I’m in the midst of what I’m assuming is a massive relapse. Does this sound like lyme? Bart? Mold? Something else? My resting hr is suddenly now 100-113 almost always. Then I get this attacks where...
Ooh yes, Saraeli... I think your theory makes the most sense! And... Tks for asking... doing somewhat better! I’m doing buhner herbs ( almost a month now) and I’m seeing a tiny bit of improvement!...
Tku. This is helpful....mostly stuff I already knew, but needed reminding of!...
My 16 year old daughter last night developed numbness in both feet and the tips of her fingers. She was pretty hysterical because it was painful! She also had it in her face very briefly. After about...
After many years of suffering and many many starts and stops on many protocols, I am now trying Buhner. I am working with an herbalist who has been great about helping me customize which herbs to...
Girlie yes, but I’d really rather see someone in person....
Tks. I hope so. Now I need a new LLMD. It is not easy in nyc... impossible to find someone competent. Choices are : drs who only prescribe abx and offer zero other help OR the integrative/functional...
Hi all, I am not dead! Sorry fir not returning sooner..thought I’d give you all an update. I was supposed to do the lumbar puncture today but chickened out. I decided it’s definitely Lyme and co’s...
Isitlyme, can you please point me to where you have been reading the specifics of adverse effects? I’m sure they are well hidden. I can’t find them....
I’d like to say that I am super grateful to all if you for your thoughts , ideas, honesty , intelligence ,empathy etc. I’m on some Facebook groups thst are not allowing ANY postings about vaccine...
i forgot to say....I don't currently have an LLMD. They are all horrible in NYC...lol. I have fired them all and can't afford any of them anyway...
Oh and to Sara, mine is defintiely a cytokine storm causing neurological inflammation. Your symptoms sound VERY similar to mine. My POTS has flared as well , although generally as time goes on it...
thank you for that link, but I just can't deal with that at the moment. I seriously doubt i would get any compensation anyway , since the vaccine isn't FDA approved. I assume it would be a ton of...
Hey, Here's an update..not a good one , unfortunatley. A bit of backstory on me....prior to lyme and co's, i was poisoned by Levaquin in 2012, for those who may not know it is a neurotoxic abx. the...
Thank you. I have found that MD's (even Functional/Integrative ) generally don't know that much about herbs. Is yours different? Does he/she have deep familiarity of Buhner recommendations?...
Please send me names of herbalists that you have personally worked with and can completely treat with herbs , vitamins, supplements. Anywhere in the US is fine now that everyone is doing virtual!...
Tks for checking in! Unfortunately, feeling awful at the moment . Every day is different . I thought I was getting a bit better. Neuropathy is now getting worse and at the moment I’d also effecting...
Yeah, unfortunately I think you are right...
The homeopath said the only ingredient is a dilution if the actual Moderna vaccine...
I have been corresponding with this homeopath who claims she has an antidote. My BS antenna is going up. thoughts?...
Thank you Denise! I really appreciate it. I def already had chronic PTSD, so now there has been a lit match thrown at me. I am so angry that I gave in and took the vaccine. Over the last year, I have...
When I was addicted to benzos I used tons of benadryl, l theanine, CBD oil, magnesium, can use them all at the same time. There are some therapists that deal with chronic illness and even some that...
Went for a glutathione Iv today. Felt great for several hours. It’s 230 am right now... just woke again... hr not bad this time, BUT I woke to nerve pain in my hand and part of my leg along with...
Why an antiviral? I have nerve pain an heart rate issues.......
Can glutathione be given by IV drip instead of by push? I am being asked by my treating practitioner (nutritionist) to do this before my Mycotoxin test. The drs office that is willing to do tHis for...
Yes, 9 years ago. Neuropathy had been pretty much Gone for years. My case is complicated by the fact That I was initially poisoned by the neurotoxic abx Levaquin 9 years ago. It set off dormant Lyme...
Tku for your reply. A relapse is horrible enough. Some kind Of permanent damage is my fear. If it” just” triggered a relapse , then I should be able to recover. Wdyt? I could use some encouragement....
I’m not really on much at the moment. And afraid to o take anything until I know for sure what’s going on. The worst is I keep getting these tachycardia attacks. Dealing now with one. HR 115. So...
I really hope someone can provide some insight . I am really suffering. I took the first shot almost 3 weeks ago. Yes immediately reacted w intense anxiety and tachycardia. Since then every day gets...
Why do I have sooo much pain while sleeping?i wake up in the middle of the night feeling like I’m sleeping on rocks. Last night my shin started to throb so intensely! I get this horrid full body bone...
2 weeks...
Idk. I’m able to tolerate what I think is a lot of each of these, so I’m wondering if they are doing much. I’m at 3/4 tsp each of sida and crypto and 16 drops jk ( still titrating on all 3). Having...
Tku. And would you say this is enough? I’m only 6 weeks in with this combo... don’t I need more herbs to hit all forms of Lyme ( active, cyst, biofilms,etc)? And don’t I need more for bart? ( meeting...
My new ND put me on Japanese knotweed, Cryptolepis and Sida Acuta. Which microbes would this particular combination be targeting? ( I have Lyme, Bart, mycoplasma, no Babesia)...
Sorry , I left out a bunch.. also timing for probiotic, NAC. Ashwaganda...
I am very confused and getting opposing messages from my dr vs what each bottle says vs common sense. Can someone pls help? Is chlorella as a detox supposed to be between meals and must be away from...
I really need to find a new Dr with 3 hours of nyc max. I am seeking someone integrative and who is not 3k for the first visit. I have been to most of the well known ones and I find every dr to be...
It also makes it incredibly difficult for patients to get accurate information on which practitioners are good/bad, etc. I have been to at least 15 who are either scammers, thieves and/or...
Well, since I’m not supposed to say her name.. this is the NP that worked under Dr H ( the one with the books). Anyone know her? I’d really love to know if she’s a good practitioner. Her reviews seem...
Why do we need to use initials when most Lyme practitioners advertise their services?...
Hi, Has anyone been to the above NP in New York? Would love feedback. You can pm me. Tks!...
Has anyone on here been to the NP who used to work for Dr H in Rhinebeck, NY? Looking for some feedback on her. She started her own practice....
I haven't been on here for years...are we allowed to ask for practitioners on here? Specifically, can we ask if anyone has been to a particular person and how it went?...
By parasites I mean microscopic worms, amoebas, etc... I don't know specifically what I have, but have been told that I likely do have them and that the testing is basically useless...
Tks. I am pretty sure the TMJ/TMD is separate from the Lyme (well the Lyme is probably making it worse). I had to have two teeth extracted due to failed root canal and infection, so my bite is so...
If you knew you had all of the following (and limited finances), in what order would you treat these conditions and why? Dental Cavitations MARCONS TMJ Parasites Lyme Cheryl...
btw.....stopped the lymphonest and the cbd oil. lymph node pain is pretty much gone! Of course, now I don't know which of these things caused it. I still need to know why I have the high ratio of cd4...
I was tested for every single autoimmune disorder....all negative...
omg..had no clue re : the CBD oil! I will try stopping that and see if anything improves. My EBV titres do not show current active Doe anyone know what the high CD4/CD8 ratio means? also, seem to be...
I havent been treating for quite some time. Kind of gave up after trying dozens of protocols and then ran out of $! Lately, just try to eat clean, take a handful of supps.....vit c, lymph detox, mag,...