And to answer your first question, I'll give you some context. I was diagnosed with Lyme (and possible co-infections) a year ago after a couple years of increasingly debilitating symptoms. I spent...
WalkingbyFaith - thanks for the insight. I suspect its not a UTI, as it seems to happen cyclically, alongside my other symptoms. I get flares in symptoms every 3-4 weeks (I suspect Lyme or Bart is to...
I am a male, so ovulation/menstruation is out, but thanks for the idea! And @dcd, yep - I'm pretty sure thats whats going on. It usually hits the same time my flare-ups do (usually every 2 weeks to a...
Hi Everyone! I've been struggling with a certain symptom pattern today that seems to pop up every couple of weeks or so, and I'm wondering how worrisome it may be. As I'm quickly starting to...
Hi Guys, Back on this forum again after a month long absence. Been treating mold with binders and seeing slow improvements (yay!), which I'm hoping will continue. Anyways - recently I've started...
True. I understand how much the mental weight of having Lyme might affect someone even after being mostly healed. But still better than being super sick! Hopefully as time goes by, you think about...
That's great, Girlie! I can't help but smile when reading posts like yours. I'm sure feeling that well after years of illness must be incredible. It helps hearing that you know people who have been...
Thank you for the reply! Every word counts, believe me. Thats great for her. Recovery, or full recovery, is certainly possible. Of that I'm sure. It's just hard to suffer from an illness that is so...
After a couple of weeks that seemed better than any in recent memory, I was hit hard last night. Joint aches, racing thoughts, dizziness, nausea - the works. As much as I try to maintain a good mood,...
Exactly! I've been on the keto diet since I started treating. Funnily enough, after a really fat-heavy meal I sometimes think I feel the fatigue/dizziness that would come with toxin release, but...
Anecdotally, I can handle only the most passive/non-aggressive herbal lyme treatment, clearly because of mild MCAS and the fact that my detox systems are functioning at low capacity. I had the same...
From my understanding, mycotoxins (and all toxins in a quantity too large for the body to immediately release) are stored in fat cells (which are present in the brain). Your liver/many detox pathways...
One last thing - different mycotoxins/toxins in general are absorbed at different rates by different binders. A small amount of a wide variety of binders is generally better than a large amount of...
Dcd, I've been using a combination of activated charcoal, bentonite clay, and a popular binder-mix called G.I. Detox that contains charcoal and zeolite. Be careful with dosages! Thinks of binders...
Dcd, I've been struggling with Lyme/Co's for about a year, making slow, unsatisfactory progress. I went down the methylation rabbit hole for a while, got a genetic report done, and found out that I...
Did you feel improvements living in your car? Mold can definitely be in cars, unfortunately....
Have you gotten tested for the HLA gene? Have you gotten urine mold tests to determine what binders might be most effective for you? The fact that you experienced previous improvement is a good sign!...
How did you realize the mold had come back after re-mediation?? Im so sorry :( Have you considered camping outside for a while, at least until your symptoms become more manageable?...
My health was going downhill due to undiagnosed lyme and candida before I moved (although I was still a functional student in college), and a month after I got to where I currently am I had a big...
I'm not able to copy/paste the results, unfortunately, but I can transcribe them. My significant results seem to be those for aflatoxin and those for ochratoxin. Ochratoxin is 'present' if greater...
Hi All, I recently got a urine-based mold test done by RealTime laboratories, and was wondering if anyone here might help me interpret the results. I won't be able to speak with my LLMD for about a...
P.S. I'm not sure if you are aware of this, but apparently Quercetin and ECGC both inhibit COMT function, which would be especially impactful for someone like me. I'm not sure if you take both these...
Wow DCD, thanks for the response! Feels like we are all fighting this together :) Thats an interesting paper - I have heard mention of Betaine being good for COMT peoples, but I didn't realize it...
Neil Nathan and Rich Van K did a study, and claimed to find that the majority of those undergoing their simplified methylation protocol (which was basically a multivitamin + 2000mcg Hydroxy B12 +...
I stopped for a couple weeks - you're right, it could be something that will fade in time, but I feel forced to give it up the second I stop being able to sleep. Secondly, I might be confused, but...
DCD - have you tried taking Hydroxy B12 and/or folinic acid? Or taking niacin to balance the over-methylation effects? From what I've read, it seems like you're methylation might start working better...
Thanks for the responses! Good points Dcd... I have looked into the riboflavin and MTHFR theories and they definitely seem to carry some weight. Whats strange is that the multivitamin I was taking...
So, I finally got my 23&Me tests back! My MTHFR 1298 was +/+ MTRR 4981+/- Both COMT's +/+ Interestingly enough, I didn't have the CBS up-regulations, which I thought I might have because of some...
Hi All! Sorry for posting so much - it seems like I just have so many new questions every time something in my health shifts, and this site seems like the best place to ask these questions... Anyways...
Hi Guys! Wondering if some of you methylation nerds can give me insight into the weird ups and downs of this continuous journey... I've been doing a bunch of trial and error stuff, trying to figure...
Thanks for the input. It's never exactly matched up with what I've read about babesia night sweats, so I've always brushed it off as a lyme symptom, but now I'm feeling confused! Maybe a cortisol...
I have been suffering from a strange symptom-set that comes and goes, and I'm wondering if you guys would consider these the 'night sweats' that those with babesia suffer from. Sometimes when I'm...
Hi All! I have recently lowered my carb-intake even further, pushing me into ketosis. I was hoping, prior to this shift, that a more strict low-carb keto diet might help me combat candida, and lower...
Sadly, I am currently in between doctors, so I will have to experiment alone until my next appointment in a month....
The difficulty I have had up to this point is deciding what to start with, dietary-wise. My stomach is my big -weak-point' hindering my Lyme's progression, and the problems are numerous. Candida,...
I have been talking with my naturopath about ways to improve my digestion, and a factor that has always lurked in the corners of my mind is low stomach acid. I eat a high fat diet and have...
Thank you guys for the comments - I really appreciate it. My stomach has been feeling worse lately, and most of those 60 grams of carbs come from a small bowl of brown rice I eat each morning. I...
So... I've been thinking about my diet recently, and ways to optimize it to get my body running smoother. I currently eat a very low-carb, low-histamine diet to control my candida symptoms. Hemp seed...
Thats what I would think. However, one of the authors of a methylation protocol claims that Hydroxy B12 can create this kind of 're-feeding loop' in which the body tries to generate Methylcobalamin...
Good idea - I'm starting to think that my 0 reaction to methylated complex and reaction to Hydroxy/Adenosyl might mean I don't have the MTHFR mutation or problems with methylated vitamins. Maybe I am...
The thing I am confused about is that I reacted to the Hydroxy/Adenosyl B12, and not the Methylcobalamin B12. It was my understanding that Hydroxy/Adenosyl B12 aren't methyl donors, so what gives??...
I've been doing a lot of experimenting, and consequentially a lot of posting on this forum... (haha) I have a question to those of you familiar with methylation imbalances/dysfunction. A while ago I...
What's also interesting is that my lymph nodes in my neck swelled up, which hasn't happened since I first got sick. I wonder if it was the viral properties of the Skullcap?...
I stopped last night, and definitely feel better today. The herx wasn't anywhere near my worst, so I don't suspect I'll have too much trouble titrating up. I'm just surprised, and wondering what...
Thats interesting! I have taken it before I contracted Lyme without issue, and my gut is telling me it will be helpful in the long run. It's hard trying to unravel why some things make us feel worse....
This week I've been feeling worse than usual - more anxiety, more fatigue, and more 'toxicity' - (this is the sign for me that it isn't a flare. Usually when I flare my symptoms get a bit worse, but...
I have seen a lot of debate on this topic, and wanted to know what you guys think about it. In the past month or two, I've begun to notice a little mucous like string in my stool the day after doing...
Boston is more than fine! Feel free to email me some names, if you'd like. I'd greatly appreciate it :)...
BTW, how long did it take you to get to that dosage, WalkingbyFaith? I've been on a modified Buhner for 2 months and I'm only at 3/4ths of a teaspoon a day (although I certainly could have been much...
From my understanding it is a potent immune booster. Its specifically good for lyme, as WalkingbyFaith said, because of its action on CD57 NK cells. However, I'm sure strengthening your immune system...