Thanks. Be well yourself....
I do not. However when symptoms flare, I will have tingling across my forehead (like now...pulse starts in 2 days)...
I have both Lyme and Bartonella. I'd be glad to answer your pulse question via email ///////////////////////////////////////// We’re not permitted to post contact information - but you can put your...
My journey. I first started on this forum. Lots of help and support from people on here. At a certain point you will need to take charge yourself. I wish I had known what I know now, 10 years ago. I...
Man, this is really the worst now. Seems the more I talk during the day, the worse the soreness/pain becomes. Goes away after a night's sleep but starts up again the next day. Anyone had this? It's...
Dr F in West Caldwell....
Been working with the same Naturopath for a long time now. We're thinking a new set of eyes might be a good call. Thinking about it. Tough call as it will mean more $$$. Been treating Lyme and...
When my panel was done 7 weeks ago it came back low for both ABSOLUTE CD3 CELLS (822) and ABSOLUTE CD19 CELLS (81). From this my doc had me start Samento. Honestly, I haven't really felt a thing...
i think i pasted this link a thousand times on this forum, it's a very important find: http://journals.plos.org/plospathogens/article?id=10.1371/journal.ppat.1004976 " Furthermore, influenza...
Rifampin works. Made the back of my neck sore. That and the pee color....
My doc has had me on Valtrex since we found out it was reactivated....
What are symptoms of this? What I'm more of less hanging onto is the fact that my body is trying to readjust to being on abx for so long, but this may not necessarily be the case completely....
Actually, that IS something you need to know, and I would disagree. I learned a ton by going over my test results about what I was facing and how to heal. They can contain important information. If...
One of the things that came back with my last blood work was that my EBV was reactivated. I should take my wife's advice and not read some of this stuff. This next round of blood work results could...
This scares the living sh*t out of me. Wow. Good info. Thanks....
oh but there is. Shiitake https://www.ncbi.nlm.nih.gov/pubmed/22164761 Maitake https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1160565/ Tell your doctor about them, maybe they can be useful. These are...
So I've been off abx for almost 7 weeks. The reason is to see where the I'm at with Lyme and Bart as I'd been on heavy abx for over a year. I see my Lyme doctor Monday and we will do some blood work...
Worked my way via the Cowden Protocol up to 30 drops twice a day. Been on this now for two weeks. Today right after I took my dose before lunch I started feeling very uneasy; tingling all over and...
Tests have come back just recently for those who are interested and/or following this thread. I have some immune cells that aren't producing antibodies and I'm trying to stimulate them with Samento....
Tindamax (Tindazole) was awful. I started on a lower dose as well and worked my way up eventually to 500mg twice a day. But those first few months on it I could barely function. It's the Lyme form of...
Thanks. Has anyone *really* beat this or are we all just managing such so that we don't have the flare ups. Has anyone gone back to their former life at a full 100%? I don't want to be Debbie downer...
Anyone know anything about this? This is NOT the IV thing. I'm particularly interested in those who have been on abx for a long time. I've been on pretty heavy abx for close to three years now (and...
I just can't believe things have gone so south without any indicators that I should scale back. Very frustrating....
Figured out another culprit...non alcoholic beer. I've been having one a night for a while now, never more than two but they certainly don't help with the yeast intake....
Dr. F and her staff can be a challenge but if you go in with a positive attitude she will do everything in her power to get you back. She is very, very aggressive in her treatments and doesn't sugar...
Hey Trav, Yes, that's my guess. The yeast may be getting bad. See, with my travels it's tough to take the refrigerated probiotic with me so I've been taking a lesser probiotic for probably a third of...
Hope this will help/inspire those who may need to know there's a light at the end of the tunnel. But that you also have to be careful. I've been treating both Lyme and Bart now for two and a half...
I won't have diarrhea but I will have multiple poops a day and occasionally my anus will be sore. I'm convinced this is the time I'm pooping out the bug residue or whatever....
Dr. F in West Caldwell, NJ is the best around....
It's frustrating. Thing is I've been able to go on 5-10 mile bike rides and now I'm wondering if I should just chill a little. Not exercising drives me bonkers....
So everything was going well, making progress with my abx cocktail and a few supps when I got approved for IVIG. I mean I was around 90% and some weeks even higher. Prior to IVIG I had no issues with...
LLMD just got back to me. With travel ahead we're going to stop the Biaxin and Rifampin for the time being and then re-draw when I return from my trip....
Thanks Trav. Could be my body is trying to do too much. I've definitely felt more fatigued/lethargic lately. Was really feeling good. 90% most days which is a huge improvement over those dark days of...
On my 8th weekly IVIG infusion and my WBC is now at 2.5. Supposed to be 3.4 and above. Ever since I started IVIG we've been seeing this. Two weeks after first treatment went down to 2.9. Two weeks...
After an initial office visit that resulted in the doctor not finding reflexes in my feet, he ordered an EMG which showed the nerve damage. He believes it came from the infection but I'm not totally...
Some of you who have been on here for a while may remember my case. I have gotten a lot out of this site and there are some truly kind people here. 4 years ago started feeling lousy. Took three...
Dr. F in West Caldwell, NJ...
Really. LLMD west Caldwell nj It's the first one that came up....
Google?...
If you want to get over this dreadful disease you will go to her. She is expensive, aggressive, thorough and caring....
Dr F in West Caaldwell. Period....
Those with neuro lyme symptoms with Bart need only apply. (ie all symptoms in head) Been on IV Doxy for a month now along with Rifampin. How long does it take to notice a significant difference? Or...
Thanks Trav. Will do....
IV Doxy 2x/day and starting today ramped up to 300mg Rifampin First few weeks on the IV Doxy was pure hell (it's been 3 weeks today), I think it'll get worse again now. Been treated off and on for...
Been there, done that. Try not to do too much, even on those days you feel better. Do one more thing each day, that's it for a week and see how you feel. Then go to two extra things. Great to hear...
Would be interested in your thoughts. This afternoon has been rough. I added lipo glutathione yesterday and today I'm much more inflammed. Is this a herx? I thought the lipo glutathione was supposed...
Unisom looks like it has double the same drug as ZZZQuil. Thanks for the reply....
A friend recommended this. Never knew it existed. Anyone have any success with it? I'm currently taking 5 to 10mg of Ambien to sleep and would love to switch to an OTC product. So far nothing else...