I've been tested by IGeneX, and I have NO suspicion that they are simply offering positive results. The NY State Health Dept., I believe I'd heard, has approved of IGeneX, for certain Lyme testing....
Also, I believe my LLMD said that there's an above-average risk of infection, which can be fairly dangerous....
Thanks EVERYONE, for the great, helpful comments --and especially Garzie for the "Phoenix Rising" thread. You guys & gals are awesome! ...
Thanks, Garzie, Skinny_Joe, Paul B, and tickbite666. Really helpful information. And I guess I'll just not mention it to my Doc. They've tried, God knows, to find access for me for this incredibly...
[i] Girlie said: "Cryptolepis is one of the herbs Buhner recommends for Babesia. It tastes horrible tho… lol Also alchornea cordifolia and Sida Acuta are two more. I doubt Azithromycin does much for...
I've started working with a new LLMD (an ACTUAL MD, now), Dr. S., at a Holistic Medicine clinic in South Carolina. And finally feel like I'm starting to make some headway. He's been ordering the...
[i]potsnpans said, [i]"Sorry to hear your still struggling. How was the deep vein thrombosis diagnosed?" My primary care physician referred me to a vascular specialist, after I'd had swollen feet...
[i]WalkingByFaith said: [i]"I, personally, would be very nervous and reluctant to sign any kind of contract and pre-pay costs like that. I know there are other providers who do this, but it doesn’t...
[i]Girlie: [/i] B.Rob.M (MD), at the Translational Medicine Group, N. Bethesda, MD. My neighbor went to him for several years, thought he was brilliant. I believe he did have something to do with...
Sorry, folks, for going AWOL for a few days (after posting my question). I thought I was only getting a couple of responses. And, [i]Girlie, sorry if I offended about Dr. J and his protocols:...
Hey, [i]WalkingByFaith , here's a copy & paste section of the contract that they want you to sign before Sonia is able to move forward in beginning testing and a treatment plan. I'm having a hard...
I wondered if anyone has used Sonia R. for Lyme (or other) treatments. She used to call her clinic Haven Medical (in Chapel Hill), but apparently is now treating patients with Lyme, Mold, Chronic...
I've looked at the Vibrant website, and to be honest, I wouldn't trust 'em as far as I could throw them. THEIR WEBSITE even gives me the creeps--like they've set up the perfect profitable business...
Yes, Girlie, , pretty much as ChristianWithLyme said, "Right now, I'm doing an appointment every 2 months. I think she would stretch my appointments out longer if I were doing the standard Dr. J...
And I'll be more than happy to email you. I've got a few chores to do before dark, but I'll email you this evening....
It's very possible that I've had Lyme for decades, Mommyc. I lived in Connecticut in the 1980's, where Lyme was first becoming widespread. And I was careful. I was somewhat living outdoors at that...
Yes, Girlie , I was only referring to AW's appointment costs. Certainly her 1st appointment is not cheap--as I'm sure is most often the case with Lyme Docs--but once established, appointment costs...
Hello, Mommyc! I've found Anne to be quite kind and thoughtful, though sometimes overworked, I think. You can basically be doing the Dr. J protocols (at a much lower cost), by working with her. She...
BTW- Garzie , and saraeli , and anyone else that's interested: Here's some more good info (a pdf file) about Triphala guggulu, that my LLPA sent me. God, this forum is difficult!--I couldn't just...
Thanks, Garzie , for the link. Sounds like a very interesting herb combo--almost too good to be true in its wide-ranging beneficial effects. Possibly better at helping with certain health issues over...
Thanks, saraeli , but I don't seem to have that issue, thankfully. So you hadn't heard of it being an immune modulator, except for the G.I. ? According to some research papers that Anne W. sent me,...
I've had a lot of joint damage, and continue to, I believe--after being on Dr. J's abx & herb protocols for over a year. Lyme protocol, Lyme & Babesia protocol, and now Lyme/Bart protocol. I've most...
Interesting. I need to ask my LLPA about Disulfiram. My shrink has mentioned a couple of times to me that a close friend of his (also a doctor, I believe) was treated with Disulfiram and achieved...
BTW, potsnpans --to answer your question, or comment: I certainly don't take it casually (or in any way humorous) that I'm using a pretty strong abx now such as Rifabutin (in the Dr. J protocol for...
Rhytenow said, "How do you know if you have neuroborreliosis? I don't have lyme but according to a relatively new Igenex article Tick Borne Relapsing Fever can cause it as well because they're a...
UAZip05 -I remember talking to you about this (Sept., I guess it was). I certainly had bulging veins around my feet/ankles, but like I mentioned to you it turned out to be several blood clots in the...
Thanks, you guys. And I suspect, like Garzie and sandyfeet eloquently put--that Western medicine websites are likely to put any reaction (whether positive or negative) into their analysis as more or...
Thanks again, you guys. Garzie says: "i would have to re-check - but I think buhner says large doses continuously for collagen protection - so i would tend to infer from that that its safe to take...
Thanks, [u]Garzie and [b][u]saraeli , for your comments and insight into the use of [b]Echinacea for inhibiting Hyaluronidase (to possibly help rebuild collagen & joints). I totally see what both of...
I'm wondering why I don't hear more about the use of Echinacea Augustifolia (especially in treating Lyme Borrelia)? Even Buhner doesn't talk about it much, at least not in the Materia Medica part of...
Solaris719 said, [b]"Towards the end of my treatment I would feel worse about 1-2 hours after taking Rif (it has a short half life and reaches peak concentrations soon after taking it) and knew I...
Girlie: No, I wasn't prescribed dapsone and daraprim, along with the Rifabutin. What is it they do? I AM taking herbal supplements, for kidney & liver support (if that's what you're referring to) ....
Thanks, Dmitry , for your comments & links. "MIC = minimum inhibitory concentration; combo of say 2 abx mutually reduces each other MIC in a dish and probably in the body too - more effective but...
Thanks, Dmitry, for your comment: [b]"Seems like classic herx reaction to me. Also Rifabutin is pretty brutal abx... Rifabutin/Rifampin+Septra is an effective combo to reduce MICs of both...
Wow, no kidding, astroman ! No clicking or crackling sounds? My shoulders (both) do that all the damned time! I'll have to look into this muscle/tendon release. I do yoga, regularly (helps with the...
I had a somewhat serious Herx yesterday evening, after being on my 2nd week of Dr. J's "Lyme Bart" Protocol. Administered by the LLPA that I work with, in Asheville, NC. I prompted her recently (the...
I can absolutely relate, MedicalNerd . i have shifting shoulder issues, which I've had since before my Lyme diagnosis. Tore my rotator-cuff in the right shoulder, and a PT gave me some exercises to...
My LLPA, in Asheville, NC, thinks that Doctor's Best Artemisinin is a quality brand. Some of the brands now, sound fishy--like calling it "pure" Artemisinin when there are other ingredients added....
I've just had a "deep-cleaning" on all my teeth/gums, yesterday, [u]saraeli . They noticed somewhat serious bone loss, receding gums, and several bad "pockets" in my mouth (where the bone loss is...
I am on Flagyl for the last two days of the 1st week of my (2-week) protocol for Lyme/Bart. On Friday of that 1st week, I take the Flagyl along with Amoxicillin, Septra DS, and Rifabutin (Rifampin)....
Thanks for the positive stories, Rig2044, and Girlie. I've never had a diagnosis of CFS, but have certainly had fatigue, exhaustion, depression & anxiety for many years. The damned Lyme disease &...
Thanks, sunny40! More evidence for me, that spinal problems aren't uncommon. Best wishes, for your situation....
Thanks for your comment, astroman! Every bit of information helps....
Yes, actually a lot of it got better (especially swollen feet and hematomas in my toes) after I got started on Eliquis (blood-thinner). And they wanted me to start wearing compression stockings...
Thanks, bluelyme. Do you or your sister have any suspicion that you've had Lyme long-term? Just curious. I've done some hard work at times over the years, but haven't had blatant back injury....
Thanks, Garzie, and bluelyme. Those are definitely other things to consider. And def., what bluelyme said--collagen & skin can get thinner (from Bart, primarily, I think?). Apparently the skin can...
My (unqualified) guess is that you may have some vascular damage from Bartonella and/or Babesia. Bartonella, especially, can cause vascular problems, most commonly in the legs/feet. Though you'll be...
I'm guessing that you're no longer taking the Rifampicin . I've just started on Rifabutin , for Bart and Borrelia (in the same class of abx as Rifampicin), and one of the side-effects can be: ". . ....
Okay, I guess--or at least hanging in there, ChristianWithLyme. I just started on the Lyme/Bart protocol with Anne, and Thurs., Friday, & Saturday of the 1st week weren't too pleasant. According to...
Thanks for posting the link, Girlie! I'm glad to know more about Dr. J., since I'm basically using his protocol (through a PA in Asheville, NC who has worked alongside him for years). VERY...