Just got my CIRS labs back and then happened upon this timely discussion. VEGF is very low at 15. All my other labs strongly indicate mold illness as well. Thank you for posting all of the detailed...
I don't know about Bartonella. Bad Lyme for sure. She did GAPS faithfully for an entire year and regained full health....
My former next door neighbor also reversed her chronic Lyme by using the GAPS diet. This is long before I had symptoms of Lyme, and now, thinking back on all of our conversations about her return to...
This is great information. Thank you, Sara and Astroman. I will look into all of this. I do think a lot of this is my body being very tight and in danger mode due to being sick for so long. My fascia...
Thanks, Sara. I have been seriously wondering about a hiatal hernia. I really think that could be an issue. Rib out of alignment is a possibility, too. I will try to get in with my craniosacral...
Good morning, everyone. It has been awhile since my last post, and I hope everyone here is doing ok. I have a troubling symptom that is just driving me crazy. For long stretches of time the left side...
Thanks, Sara. I will try all of the above. Sounds right to me. What a weird symptom. --Jessica...
Bringing this post back up! Sara, how did you manage this? I currently have this phenomenon going on and it is such a tough issue!...
Hi Sara, i really don't have a whole lot to offer, but just wanted to say that I completely understand the feeling of having trouble healing because of stressors that just keep on coming. I...
Yes. I think the cromyln helps a bit. Need to remember to take it 30 minutes before meals. I keep forgetting and wind up taking it 5 minutes before. I feel as you do. An hour or more of yoga,...
Thanks so much for your quick reply, Saraeli. No gastric surgery. Today it happened after a lunch of sauteed broccoli, baked chicken and brown rice. Pretty severe symptoms. Landed me back in bed....
Hi everyone, here again with another struggle. I am so grateful for this forum and really hope that I can help others someday. I recently developed symptoms of dumping syndrome during which my...
Ok. This is helpful. Going to give the antihistamine a try. Have been nervous because my new llmd recommended claritin and I am a little worried about the fillers, but I have to do something. The...
Hi everyone, just realized i posted on a much older thread about mcas. But wanted to hear from anyone who had been a little (or a lot) frightened by mcas flare ups. I am currently taking cromyln...
Hi Everyone, this is for anyone to respond, but especially WalkingbyFaith or anyone who can relate. WalkingbyFaith I posted your quote because I am having these types of mcas experiences today and...
Oh wow, Walkingbyfaith. The morning stiffness? You have that? My husband has had that very, very badly for a few years. I can't believe that we have always thought it was just "getting older." Now...
Good morning, everyone. Thank you so much for all of you who responded to this post. All of your responses have helped me so much in understanding that this is not an unusual phenomenon (to...
Thank you so much, Garzie and Saraeli, for these extremely helpful responses. You've both given me a lot of information to think about here. My progesterone is super low and I am waiting on estradial...
I see that this had been mentioned a few times in the past, but wondering if I can get some fresh information about how women dealing with lyme are affected around ovulation. I have noticed terrible...
Thanks, everyone. So it really seems like the 2.25 mg was way too much to start. So glad I didn't start with the recommended dose of 4.5 mg!! Feeling better and did not take it today. Needed to...
Yes, definitely think starting with 2.25 was just too much. I had not done anything else different. Same food, supps, no extra stress. I think it had to the the ldn. Symptoms seem to be quieting, as...
Good morning everyone, i have a question about ldn. My functional medicine doctor prescribed ldn 4.5mg to be taken at bedtime. My sleep is so precious right now and I am finally sleeping better....
Yes, i have the upper abdominal fullness and stiff feelings, too. Lots of inflammation....
Thank you for the inspiring message. Personally, it is just what I needed. Have had a really rough week here but I know you are right. Our spirits can be joyful even in the midst of these types of...
Would anyone describe inflammatory symptoms as feeling stuffed with styrofoam? Sometimes I don't feel very much inflamed, but at other times, like today, I feel that awful "stuffed" feeling. It's in...
Thank you so much for finding this article. I can't believe it. I coul have written that piece. Since yesterday's session I am super anxious, nauseated, spacey, totally exhausted and emotional. This...
Anyone experience an increase in symptoms after acupuncture? Had my third treatment today and feel terrible. Anxious, emotional, drained, exhausted, weak, fairly debilitated....
Thank you, everyone, for responding to this. It sounds like a fairly common experience among people dealing with Lyme. It's a tough one. My children think I'm strange when I tell them how much it...
Thank you so much for all of this, WalkingbyFaith. I think you are right. Mold is a huge player in all of this. And we would definitely want/need someone to inspect a house before we move into it....
I am in Washington, DC. And yes, rather extensive water damage. Basement has flooded several times. Second floor bathroom pipes have leaked through the first floor ceiling recently. I am beginning to...
Yes, I really feel like these are mold issues, too, in addition to the Lyme. C4a was done thru LabCorps. Reference range 0 to 650. Mine was 5200 first time and 4100 second test, three months apart....
Thank you all for your kindness in answering my disjointed questions. Wondering if any of you have had pain just beneath the skin (almost like being bruised) when you bump into something or when...
I have a really hard time with B Complexes that have very high doses. Digestive issues, anxiety, irritability. It's tricky because I know I am low in several of the B vitamins, especially B2....
Yes, I agree. My doc is ordering the Great Plains test. For years I have noticed that I have felt better (clear head) when out of our house for a period of time. We have had multiple instances of...
Hello Everyone, I have posted a couple of times in a hurry, but just want to provide a little intro. You have all been so helpful already. I am really grateful for your kind responses. I was...
Thank you, WalkingbyFaith. I would love to know who that is. My MCAS symptoms are really flaring and I feel like if I got that under control maybe life would be easier... I will keep looking around....
Also, just checked out the Chevy Chase doctor online. People can't say enough good things about him. Will call him and try forba consult. Thank you....
Great. I will look into these. I feel like mcad is such a tricky piece of all of this. My naturopath prescribed a bunch of different herbs that made me really sick. When I told him how sick I was...
Hello everyone, having a really hard time with lyme, mold, and mcas. I am looking for a doctor who can treat and who is especially familiar with mcas. This seems to be a real problem for me. I am in...
thank you so much for this response. I also think I am having some MCAS symptoms. I feel terrible after eating certain foods and have a terrible time with all Lyme treatments (all herbal so far). I...
Yes! The first one! Feeling like something is suctioning my belly from the inside. My belly even looks weird. Sunken in. Do you know what might help? What a terrible feeling. Had a ct scan 6 months...
Hello everyone, this is my first post, but I have been dealing with chronic lyme for about 8 months now. I am struggling with many symptoms, but today and yesterday it feels as though my insides and...