I do not post here often anymore (just taxed out emotionally and have great difficulty even asking and answering about Lyme anymore) but my daughter is still sick and I still come here to read often....
My daughter has also tried remedies from a classical homeopath. Remedy prescribed was ordered to be given as follows: 1 drop in 4 oz water. Then take 1 drop of that solution as the dosage. That...
Yes she’s on 15 mcg T3 and 50 mg T4. But did not take it the morning of the lab test. Ok so with these antibody numbers, would you think Dr would want ultrasound of thyroid? She is also currently...
Got the results of last weeks lab tests from lab corp: ACTH, Homocystine, 17-OH Progesterone LCMS were in normal range. TSH 1.690 (.450-4.5) T3 Free 3.0 (2-4.4) T4 Free .98 (.82-1.77) Reverse T3 17.5...
My daughter has suffered from POTS symptoms for a long while now. Current dr is now trying to alleviate some of those with medication bc previously we were just waiting for things to clear up as we...
It was done at doctors office at appt. Bill came through PathGroup. Also, she had not skipped thyroid med that day bc we didn’t know they were going to test. We are actually at LabCorp now getting...
She had a blood test for the alpha gal but it came back negative. The beef thing only started about two years into treatment. It just makes her feel so nauseated and sick to eat it. We have also...
I’ve been going over labs and these are the latest results I’ve found: Antithyroid Peroxidase= 14 (<9-34) Antithyroglobulin = 16.5 (<10-115) I saw carnitine levels marked low Carnitine free=20...
You guys are so helpful. Astroman, I replied to your email. I get what you’re saying and Blakeley has in fact felt terrible for years but most recently thought we had a better handle on lyme but...
Wow, Quin, i realize how little I know about Adrenals from your post! All I know is that since the first year, we’ve been told that she is in constant fight or flight and her adrenals need support....
Medicalnerd, how to address adrenal fatigue in the best way? The hydrocortisone I know was hopefully a temporary support bc her symptoms are so bad. Also we have been supporting her adrenals for...
Thank you for the link. I watched the video and will certainly pass it on to Blakeley. It’s easy enough; I say why not give it a try! :)...
Lol thank you for calling attention to it and making me laugh, wbf! I just read right through it as ashwaganda. Major serious mode over here but sooo funny 😂 Astroman, gotcha on the adrenal...
RainyCloud, I did not see your post. Thank you for bringing it to my attention! Blakeley had an MRI around the second month after becoming ill. Report said all was normal except some cortical volume...
Astroman, your comment that you were treated w synthetic thyroid med which made no difference in your symptoms…yes, that’s what I feel like. She has been taking t3 and now this combo of t3/t4 and...
This isn’t the way I wanted to show back up on this forum. I have wanted and tried many times to post here with an update on Blakeley or to respond to another member’s post. I had hit a point where I...
Of course, I am absolutely NOT wanting to get into any kind of arguments at all regarding the CV shot. I have heard some Lyme and other chronically ill patients claiming that they have spiraled...
My daughter feels bruised to the touch. We (her little siblings) have to be careful about touching her too hard or climbing on her bc it does hurt. She’s had this symptom the whole time she’s been...
Wow, I did not realize the impact of a virus. We’ve been sick before, of course, with so many people in the house. But your symptoms do mirror hers exactly. Did you keep treating during the five...
We are currently in the process of that. It has been on the radar for some time but we are now following through. A Lyme friend of ours suggested the sudden crash could me exposure to mold...which we...
She took antibiotics, diflucan, biocidin, malarial drugs (can’t remember name), etc the first year of treatment only to see no improvement and seemed more toxic and bed bound. Second year began...
Cignet, my heart just breaks reading your post; your words are so honest and I feel it all for you. It sucks big time. We also, have tried seemingly everything for our daughter and see only fleeting...
I’m interested in this as well. Any confirmed treatments that eradicate it besides antibiotics? Herbals or homeopathics?...
I would guess she has adrenal issues after all this but haven’t really studied on that much. She takes a product called Adrenavive for support. Ingredients are ashwaganda, skullcap, eluethero,...
After a few months of fairly decent functionality (of course with typical ups and downs) my daughter Blakeley has crashed worse than ever in the 2 1/2 years we’ve been treating. Suddenly last...
Ok thank you all for the input. I may just give them a call back then. I was just worried about what to expect! 😊...
Based on so many good experiences here from people using ADC, I have tried to place an order. I have received two phone calls from them regarding my account/order and message stating to call them. I...
My daughters eye problems is also the right eye. No physical problems can be found with the eye or nerves by regular eye doctor or Neuro opthomologist specialist. It is crazy. So what causes the...
How is your dd today? We have been working up on sida and crypto for seriously prob close to a year. An increase of one drop makes a herx for Blakeley. We are finally up to 7 drops of sida and 4 of...
I have done the same! I have accidentally given my dd too many crypto drops instead of sida and houttunyia. I have to say the herx was awful and lasted days. I felt terrible about it but we just...
Just saw this! Thank you for the information. I will definitely look at it. Blakeley had a horrible month of June. Really big setback, possibly due to herxing from trying to increase herbs, but...
What about treating parasites? Seems there is sleep disturbance from that. My daughter treated w herbal remedy and took l-ornithine before bed and seemed to help....
With mimosa pudica, she noticed odd things , mostly long stringy poo and mucous things. Our ND said that the product itself can cause such and it’s not necessarily parasites though it may appear so....
Mimosa pudica have my daughter no problems, but I remember reading here that others had terrible issues from it. Black walnut, cloves, and wormwood herxed my daughter for two months! She can take the...
Thank you for sharing! That information is exactly what I have been thinking every time I see a kid swiping their mask around or dropping it and then plopping it right on their face. Thankfully, my...
Girlie, yes, she has regular check ups with local eye doctor and also neuro opthomologist. They find absolutely no problems: no optic nerve swelling, no physical reason at all for any of her vision...
My daughter has Lyme and her vision issues may be what upset me the most. She can’t read or drive and lately her vision just grays out for a few seconds every few minutes. She is on treatment for...
What kind of doctor? She sounds very knowledgeable....
My daughter took antibiotics for close to a year, three different kinds at a time, until her gut could handle it no longer. She has not been on them since end of 2019 but has plenty of herxing from...
My daughter gets air hunger when we treat Babesia. Even going up one drop of cryptolepis can cause it to be severe where she is even making a gasping noise. My little one (age 2) will take notice of...
My daughter takes it regularly but it has not stopped a herx quickly or near completely. If she is just feeling a little bad, she says it does seem to help and always wants to me get another bottle...
How long did it take you to get up to full number of drops of crypto? Big time herx for my daughter going from 2 drops to 4. She’s back to starting over and it seems like it will take forever to...
Oh that’s great! I hope you find the right help for you....
In person. She had to miss a couple sessions due to weather (snow/ice once and two weeks later tornado warnings LOL... Alabama weather) Remote/phone appt was offered but Blakeley didn’t want to do...
Thank you for responding. Blakeley has really seen great benefits from this therapist. She really really likes her and is dealing with anxiety and panic attacks far better. In fact, no panic attacks...
Saraeli, you have posted before about your experience in counseling and with EMDR. I would love your input on Blakeleys experience so far with it. She had the first session last week with a trained...
Quick update: Saw a neuro opthomologist today who confirms after much testing that Blakeley has zero swelling or inflammation of optic nerve, no nerve palsies, no inferior physical condition or...
This is interesting as my daughter has a muscle that tightens up and cannot physical be moved when in a spasm. Chiropractor has tried to help to no avail. I will have to research this therapy. Where...
Oh my gosh! I hadn’t thought about the parasites exiting other places 🤮 I guess I thought they would just die and somehow be absorbed by the body/brain??? I wish I knew for sure!...
She started w the LLMD in GA in July 2019. We took a break from her at the beginning of 2020 bc blakeley couldn’t stay on the antibiotics any longer and LLMD was offering no other options. She also...