Anyone been on this for Babesia duncani? Helpful? Side effects?...
My main symptoms are episodes of extreme heat following by freezing shivering cold. These are about five minute cycles of sweating intensively followed by freezing. I’m also becoming more and more...
Hello. My Babesia FISH through Igenex was positive in March 2020 during a time I had no symptoms whatsoever. So I didn’t treat at that time. I was bit by a tick again this past August and I’ve since...
I went to see a new doctor for bad Babesia and they prescribed doxycycline and amoxicillin plus four Malarone twice a day three days a week. Does that seem over the top? I can’t imagine how ill even...
Is one better or more tolerable than the other? Having a rough go on azithromycin. Wondering if it’s worth asking to switch to Clarithromycin?...
It is beyond rough. And yes, hyperthermia was as close to as curative a treatment I’ve ever done. I’m happy to connect with anyone who is interested in my experience. I just told my husband that if...
Quin, the azithromycin started causing my stomach to feel very hot on the inside. I lost my appetite completely and every bite of food was a negotiation within myself for the past five months. Lost a...
I am so so so happy for you that you are so very close to remission. Yay yay yay!!!!! I called today and spoke with Linda in the office to see if I could get in for an appt also since I’ll be there...
Lymie24 and everyone else doing DDD, I give you serious credit. You are so brave and trying so hard. And I truly feel your frustration wanting to just be DONE with the insanity of all these meds! I...
Hi Girlie. Taking my 13 year old to see Dr J in a week. You’ve done really well with him, right? My son was also bit over summer and he’s really struggling. So I decided to nahh IGG e appt there....
Can’t tolerate azithromycin any longer. Will Malarone work if I take it with doxycycline or Bactrim and NOT azithromycin?...
Hi there. Anyone take Babesia for Alinia? Did it help?...
Thanks Girlie!!! Hope you are doing well!!...
I was on it once years ago and I think I did ok. Just don’t know if it will do anything for Lyme/Babesia....
Anyone take Bactrim along with Malarone? Did it help? Side effects? I’m scared to start...
Ok thank you! Just did lymph massage and sat in sauna. I can’t believe how difficult these infections are! I don’t know why I still get shocked from time to time....
Interesting.... So my gut says I should stop CSA for a week and see if everything subsided?...
Still on pharmaceuticals. Added CSA as an add on....
Thanks for the responses! But it seems weird that NOW I’d get swollen lymph nodes from herbs? I’ve been on doxy, azithromycin and Malarone more or less since early September with no muscle pain and...
Hello. I started Buhner CSA yesterday. A few drops three times yesterday. And a few drops twice today. The back of my head felt some pain so I felt around and feel two swollen lymph nodes. I also...
Anyone have a brand of CBD oil they swear by? I’m having very weird muscle pain in my throat muscles and nerve pain behind my ears. It’s brutal. Thx!...
Yes...
I’ve had it done before. I’m worried about a 15 day half life. Sounds potentially miserable if there are side effects....
Yes, I do. I finally heard back from from Him today. And he is certain it’s babesia. He is suggesting a two day drug treatment called Tefanoquine. He’s had only a had a handful of patients try it. So...
Hi everyone. Having lots of weird symptoms that don’t really feel exactly like Lyme to me. It feels like a big mystery. I found bullseye rash end of August and initially had typical early Lyme...
Thanks for the advice! I think the nausea is more likely from the Malarone. My husband just ran out to buy me some herbal thing to such on that supposedly are good for nausea made of ginger, lemon...
Hi everyone. My doctor put me back on azithromycin and Malarone. I’m having horrible nausea. I don’t know if it’s from one or both of the medicines. But it’s for sure from the meds. Anyone else have...
I appreciate your input and insight. Truth is.... no one REALLY and truly knows exactly what’s up in this case. And in many cases. Lots of shades of gray with Lyme and treating Lyme. I’m just going...
Additional interesting update.... I spoke with my doctor today. I asked how the Bicillin could be kicking my butt so badly if this was a recent tick bite. He said that while I had gotten better from...
Update.... I spoke with my doctor today. Initially he wanted me to cut back on the Bicillin to once a week. But my fevers have persisted so I pushed back at that idea. So I’m going to cut it out...
Yep, will do. Waiting to hear back but I’m sure I won’t hear from him until Monday since it’s the weekend. Quick update is that the pain got better throughout the day Once I got up and moving. Fever...
Thank you! I’m thinking you are right. This morning I have a fever. No wonder I feel like such dog crap. I’ve emailed my dr....
Think I should stop altogether? I literally feel awful. Headache, neck ache, back throbbing. I did NOT have ANY of this prior to Bicillin. I will for sure stop for the week and talk to my dr and...
So I think I need to stop for a week and see what happens. Also causing insomnia. Can’t sleep ;(...
Thanks for the insight! So have you gotten better from the Bicillin fiasco? I can not believe what a s - - - show this is to navigate and try to get better. I’m also on doxycycline. I’ll give this a...
My C4a and c3 were totally normal early September. But I hadn’t started Bicillin then....
I was just reading about serum sickness and this doesn’t feel like it. Serum sickness often has fever, itching, hives, flu like symptoms, and can have muscle pain. I don’t feel flu like and I haven’t...
What was your dosage of Bicillin? And are you sensitive to meds and supplements in general?...
Hi guys. Hope someone has some insight as to what’s happening to me right now. I just had my forth Bicillin injection for a recent tick bite (two each week). So today is the end of my second week....
Hi guys. Just got Bicillin approved and we are adding onto doxycycline and azithromycin. I was unknowingly bit sometime between August 3-10 And symptomatic 8/28. Started doxy and azithromycin by Sept...
I think I posted updates from the hospital when I was there on the Healingwell forum but I’m not sure how you can find it. Maybe Gielie might know if there Is an archive if previous posts somewhere?...
The first time I was sick (I was acutely very very sick) I was on oral antibiotics for well over a year. I also got a terrible c diff infection in the process. Ultimately, I wound up going to a...
Makes sense. Which protocol do you think has been more helpful?...
Wow... that’s a lot. And your liver and gut have no issues tolerating? I’ve had issues with both since first bite in 2016 so not sure how I’m manage all of it. I’m going to push for IM Bicillin. Stay...
Do you think Dapsone helped you?...
Yes, THE Dr H. He told me his treatment approach has completely changed with the use of persister drugs like dapsone, disulfuram, pyrzidimide. He’s seem more long term success with these versus...
Hello. Sadly, I’m back posting here after a long hiatus of a number of years being healthy and totally normal after a two year battle with Lyme and co-infections. Unfortunately, I was bit again and...
Agreed. I’m think my doctor really doesn’t know. And any doctor that claims to anything definitive about covid is a a fool. We are all learning as we go. I just know I have felt very “limey” at times...
I’m sorry you are struggling too! Is your Neuro helpful?...
My doctor ran a western blot and PCR tests through Labcorp for Lyme, Bartonella (tested positive for Bartonella Quintana titers 1:256) and Lyme western blot IGG positive for six bands. The result...