alliance page via Dr L of NY that Dr CRJ llmd (pediatrician) of CT has been placed in care facility. Does anyone else know of more info regarding Dr CRJ? We...
hi there. Is there an updated consensus as to what the llmd's are recommending regarding the vaccines when dealing with Lyme and coinfections?...
There is probably an existing thread regarding this...for those who have LLMDs are they suggesting to get the vaccine rather than not? Just trying to get a consensus. Thanks!...
Anyone used or has feedback regarding this company based in Canada?...
Thanks so much for the info!...
Hello. A family member found a tick attached to them on the back of their neck. The tick was removed and placed in a small container. Would it be best to send it to the public or a private lab to...
If amoxicillin is expired by a month (or a few) is it still relatively safe to take? Does effectiveness decrease at it gets older or become toxic?...
Just wondering how are Canadians obtaining/filling out their prescriptions/scripts that were written out by U.S LLMD's? The online pharmacy that we used is no longer available. Any details would be...
so any updates?...
yes we are...
Hello all. Just wondering if anyone else is experiencing a delay with receiving any responses from Dr J's office in CT? Any update would be kindly appreciated....
I herxed when I started on all 3 lyme, bab, bart. The problem is my symptoms are worse than when on abx, and I'm trying to figure out if still herx or just not getting it enough. (I have stayed on 6...
My LLMD put me on The Byon White Fomulas. I was on antibiotics before and at this point think I felt better on them. Also, I don't know if it's because I'm busy, but I find that it's just not...
Thanks everyone for your input. Hope_29 & Sunshine 20090909 I will give you some info on Brucella and if you have more questions just ask I will try to answer them (I don't have all my info in...
My daughter has fever everyday now for 2 years finally tested postitive for Brucella which I figured she had. Still positive for Bart, now found out positive for EBV, still thought to have Lyme even...
Just wondering for those going to LLMD's, whether they are saying you should get vaccinated, because if you don't you will most likely get stronger symptoms, or are they saying you should not get...
My doctor has prescribed this for me, but he was talking so fast about many things that now I can't remember what it was for, only that it is supposed to help. Anyone else taking this? Could you...
Since getting bloodwork checked monthly it has shown that my gfr & creatine (kidney) level keep fluctuating and are not at the level they should be for my age range. My family dr thinks its...
Just wondering why you are not supposed to take arteminisae for more than 3 months straight?...
Dowa Are you positive for any of the coinfections? Are you in treatment (what are you on?)?...
Thanks so much for you feedback. Does anyone have any idea if is to do with lyme or bart./babs. or mycoplasma instead? Do any of you have a pressure on the back of your head like a weight pushing...
I have started getting some symptoms like wind on my hands or face feel like ice cold water or something like that or reverse all of a sudden they turn red and feel hot and burning. I started getting...
My blood pressure is already on the low end to begin with and now for some reason it is starting to get too low. I'm trying to figure out why? Can samento affect blood pressure or cumanda?...
How long have you been on treatment? I have been on treatment since Oct. and starting to wonder if really am I significantly better? Also, I don't get it, how there isn't consensus among LLMD on some...
On July 4th I started Avelox (moxifloxacin) for Bart. and within a few days I started getting symptoms that are exact to possible side effects listed on the papers given about the medication. : "may...
A few time recently my blood pressure has dropped . I have been on abx for 10 months and recently taking: Doxy, plaquenel, avelox, nystatin, malarone, artemisia, samento, cumadin, serra peptase,...
Thanks for your input. I have a feeling it is affecting my eyes, since I am pretty sure I had less when I was off the med. for a week or two. What are the chances it is due to herxing being on abx...
Just wondering if anyone on plaquenil has experienced getting more floaters, light sensitivity or any other effects on the eyes, because I think that is what is starting to happen to me now that I...
My doctor plans to put me on Factive (quinolone) and I was wondering if anyone has been on it and how it went? Any info. on it would be great....
Just wondering if anyone has had or heard of lyme or bartonella (or other infections) causing a blotchy red rash with raised blisters/ papules? (on chest & back) Any feedback or info would be...
Sorry to hear that it is dragging on for you and your daughter. It is the same situation for my daughter. Dr. Jones thinks she might have Bab. ducani as well, but she has not tested positive...
Thanks. I have had a lot of hip pain/aching (thighs) to knees since I started treatment in Sept.. I wonder if it is from the Lyme or Bart or Mycoplasma. Well they seem to think it will make a big...
Thanks for your input. Where are you guys inserting the needle (same spot all the time?) Which Dr. (initial) are you seeing?...
Just wondering if others have had this test done, because it seems that it is not common for most LLMD's to test it and I don't understand why not if they are possible coinfections as well. Did...
They want me to start bicillin shots 2/week. I was just wondering if those that have done them or know of someone who has, if they noticed a significant improvement/difference? Any input would be...
Frango does your son still see Dr. J. I am confused because I was told only amoxicillan(penicillan) works on Strep. So then if that is case why wouldn't Dr. J put our kids on amox for a while to see....
Hi guys, I just want to give you some advice to hopefully avoid you wasting you time. If you are going to Dr. B chances are you will get no where. He is going to find every excuse to say its not lyme...
It was found on my daughter's Febril Antibodies and Francisella Panel Testing on the Weil-Felix Test, DA, I think also those with brucella/typhus can show up positive on these. For those not getting...
Thanks for your responses. As far as I know there is a Dr(pediatric neurologist) who has written a book or paper who is the best and has cured Pandas according to a patient of his on ACN forums....
What could it mean if Proteus 016 & 02 show up?...
Just wondering if anyone's children who are being treated for lyme/coinfections have been tested for Strep and if the result was hi. Is there any link between Strep and Lyme/coinfections. My daughter...
Did you ever ask them, why they thought it?...
Are you doing the bloodwork to check the liver every month also? What are you on now? I was on Ceftzil/plaquenil/Zithro/Artemesia. Now I was switched to Rifampin/zithro/plaquenil/Malarone because...
Thanks for your response. I was prescribed it by L there at Dr. H. but my daughter's Dr. told me you shouldn't take Rifampin with Mepron/Malarone. Also, now I remember someone mentioned something...
I am pretty sure it has been mentioned here that you can't take Rifampin with Mepron/Malarone. Does anyone know anything about this? Do you know why? Any input would be greatly appreciated?...
That happed to me before more than right now and I have Lyme, Bart, Mycoplasma positives....
Hope you get your questions answered. My Daughter goes to Dr. J. Who do your children see? My daughter has Bart & Babs as well. Hoow has your son been treated so far? Has your son's present Dr....
Oceanblueskygirl - how have you been. I haven't been on in a long time, and it's not cause things have been better. My daughter has gone backwards again and is now positive for Bart. which I always...