Couldn't tolerate Mino. I started with 100mg twice daily which is a high dose and only lasted one day on it. After the evening dose I had an episode where I saw flashing colored lights followed by a...
There's also Dr. B in Ashford and Dr. S in Bridgeport. Dr. B is big on Dapsone and also likes meth blue while Dr. S thinks Dapsone isn't worth the risks and sometimes prescribes Disulfiram....
Honestly I don't know much about Kaletra to say. Just saw a bunch of warnings. Patterson's treatment doesn't just lower cytokines that are elevated. It actually removes monocytes that have dead...
Quin- Thanks for the reply. Yeah this person combined it with Biaxin to go after the log phase. I think Kaletra is a bit too serious of a drug though so I enrolled in Patterson's covid long-hauler...
Has anyone tried this HIV drug? Someone posted a success story on the babesia page on Fb so apparently there is at least one LLMD trialing it on Lyme patients. It was one of the better performing...
Could it be babesia? After Lyme SOT I had both bart and babs flares but when babs flared I had a lot of trouble sleeping. It had gotten better but now after the first Moderna vax I'm waking up early...
I'll put my 2 cents in. Had the first Moderna 4/15. Not doing so hot. Symptoms are flaring almost similar to when I did Lyme SOT back in July of last year though SOT was even worse. I'm most probably...
MarkD- That's really awesome news! I hope you keep improving. Keep up the updates. I got my test results. Babesia duncani is still positive and as I suspected I have Bart as well. Too many strains or...
Girlie- I remember we had this conversation a while back. Not sure if you remember but I thought it was babesia that was usually the culprit with regards to weight loss. You disagreed and said you...
Bart has not cleared in any way. I just did my Lyme SOT 6 weeks ago and bart is flaring. To be exact my results were: vinsonii and elizabethae IgM + henselae IgG +...
I did Galaxy last summer and Bart came up negative. Just got my IGeneX Bart results. The Western blot tests for 4 sub-species of Bart. I came up positive for 3 of them: henselae, vinsonii and...
Walking- I have the unrelenting tingling/burning in my legs as one of my regular symptoms. This is always under Bart in the symptom charts. My face now since SOT feels similar where it's more of a...
MarkD- I'm not as severe as most yet I have Lyme, Babs and Bart. It's quite obvious to me now that Bart has always been my dominant infection. I've heard it tends to dominate in Lyme patients and do...
MarkD- Glad to hear you're seeing some improvements. Consider yourself incredibly lucky if you don't have co-infections but I'll be honest with you that is really unheard of not to have them. Lyme...
1-month update: Today marks one month since I received my SOT for Lyme. I'm still fairly early on in the process but unfortunately I have to say I'm worse than before. It's not a knock on the...
Update: I'm still seeing co-infection flaring. Last week it was babs where my heart was pounding, had some night sweats and air hunger. That disappeared and now Bart is flaring. Feet hurt Saturday...
RainyCloud- It's very confusing what RGCC does but the practitioner in Georgia that has administered the most SOTs says they look for the Tec1/16s genotype in your blood which is found by DNA...
The herxing was tolerable for me and for most as far as I can see in the Fb group so I don't expect yours to get bad but I would highly recommend the Alka Seltzer Gold. It even helps my tachycardia...
Good luck Mark! My herxing lasted about a week. My last day of herxing I felt like I had a low-grade fever and what helped was Alka Seltzer Gold. This is a powerful treatment. It kills so much Lyme...
MarkD- Had my SOT on the 20th. Decided to start with Lyme after all since that is what I originally ordered. I have to say I strongly believe it's already killing borrelia. The die-off I'm getting...
Girlie- Yes Rifabutin was exactly the advice this woman who did the Lyme SOT and got rid of her neuropathy gave me to see if it stirs up Bart. She feels I definitely have Bart because of my equivocal...
Well I spoke with a few people today that feel it's borrelia for me. One of them got rid of borrelia with the Lyme SOT and her neuropathy is gone. Another it has improved. That would be great if it...
Thanks for the update. Phage therapy sounds intriguing. You just never know what's going to work. I hope you continue to see benefits as you get deeper into it....
Thanks Quin. I hope you're wrong in my case. Do you have pain? That seems to be a hallmark with Bart. I have no pain....
Thank you Girlie. If that's the case then going for Lyme SOT makes sense for me. If Bart is causing my symptoms then I may be disappointed. Trying to figure things out. The only risk then is babesia...
My main symptoms are fatigue, tingling/burning in my legs and to a lesser degree feet, feeling flu-like and cold or chilled, rashes and unexplained weight loss. The only antibiotic that I herx hard...
MarkD- Yes I think that's a very good idea. I'm seeing in the Fb group with some, Lyme SOT is enough but with others it can cause co-infections to flare. I had to retest for babesia duncani last week...
MarkD- Have you tested for babesia duncani? IGeneX is one of the few labs that test for this species. That's how I found my babesia. It's very rare to just have Lyme. Not impossible but almost....
Girlie- I have seen many successes with DSF in the Fb group. There are some though that have had big problems with it so there's a risk of actually getting worse. Time will tell if it's only a...
MarkD- I had my blood drawn for Lyme SOT 2 days ago in NY. The nurse said it takes exactly a month for the molecules to come back so you should see it sooner. The doc said this and Disulfiram are the...
Yes sounds familiar. I get the tingling, fluish feeling, chills and back muscle pain as herxes. I agree with your LLPA because I get these from Lyme drugs like Doxy. Even the yawning is a regular...
dcd2103- Testing isn't very accurate but neuropathy can also be from Lyme. I believe mine is after experimenting with different abx and herbs and seeing what hits it. I don't feel I have any of the...
Lapis- Supportive oligonucleotide therapy. It's a one-time infusion of mRNA synthetic molecules that stops the replication of Borrelia or whatever it's made for. The clinic you're working with sends...
Interesting Charlie because I'm seeing this exact phenomenon in the S.O.T. group. There are many getting better from SOT but a small group of people have gotten worse. The symptoms I'm seeing mostly...
It hasn't helped with Lyme unfortunately which is surprising considering the severe herxing I used to have with it. I won't be stopping anytime soon though because I haven't had a sinus infection...
At high doses it does change my bowels where I'm looser but also constipated if that makes sense so I stick with 3-4 grams a day and that seems ok....
I'm taking monolaurin and while it hasn't helped any of my Lyme symptoms I haven't had any sinus infections this year and I usually get about two a year. I will never be without this stuff....
Like Girlie fall and winter are worse than the summer and I feel very cold especially when flaring then come the daily rashes from December-April....
JovaLyme- you missed the newest treatment out there: S.O.T. A vial of your blood gets sent over to a lab in Greece. This lab finds the RNA sequences Borrelia uses and does some kind of gene splicing...
JovaLyme- I think you're probably referring to Dr. Schaller who writes for the Townsend Letter. He thinks artemisinin is outdated for Babesia and recommends Zhang's artesunate instead. He may be...
I don't see how astaxanthin is going to do anything for Babesia or Lyme/co. You actually want the opposite which is to create free radicals. That's how some of the Babesia killers like artemisinin...
Wow how crazy! I've done a lot of experimenting with herbs and meds sometimes just to see what I react to and have come to the conclusion that this is most likely due to Borrelia. Do you also have...
I'm the same. Mornings when I just wake up are usually the worst for me. I think the bugs party while we're sleeping. Do you sometimes wake up with this feeling like you're just sick all over like...
Well if someone can explain why early treatment with Rocephin and even Doxy is successful with co-infections present I'm all ears. I've even seen it with chronic Lyme mostly with Rocephin and a few...
DeadMan- That is the study and also is the one with Disulfiram that is just now gaining traction. It takes time to develop oral versions of drugs that are only in IV form and then there's the time it...
It's only available via IV overseas but Hopkinton drug turned Rocephin into an oral form using liposomes so I called them and they are interested but are having trouble finding it in formularies. If...
Azlocillin sodium is another drug to watch as just like Disulfiram it completely sterilized Borrelia in vitro in that Stanford study. Currently it's only available overseas and in IV form but a...
jb1994- You should really think about adding in Rifabutin to your mix. According to Zhang's research you need it to hit Borrelia persister cells but it has to be in the right combo. Another good...
Has anyone tried this? I see one person Aurora on here that has had good results with it but would like to see if anyone else has tried it before asking my doc to prescribe it. Thanks...
Hey guys you should NOT be taking copper with Disulfiram. One of DSF's metabolites Dithiocarbamide combines with Cu where it gets deposited in the myelin and causes neuropathy. It also travels to the...