I also was more active here in years past but came back to see what was being said about the V. Regardless of what we each decide, it has really helped me to know that others are facing the same...
Huddie - I’m new to reading your posts here but not new to this forum and I just wanted to say that you put this most recent response into better words than I ever could have. I look forward to...
I appreciate your response, too. After all you’ve seen, how could you not plead for everyone to get it who is eligible? I am sorry about the losses and long haulers you’ve witnessed. It’s such a...
I am hyper aware of the stats about vax and hospitalization rates. And the risks of long covid. I stress about the vax decision daily. I wasn’t talking about a naturopath. Two LLMDs (in addition to...
Huddie - who’s your doc in Kansas? My LL doc is there. She’s also saying no vax....
Keep us posted on how it goes!! :)...
Huddie - it’s so hard to know what to do. Trust you will make the best decision for YOU. But I wanted to offer some of the points that have led me not to get it: -Two LLMDs and an LLND who all know...
NN did give many more steps, but I havent been able to tolerate the strong mold binders (welchol) yet. Still playing with it all. :)...
Thanks for asking! It was a die off phase for sure....lasted about six weeks total. I’m now on 4.5mg LDN daily and doing much better. It feels like the LDN and the Buhner herbs are harmonizing as my...
I removed carpet (which is where my HERTSMI was taken) and put in hard wood floors. I live alone and those helping me said this was the best option since there is no where else to put me. I don’t...
Yes and it was great! It was before this slump though....back when I though LDN was a miracle worker! He’s set up a 6-9 month plan for me to deal with Bart and mold. But I have to stabilize on LDN...
My functional med doc and my Lyme doc are pretty adamant I don’t have mast cell activation. I know it all overlaps to some degree. But LDN really, really helped me for a while. I think it’s more...
My doc doesn’t think I have MCAD. But she has always said I have CIRS even before LDN. Did LDN give you months of benefit before the MCAD set in?...
Girlie and dmw52: I’m sorry you had bad reactions. But I had a MIRACULOUS reaction for four months. After ten years of mostly bedbound. I’m looking for a reason it went from Miracle to nightmare....
Thanks! I saw this earlier. I wish it were a little more recent so I could see how this person did. I’m also looking for something that I could show my doctor. This decline was gradual and...
Thanks :) The LDN is prescribed by my functional med doc who isn’t a lyme expert and only prescribed bc I asked for it. I’ve been working with a Buhner herbalist for two years and progress was pretty...
Hi all - question for LDN users. :) I started LDN in December at 0.5mg and increased slowly by 0.5mg every few weeks. I started feeling so much better and was able to leave my house for the first...
Thanks lapis, I’ve taken oregano and garlic before but never noticed anything with them. I’m taking the herbs apart from the lecithin for the most part, but I still like your theory. Did you read...
Do you think it’s a die off response? Has it lessened as you’ve continued?...
Over 20 herbs —Buhner herbs for Lyme, Babesia, and Bartonella as well as parasite herbs....
With herbs. But it shouldn’t interact, right?...
Hi all. I’ve been at this long time, and experienced many herxes by many treatments. But every time I take sunflower lecithin, I get MASSIVE herx-like muscle aches, sore lymph in my neck, and other...
Sebreg - there are no follow ups. It’s a one time thing to give “direction” and what to tap into first. He does review any labs and note you send beforehand. I’d love to get to California somehow and...
WalkingByFaith — thank you for your compassionate response. I got the BEG spray from Dr Brewer here in KC. Silver spray didn’t do anything for me. What are the side effects that caused Shoemaker to...
RainyCloud - I didn’t think so. I didn’t improve at all when I left mold despite lots of binders and detox and nasal spray. I recently sent in an ERMI (also super $$$!!) for my current place. I don’t...
Thank you all for your responses. I have not tolerated oral antibiotics, but I also have not had a doc that I trusted prescribe them. I’m unable to travel at this time. I just completed another ERMI,...
Has anyone here done a Skype consult with Dr N? He offers stand alone “advice” sessions for $500 (!!) an hour. Has it been helpful? I am in Kansas City, bedridden for years with Lyme/Babs/Bart/mold,...
Thank you, Trav. Where are he financial links?...
Hi all, does anyone know any reasonable living and care options in the Kansas City area? I live alone with my sweet pup and have required 24/7 since May 2017. I need help eating, getting on bedside...
Hey BlueSkies and Girlie, would you guys mind sending me the Kansas City lyme doctor lists you mentioned above? Thank you!! :)...
Hi :) My doc is considering adding Benzathine Penicillin IM three times a week. Can anyone else here share their experience? I know very little about this drug. Thank you!...
Hi BlueSkies, RUSS504, and Girlie. I'm going to piggy back on KatinMO's request. Could you also email me the names of the docs mentioned here? I'm also in KC. Please send any names you have but note...
Ok. Thanks! But just to clarify -- my problem isn't which cat's claw is better. I plan to take both. My problem is with Woodland Essence CC (tomentosa) strength only being 1:7.5 and wondering if that...
Herbalwhz- Buhner says to take both kinds of cat's claw for neuro lyme. My problem is with uncaria tomentosa. The Chinese cat's claw tincture I have is fine....
PeteZa - thanks for your response! Yes I have both forms of cat's claw for neuroborreliosis. The Chinese cat's claw is 1:5 and it is strong. I can only use 10 drops. It's the regular cat's claw --...
Hi all! Has anyone else noticed that Woodland Essence's cat's claw is only tinctured at 1:7.5? I had been using Mountain Rose which makes it 1:4 and I haven't received the same benefits or herx sxs...