i have had periods where there were no measurable progress for 2-3 months - and then without doing anything different - had significant improvements in the next month i think its common for the...
thanks for keeping us posted i didnt know Mayo did its own testing for babesia there is some indication that because it sequesters in capillaries and may not be in blood drawn from a vein - capillary...
thanks for the replies i may well try it - currently i am taking 100mcg of T4 ( levothyroxine sodium) and 35mcg of T3 acc to my blood tests for the last year or so / since i stabilised on the above...
the risks from using corticosteroids like prednisone in lyme disease patients are very real controlled trials were done early on in the disease's history in the USA with patients who had...
i have seen this mentioned a few times now and keep meaning to post about it as i know there are a number of people here suffering with thyroid problems triggered by these infections Dr Westin Childs...
again - its not a sprint Jamistarr very often treatment is more like gradually peeling away layers over time - than throwing multiple antibiotics at it from the off and trying to cope with weeks of...
apologies for singling you out Fengleman for some reason i was under the impression that you and Brantheman were the same person 🤦🏽 good of you to apologise none the less. all the best!...
Cheers Brantheman 👍 have a great day yourself!...
likely LLD in the context of Lyme disease is being used as shorthand for Lyme Literate Doctor which is a variation of LLMD - or Lyme Literate Medical Doctor - used to signify that the doctor is a...
yep - herx reactions can definitely last a week or more - but if you stop taking the medication that's driving them they will usually start to subside after a few more days as baily mentions - these...
yep the drug is a relatively shot half life - but we know immune mediated effects can last much longer think about a week long herx from a single day of abx - if it were me i would give it at least a...
good plan RW let us know how it goes consider using the diy liquid technique with your low dose tablets you can then dose easily and consistently below 0.1mg given your experience i would suggest...
Jamistarr - here are instructions for posting an image taken with your phone of via the PC etc How to post images The forum does not support posting images directly from your PC or phone – But to...
yep - in fact one of the criticisms of the standard Two tiered test method for lyme - that uses C6 Elisa first and then the western Blot second, is that its the reverse of the logic normally used in...
i used it for a few years - in tablet form - i think i worked up to 3x 400mg tablets 4x a day ( buhner's recommended dose i think) - its was one of the brands he used to recommend this one...
I think this matter is largely resolved and the heat now dissipated. I would however like to highlight that, although I think everyone here can understand why emotions ran high on this occasion, this...
Good Luck Colin GP's can be a barrier - as they are taught to disregard tests from private labs like Armin i printed their laboratory approvals to show my doctor when i showed him my results and...
yes - unfortunately this group of illnesses is very confusing and hard to navigate if at the same time you have some kind of withdrawal going on - then that will likely complicate things somewhat...
hi Rob, i have looked into this a little in the past and will share what i found my understanding is that the research in this area is incomplete - and gaps in our understanding may have been filled...
in general you are correct however there is one well respected infectious disease expert in Dublin who is very familiar with Lyme disease and its co-infections - he is also a prominent member of...
Hi Colin i am in Europe also unfortunately its quite common to have a mixed set of positive and negative results when testing for lyme as at the current time there are known problems with the...
yes, it does sound like a typical herx reaction its actually a sign that the medication is doing something -and an expected part of treatment - but they can be distressing and often treatment needs...
for information - not all moderators have access to the moderators forum i am not able to access it for instance moderators have no way of knowing what is being discussed in a restricted forum they...
i don't think there is a process as such i flagged the overzealous moderation to Admin - using the Alert Admin button just pointing out that the OP was asking for support - and received support - no...
i find this very strange no one discussed it with me nor with Girlie as far as i know or Saraeli? these are the three active moderators on the Lyme Forum who have the best grasp of the community they...
i thought i had a post saved on this already - but cant find it - so will recap below ---------- basically i buy normal dose naltrexone from a reliable online pharmacy. 50mg x 10 is around $15 i...
hi Dude i dont have any data on the reactivity of LDN itself - but there was extensive trials of medicines years past the use by date done by the US military due to the huge stockpiles they have to...
hi Noxon most of us have all standard blood tests in the normal range most of the time mine were all typically normal - even when i was at my sickest occasionally a single marker would be on the...
yep - so many stories of either 1, i took it at XX dose and it did nothing for me - so i stopped or 2, i took it at XX amount and i made me so sick i had to stop whereas in fact a strong reaction at...
i was also disappointed by this I emailed Girlie earlier to see if she can unlock the thread - so the OP can still get support i am a moderator - but it seems some moderators have different...
yep - some people are just extremely sensitive to it and report intolerable effects at even what are considered small doses - as in Loski's example this is especially common in people who are known...
i think almost any antibiotic has limited activity against a specific life stage of Babesia ( its a complex organism with many life stages) - this is why an antibiotic is usually added to an...
yep - i added a post...
yep - for instance - did the transition ever happen? the website changed in appearance for a day or so - then was down for a while - then old style website was back up. so users are not clear what...
thanks for asking for an update Girlie (its locked for me by the way )...
Hi Sara - i do have a spreadsheet where i looked up properties for a lot of the common ones including half life, bacteriostatic vs bactericidal, beta lactam status etc i could email it if you would...
Good find Rainy i was remembering that study while i was writing the above post but in that study the researchers did some slightly misleading things in the way they did their experiments - rather...
rifampicin is what's called a bactericidal antibiotic this means it actually kills bacteria directly most antibiotics are actually bacteriostatic - that is they slow the growth or prevent the growth...
thanks for the links Rainy i am a little more tired today than normal - but no PEM - and still managed my morning workout ref the peptide - good to see there are at least some safety trails for it...
its not their usual mode of operation - generally they mainly like lowish undergrowth in mixed woodland / grassland or borders this where tick concentrations are normally highest here they climb to...
this sounds like an interesting one fatigue and PEM have always been my most limiting symptoms ( though yesterday i did 2 workouts with weights and walked up a local big hill in my best time yet -...
hi Lymie i think his main innovation is a test that seems to be able to determine what people are suffering from - out of a range of previously hard to distinguish conditions Long Covid, ME/CFS,...
Agreed - especially as this forum is essentially the only active one on the whole board - effectively driving all the owners revenue from the venture. who knows - perhaps it doesn't even pay for the...
not tried it - but the guy has a good track record in mainstream research and held in good standing with his peers - his published peer reviewed papers are quite compelling and i think he has...
Hoagie thanks for posting your update and congratulations on your recovery - its always good to hear for those of us that are unfamiliar - could you give us an outline of what your BVT protocol...
there is no need to be scared being under treated for thyroid is not ideal - but not life threatening - it mainly just reduces quality of life the explanation for doctors saying "normal - no...
hello again yes, these infections can trigger auto-immune diseases - especially hashimotos that is what happened in my case - its fairly common in this community - but not present in all lyme...
good luck whichever way you decide Duncan !...
i am also a little suspect of the MTTT my C6 has also been negative both times i was tested - better perhaps perhaps stick to western / immunoblots then given that acc to the CDC - which presumably...
this newly discovered antibiotic appears to block production of bacterial lipoproteins - while sparing most of the normal flora in the human gut microbiome the lipoprotein targeting part may turn out...